Thomas Rutschman

About ten years ago I was diagnosed with parkinsonism-but I had it years before without realizing what it was.  I remember thinking “if this is how it feels to get old, it sure came suddenly”.

I live in the sparsely populated north of  Sweden, and the neurologist watched me walk and said I had Parkinsons if Levodopa made me feel better!  So I st…[Read more]

Dear Charles:

Interesting that you mentioned stomach noises.  Mine does make noise too, but it did so before I started taking Mannitol (I think!).  I take my Mannitol with my medicines–a few minutes after the Levodopa and others and half an hour before breakfast.  I don’t know if it would make any difference for me.  I haven’t felt the on/…[Read more]

Sounds good Beth.  I hope you will see other things improve as well.  But do  remember when you start or  stop taking a particular medicine you should do it gradually.

Blessings.

Sounds great!  It took me longer than that to feel any changes, but I’ve heard others who say they felt a difference after a few days as well.  Keep it up!  (What brand of Mannitol do you use?)

Tom

I get my mannitol from a firm in Spain called Sosa.  I take a heaping teaspoon with orange juice every morning.  But I would start with half that for the first few days, to see you tolerate it.  Mannitol is a sugar used especially for diabetics, and can be bought through Amazon I understand.

Good luck!

I order  my Mannitol from Spain.  500 gr costs 24 euros.  Google it, it’s called Sosa, out of Moià in Catalunya.  Good luck!

Learning a new language like Spanish is a good way to push brain problems into the future.  The new language you learn is put in a different “brain compartment” so you keep your brain more active.  Your name, Beata, is Spanish as you probably know, meaning “Blessed”.

Have a good day!

I have tried this probiotic  for a few months, which a  South Korean group is working with called Lactobacillus plantarum PS128 as effective for Parkinson’s.  I have been able to get it via France, but I think you can get it in the US as well.  My brother, a doctor, researched work people had done on acidophilus and thought that it sounded goo…[Read more]

My brother a general practitioner doctor reminds me that one should start off gradually as well as taper down if one is quitting. He had also researched the gut-brain connection and suggested intake of acidophilus.

I would have registered for the clinical trials, but exchanging e-mails with the scientist in Israel I realized I was no help.  The only tests given me by the neurologist over ten years ago was: take this medicine, if it makes you feel better you have Parkinson’s…  So there is no “before” I can compare with the “after”.  So those of you who do…[Read more]

Yes, Mannitol does seem to take a few months for it to work.  But that makes sense if it is cleaning up the alpha synuclein deposits.  I do  take vit C as was suggested on this forum. When Mannitol is used in a hospital, it is given by I.V. for example to shrink the size of a brain that has had a concussion.  We are using it as a powdered sug…[Read more]

I take magnesium for cramps.  It seems to help.

Beth,

If you have bathroom issues, I would cut back on how much Mannitol you take.  And give it a month or two to give results.   It took a while for it to give results my wife reminds me.  The fantastic thing about Mannitol is that it seems to reverse the symptoms of Parkinson’s. There is nothing else that can claim that as far as I can tel…[Read more]

I only take a heaping teaspoon in the morning with my orange juice.  I assume a person’s weight would influence the dose.  (I am 5’8″ and weigh 90 kg. ) And as I understand it, the Mannitol helps clean up the alpha synuclein protein clumps in the brain.  And since it is a FDA approved sugar, it is sold as such, so there would be no Parkinson’s in…[Read more]

Can you order Mannitol made by Sosa from Spain yourselves?   That hasn’t been too expensive, about 30 US$ for 1/2 kg of the powder.

Good luck!

Since I live in Europe, I order my Mannitol from Spain (Sosa Ingredients, 08180 Moià, Catalunya).  It sure works for me!

I take a heaping teaspoon in the morning mixed with orange juice.  Though it is a sugar,  it is not excessively sweet.  I live in Europe, so I get it from Spain.  I have no side effects–my other Parkinson medicines keep me constipated, so I don’t have problems with frequent bathroom needs.  I realize it doesn’t work for everyone: Parkinson’s seem…[Read more]

I take a heaping teaspoon in the morning mixed with orange juice.  Though it is a sugar,  it is not excessively sweet.  I live in Europe, so I get it from Spain.  I have no side effects–my other Parkinson medicines keep me constipated, so I don’t have problems with frequent bathroom needs.  I realize it doesn’t work for everyone: Parkinson’s seem…[Read more]