Argya Bayuaji

Hello Marry,

Parkinson’s disease is indeed a frightening disease and many friends over the age of 40 begin to fear contracting Parkinson’s disease. In my life in particular, not everyone understands Parkinson, so I made an educational video for friends to better understand and at least understand briefly about Parkinson. I am now a member of the…[Read more]

Hello Mary and Ally

Now my area is no lockdown. the community has been active as usual but still follows government protocol. Family interaction is good, for families outside the area using WA or Google Meet

Keep the spirit, hopefully always healthy

Argya

Hello Mary and Ally
Hello my friends

During these 2 months, I did self quarantine and it turned out to bring a change from myself and the condition of Parkinson’s Disease that I suffered. The usual activity that is done is leaving the house to work from home is very felt the change.

I am an extrovert having to work inside the house for a very…[Read more]

Hello Mr. Steve

Permission to share about my experience with Parkinson’s Disease, I was diagnosed with Parkinson’s age of 20 years. During my time with Parkinson’s Disease, I also felt that some drugs made non-motor symptoms appear. Some non-motor symptoms are anxiety and depression. I do not really know whether this is indeed a reaction from…[Read more]

Thank you so much Ally and Mery

I will continue to educate about Parkinson’s Disease. I always share the knowledge that Parkinson’s is not a psychiatric disorder, schizophrenia, or curse. I always say that “We can still do something” to people. Stigma among young people who tend to diagnose briefly. even though it’s not justified. Social and…[Read more]

Hello Mary and My Friends 🙂

I often get stigma about Parkinson’s disease and dystonia that I suffer. Even now. Some say only lies, mental disorders, seeking attention and others. Even when I consulted a psychiatrist, it was considered a schizophrenic disorder. Though handling Parkinson’s disease must be comprehensive.

All I do is keep quiet and…[Read more]

Hello all,

i’m Argya Bayuaji, i’m new member in this forum. I was diagnosed at 20 y.o. I feel that Parkinson’s Disease giving impact my sleep until now. I could not sleep well. I only slept 1-3 hours since I started the second year with Parkinson’s Disease. i went to neurologist and he given me sleep medication. But, I also use psychological…[Read more]

To: Ally and My Friends in forum 🙂

I have never been involved in research as a researcher. I have been the subject of my friend’s research on the theme of Parkinson’s Disease. In my place, research on Parkinson’s Disease and Movement Disorders is more thoroughly researched in the field of medicine. Though handling Parkinson’s disease does not…[Read more]

To: Mary Beth and All beloved my friends in forum

I feel lucky and very happy to be able to discuss in this forum. Thank you very much for the friends in the forum for giving advice so that I get insight. Sorry if possible I made a lot of themes or asked about Parkinson’s Disease and movement disorders. I hope you don’t get bored answering my…[Read more]

Muhammad Ali and Michael J. Fox are my inspiration and provide an injection of motivation to continue to fight against Parkinson’s Disease. But, my other inspiration are all my friends who are fighting the illness that is being suffered, especially Parkinson’s Disease and Movement Disorders

To: Mrs. Ally and My Lovely Friends

I am not researching specifically about Parkinson’s Disease. But, I read some literature that is relevant to what I am learning, psychology. So that I can analyze from some of the literature that I read, it turns out that Parkinson’s disease not only affects the physical condition but also the mental or…[Read more]

To: Mrs. Ally and my friends

To learn about Parkinson’s Disease, I get information through blogs, research journals, through health reading books, and share information about Parkinson’s Disease through consultation with friends who study in Medicine or health. On the basis of scientific research I believe and learn more to get to know myself…[Read more]

At the beginning I was diagnosed with Parkinson’s Disease, I was really down. For three weeks I always tried to end my life. However, the people closest to me and my friends always support me. At that time I was really sorry.

I look weird when in a group because I can’t control my tremors and slowness. But some of my close friends always give…[Read more]

Thank you so much for my friends in this forum.

Indeed we cannot control our social environment. Adapt to a new environment that makes us learn a lot of new things. I have gotten bullying and cyberbullying. In my area, Parkinson’s Disease is still considered a mental disorder even though it is wrong. However, I will continue to spread content or…[Read more]

Thank you very much to all my friends who have provided support and advice for me. I have been suffering from Parkinson’s disease for 3 years, but for symptoms I have appeared since 2016. I try to be open with people and my friends, but there are other responses. Stigma on Parkinson’s Disease. When I arrived, some of them said that they were…[Read more]