Thomas Rutschman

I sing in a choir and that has helped by voice to be stronger. The isolation during the Covid pandemia was not good for my voice, though. I started doing magic tricks to keep my fine motor skills, as well as doing some carpentry projects. (I make wooden puzzles for kids.) My guitar playing has take a toll, though–it is not as fun as it once…[Read more]

I get a flu shot every year and have had no side effects at all, despite having Parkinson’s.

To Kate I would say that with one month of Mannitol you have hardly given it a chance to work. Try to find a dosage you can handle and stick it out a bit longer. Good luck!

I am glad to hear that others have had a good experience with Mannitol, too. I have been taking it for 11 months now and I still feel it has given me back my life. I have had Parkinsons since 2011 and nothing else I have done has had the effect that Mannitol has. It has actually turned back the clock. I wrote earlier about how it gave me back my…[Read more]

Thank you Charles for sharing about how Mannitol helps you. I just came back from a trip to see a daughter and her family, and I forgot to take my Mannitol along. I was gone five days without the positive effects of Mannitol disappearing. Which tells me there has been some major repair-work in my brain, cleaning out the Lewy body clumps and…[Read more]

I was diagnosed with Parkinsonism in 2010 and have tried a bunch of things besides the standard medicines. Nicotine patches like they do in France. Coenzyme Q10 like they do in the US.

I have been using Lactobacillus plantarum PS128. Since it is a living culture, you can make your own. So I make “yoghurt” and eat it for breakfast. I eat…[Read more]

Mannitol from Sosa in Spain.

Good luck with the Mannitol. And with the dreams!

I understand it is quite common for those of us who take Parkinson’s medicine to “act out our dreams”. Earlier on I would wake up kicking at some dangerous animal attacking my wife. But I haven’t had those kind of dreams since I started taking Mannitol. I doubt whether melatonin helps–though it might get you better sleep. I was of the…[Read more]

Good luck for those trying Mannitol. I use Sosa brand from Spain. I really don’t know if one is better than the other.

Anybody else have problems rolling from one side to the other in bed? I really am helped by using silk pajamas and a strip of silk-like cloth under my waist area–really helps.

Take care!

One thing that I found especially helpful was to put a silk strip of cloth in bed at the level of my waist. It makes it much easier to change sides when you need to change your position in bed. (Actually I went to a second hand store and bought som satin curtains which I then cut a strip wide enough for my waist and long enough to tuck in both…[Read more]

Does he have high blood pressure? Some medicines for blood pressure are also diuretics (take in the morning, and not at night or you will be up more often at night.) That should get the swelling down.

Stronger voice, once again my arms swing when I walk, my writing has gotten back to normal size, less stiff, etc. have all occurred once I started taking Mannitol in Nov. last year.  I take one heaping teaspoon a day (in the morning).  It is a sugar which is used especially by diabetics.  Start slowly until you get to a heaping teaspoon.

Good luck

Tom

The one thing I can imagine me using in the future is something that helps me put on my socks.  But since I have been taking Mannitol (google it) I feel so much better that I almost forget that I have Parkinson’s!

About ten years ago I was diagnosed with parkinsonism-but I had it years before without realizing what it was.  I remember thinking “if this is how it feels to get old, it sure came suddenly”.

I live in the sparsely populated north of  Sweden, and the neurologist watched me walk and said I had Parkinsons if Levodopa made me feel better!  So I st…[Read more]

Dear Charles:

Interesting that you mentioned stomach noises.  Mine does make noise too, but it did so before I started taking Mannitol (I think!).  I take my Mannitol with my medicines–a few minutes after the Levodopa and others and half an hour before breakfast.  I don’t know if it would make any difference for me.  I haven’t felt the on/…[Read more]

Sounds good Beth.  I hope you will see other things improve as well.  But do  remember when you start or  stop taking a particular medicine you should do it gradually.

Blessings.

Sounds great!  It took me longer than that to feel any changes, but I’ve heard others who say they felt a difference after a few days as well.  Keep it up!  (What brand of Mannitol do you use?)

Tom

I get my mannitol from a firm in Spain called Sosa.  I take a heaping teaspoon with orange juice every morning.  But I would start with half that for the first few days, to see you tolerate it.  Mannitol is a sugar used especially for diabetics, and can be bought through Amazon I understand.

Good luck!

I order  my Mannitol from Spain.  500 gr costs 24 euros.  Google it, it’s called Sosa, out of Moià in Catalunya.  Good luck!