Thomas Rutschman

What if you would try a smaller dose of Mannitol?

I have had Parkinson’s for 11 years.  I used to have vivid dreams of animals attacking and would kick to save my wife from their attacks. We have a double bed, but with single top sheets. So my legs would get wrapped in my sheet, so I never managed to actually kick her.

But this is one of the symptoms that disappeared when I started taking a…[Read more]

Dear Bari,

More important than the mattress is having a “slippery surface” that you sleep on to assist in turning over. I bought som satin/silk pajamas, and found some satin curtains at a second hand store. Then I cut a strip long enough to tuck under both sides of the mattress on top of the bottom sheet and 50 cm wide (1,6 feet). Without it I…[Read more]

Yo tomo los mismos medicamentos que usted. Levodopa y Repinerol. Pero lo que a mi me ha dado más resultado es Mannitol, un azucar. Uso una cucharada al día. Parece que tiene efecto sobre las placas enrolladas que tenemos en el cerebro a causa del Parkinsons.
Buena suerte!

I live above the Arctic circle, with virtually no direct sunlight for a few months of the year (like now!). Light therapy helps people who feel depressed by the lack of sunlight. When I first moved here I heard that some hospitals gave light therapy. But that was a long time ago. I did pick up a lamp which has the right UV and my wife uses it…[Read more]

I grew up in Montevideo, Uruguay but have lived above the Arctic Circle in Jokkmokk, Sweden,  Tonight it is -17  degrees Celsius, and a few weeks ago it got down to -36!

I sing in a choir and that has helped by voice to be stronger. The isolation during the Covid pandemia was not good for my voice, though. I started doing magic tricks to keep my fine motor skills, as well as doing some carpentry projects. (I make wooden puzzles for kids.) My guitar playing has take a toll, though–it is not as fun as it once…[Read more]

I get a flu shot every year and have had no side effects at all, despite having Parkinson’s.

To Kate I would say that with one month of Mannitol you have hardly given it a chance to work. Try to find a dosage you can handle and stick it out a bit longer. Good luck!

I am glad to hear that others have had a good experience with Mannitol, too. I have been taking it for 11 months now and I still feel it has given me back my life. I have had Parkinsons since 2011 and nothing else I have done has had the effect that Mannitol has. It has actually turned back the clock. I wrote earlier about how it gave me back my…[Read more]

Thank you Charles for sharing about how Mannitol helps you. I just came back from a trip to see a daughter and her family, and I forgot to take my Mannitol along. I was gone five days without the positive effects of Mannitol disappearing. Which tells me there has been some major repair-work in my brain, cleaning out the Lewy body clumps and…[Read more]

I was diagnosed with Parkinsonism in 2010 and have tried a bunch of things besides the standard medicines. Nicotine patches like they do in France. Coenzyme Q10 like they do in the US.

I have been using Lactobacillus plantarum PS128. Since it is a living culture, you can make your own. So I make “yoghurt” and eat it for breakfast. I eat…[Read more]

Mannitol from Sosa in Spain.

Good luck with the Mannitol. And with the dreams!

I understand it is quite common for those of us who take Parkinson’s medicine to “act out our dreams”. Earlier on I would wake up kicking at some dangerous animal attacking my wife. But I haven’t had those kind of dreams since I started taking Mannitol. I doubt whether melatonin helps–though it might get you better sleep. I was of the…[Read more]

Good luck for those trying Mannitol. I use Sosa brand from Spain. I really don’t know if one is better than the other.

Anybody else have problems rolling from one side to the other in bed? I really am helped by using silk pajamas and a strip of silk-like cloth under my waist area–really helps.

Take care!

One thing that I found especially helpful was to put a silk strip of cloth in bed at the level of my waist. It makes it much easier to change sides when you need to change your position in bed. (Actually I went to a second hand store and bought som satin curtains which I then cut a strip wide enough for my waist and long enough to tuck in both…[Read more]

Does he have high blood pressure? Some medicines for blood pressure are also diuretics (take in the morning, and not at night or you will be up more often at night.) That should get the swelling down.

Stronger voice, once again my arms swing when I walk, my writing has gotten back to normal size, less stiff, etc. have all occurred once I started taking Mannitol in Nov. last year.  I take one heaping teaspoon a day (in the morning).  It is a sugar which is used especially by diabetics.  Start slowly until you get to a heaping teaspoon.

Good luck

Tom

The one thing I can imagine me using in the future is something that helps me put on my socks.  But since I have been taking Mannitol (google it) I feel so much better that I almost forget that I have Parkinson’s!