Forum Replies Created

  • timbob1952

    Member
    November 21, 2024 at 5:03 pm in reply to: What do you think is at the root of your Parkinson’s diagnosis?

    No genetic history, lots of chemical exposure plus air and tap water pollution.

    For the last 32 years, I’ve been sleeping 50 feet from a high voltage power transmission line. Before I moved in, I got the local utility to bring a meter out and measure the radiation, which was minimal. Now I wonder how good the meter was. PD age 70.

    Not to mention heavy cell phone use.

  • When my neurologist set me up on C/L two years ago, her instructions were 3 times, five hours apart, none at night. She said taking at night was a waste since it only treats symptoms. She suggested melatonin if my sleep was active with talking or arm swinging.

    I take it at 8am, 1pm, 6pm without food in my stomach.

  • timbob1952

    Member
    November 14, 2024 at 6:14 pm in reply to: Levedopa has no effect

    I was diagnosed at age 70 in 2022. My main complaints are arm and face tremors, poor balance, constipation and painful muscle spasms. I also have familial essential tremor which was confirmed with a DAT scan.

    Taking 2 C/L 25/100 three times a day at 5 hours apart with no noticeable effect. Been up to 9 a day without results except drowsiness. At this point, I can barely sign my name. I see there are several other meds that folks on this forum are taking. I plan to ask my doc about these next visit.

  • timbob1952

    Member
    October 31, 2024 at 3:25 pm in reply to: Exciting PD research news?

    Here’s a link to a recent article on progress in a different type of PD treatment research:

    https://www.freethink.com/health/the-exciting-research-that-may-cure-parkinsons

    Further down in this discussion, there’s a four year old comment from Bill Church which mentions this CDMA research.

    Unfortunately, it seems these researchers like to spring these news releases very early in that they are typically years from clinical trials.

    Tim

  • timbob1952

    Member
    October 29, 2024 at 3:14 pm in reply to: Books about Parkinson’s

    This is a good book but it reads like a textbook for doctors.

    Ahlskog is a neurologist with Mayo in Rochester.

    Parkinson’s Disease Treatment Book. Eric Ahlskog