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Argya Bayuaji posted an update 1 year, 6 months ago
PARKINSON’S DISEASE IS NOT THE END
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Argya Bayuaji started the topic Non-Motor Symptoms in Parkinson's Disease in the forum Parkinson's Disease Symptoms 1 year, 6 months ago
How to manage non-motor symptoms like depression, anxiety, sleep disturbance ect in Parkinson’s DIsease?
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Argya Bayuaji changed their profile picture 1 year, 7 months ago
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rose and
Argya Bayuaji are now friends 1 year, 9 months ago
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Argya Bayuaji replied to the topic How did your partner respond to the diagnosis? in the forum Diagnosis Information and General Questions 1 year, 10 months ago
Hello Marry,
Parkinson’s disease is indeed a frightening disease and many friends over the age of 40 begin to fear contracting Parkinson’s disease. In my life in particular, not everyone understands Parkinson, so I made an educational video for friends to better understand and at least understand briefly about Parkinson. I am now a member of the…[Read more]
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Argya Bayuaji replied to the topic Hello again! Let's check in in the forum Living With Parkinson's Disease 1 year, 11 months ago
Hello Mary and Ally
Now my area is no lockdown. the community has been active as usual but still follows government protocol. Family interaction is good, for families outside the area using WA or Google Meet
Keep the spirit, hopefully always healthy
Argya
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Argya Bayuaji replied to the topic Hello again! Let's check in in the forum Living With Parkinson's Disease 1 year, 11 months ago
Hello Mary and Ally
Hello my friendsDuring these 2 months, I did self quarantine and it turned out to bring a change from myself and the condition of Parkinson’s Disease that I suffered. The usual activity that is done is leaving the house to work from home is very felt the change.
I am an extrovert having to work inside the house for a very…[Read more]
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Argya Bayuaji replied to the topic How is Parkinsons stigmatized? in the forum Parkinson’s Disease Awareness and Advocacy 2 years, 2 months ago
Thank you so much Ally and Mery
I will continue to educate about Parkinson’s Disease. I always share the knowledge that Parkinson’s is not a psychiatric disorder, schizophrenia, or curse. I always say that “We can still do something” to people. Stigma among young people who tend to diagnose briefly. even though it’s not justified. Social and…[Read more]
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Argya Bayuaji replied to the topic How is Parkinsons stigmatized? in the forum Parkinson’s Disease Awareness and Advocacy 2 years, 2 months ago
Hello Mary and My Friends 🙂
I often get stigma about Parkinson’s disease and dystonia that I suffer. Even now. Some say only lies, mental disorders, seeking attention and others. Even when I consulted a psychiatrist, it was considered a schizophrenic disorder. Though handling Parkinson’s disease must be comprehensive.
All I do is keep quiet and…[Read more]
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Argya Bayuaji replied to the topic Parkinon's impact on sleep and dreaming in the forum Parkinson's Disease Symptoms 2 years, 2 months ago
Hello all,
i’m Argya Bayuaji, i’m new member in this forum. I was diagnosed at 20 y.o. I feel that Parkinson’s Disease giving impact my sleep until now. I could not sleep well. I only slept 1-3 hours since I started the second year with Parkinson’s Disease. i went to neurologist and he given me sleep medication. But, I also use psychological…[Read more]
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Argya Bayuaji replied to the topic How do you stay up-to-date with PD news? in the forum Diagnosis Information and General Questions 2 years, 2 months ago
To: Ally and My Friends in forum 🙂
I have never been involved in research as a researcher. I have been the subject of my friend’s research on the theme of Parkinson’s Disease. In my place, research on Parkinson’s Disease and Movement Disorders is more thoroughly researched in the field of medicine. Though handling Parkinson’s disease does not…[Read more]
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Argya Bayuaji replied to the topic Young Onset Parkinson's Disease in the forum Living With Parkinson's Disease 2 years, 2 months ago
To: Mary Beth and All beloved my friends in forum
I feel lucky and very happy to be able to discuss in this forum. Thank you very much for the friends in the forum for giving advice so that I get insight. Sorry if possible I made a lot of themes or asked about Parkinson’s Disease and movement disorders. I hope you don’t get bored answering my…[Read more]
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Argya Bayuaji replied to the topic Which Parkinson's advocate inspires you the most? in the forum Parkinson’s Disease Awareness and Advocacy 2 years, 2 months ago
Muhammad Ali and Michael J. Fox are my inspiration and provide an injection of motivation to continue to fight against Parkinson’s Disease. But, my other inspiration are all my friends who are fighting the illness that is being suffered, especially Parkinson’s Disease and Movement Disorders
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Argya Bayuaji replied to the topic How do you stay up-to-date with PD news? in the forum Diagnosis Information and General Questions 2 years, 2 months ago
To: Mrs. Ally and My Lovely Friends
I am not researching specifically about Parkinson’s Disease. But, I read some literature that is relevant to what I am learning, psychology. So that I can analyze from some of the literature that I read, it turns out that Parkinson’s disease not only affects the physical condition but also the mental or…[Read more]
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Argya Bayuaji replied to the topic How do you stay up-to-date with PD news? in the forum Diagnosis Information and General Questions 2 years, 2 months ago
To: Mrs. Ally and my friends
To learn about Parkinson’s Disease, I get information through blogs, research journals, through health reading books, and share information about Parkinson’s Disease through consultation with friends who study in Medicine or health. On the basis of scientific research I believe and learn more to get to know myself…[Read more]
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Argya Bayuaji replied to the topic Young Onset Parkinson's Disease in the forum Living With Parkinson's Disease 2 years, 2 months ago
At the beginning I was diagnosed with Parkinson’s Disease, I was really down. For three weeks I always tried to end my life. However, the people closest to me and my friends always support me. At that time I was really sorry.
I look weird when in a group because I can’t control my tremors and slowness. But some of my close friends always give…[Read more]
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Argya Bayuaji replied to the topic Young Onset Parkinson's Disease in the forum Living With Parkinson's Disease 2 years, 2 months ago
Thank you so much for my friends in this forum.
Indeed we cannot control our social environment. Adapt to a new environment that makes us learn a lot of new things. I have gotten bullying and cyberbullying. In my area, Parkinson’s Disease is still considered a mental disorder even though it is wrong. However, I will continue to spread content or…[Read more]
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Argya Bayuaji replied to the topic Young Onset Parkinson's Disease in the forum Living With Parkinson's Disease 2 years, 3 months ago
Thank you very much to all my friends who have provided support and advice for me. I have been suffering from Parkinson’s disease for 3 years, but for symptoms I have appeared since 2016. I try to be open with people and my friends, but there are other responses. Stigma on Parkinson’s Disease. When I arrived, some of them said that they were…[Read more]
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Argya Bayuaji started the topic Young Onset Parkinson's Disease in the forum Living With Parkinson's Disease 2 years, 3 months ago
Hi, My name is Argya Bayuaji, i was diagnosed at 21. The symptoms like tremors, shaking hands, rigidity, slowness movement, dystonia, and gait disorder. The first i knew that, i’m massive shock. i’ve depression and sleep disorder. Neurologist give Levodopa ( Stalevo )and tremors down, and maybe on-off. Maybe i wanna hear story about the first time…[Read more]