• Crystal Belle became a registered member 3 years, 9 months ago

    • Hi Crystal, welcome to the forum. I am 64 and was diagnosed with PD in 2015. Thank you for your posts on the forum. I hope you can find some information that can help you on this website.

      • Thanks for the warm welcome Jean. I am 56 and just diagnosed this March, been going through many scans and tests ruling out everything else. Still have to see a Cardiologist next month before I can start treatment other than in home PT but my legs don’t work many steps before freezing. So my doc already ordered a walker with a seat which has arrived. Much seems to be happening fast. I’m grateful for this forum.

        • I am so sorry Crystal. I felt I was deteriorating quickly about 6 months ago, but I was so much in denial and not accepting that I have this disease. As it is with PD, there isnt any one answer that applies to all or doesnt seem to be any rhyme or reason as to what may be working or not, but, I did have a stablization so to speak once I started to re-frame how I thought about this disease. However, I have made diet changes, took up Boxing for PD among other things, so who is to say what was the single most important change that helped me. Here is the blog I wrote that better describes my feelings about this: https://slippedawayblog.wordpress.com/2018/02/26/acceptance-gratitude-and-attitude/

          I wish you well Crystal. Hang in there, you can be fearless again, even if only for a few brief moments.

          • Thank you Jean. I’ve read your blog and left a short comment. My daughter in law came and mopped my house today, God bless her. I’m very grateful that she and my son live next door. He took me for my carotid surgery back in September, saw me do the therapy after, so thinks I should be well now. We’ve always been very close so he’s very much in denial and staying away for now. I understand and DO intend to bounce back. It just can’t be in a few days this time. He will have to learn to accept that this is temporary. I think. 😉

            • Thank you for reading my blog. That is wonderful that your son and daughter in law live so close to you and keep an eye out for you. I have found that most people do not understand how PD affects our bodies and many think we are okay and we are not. That is one of the more difficult aspects of dealing with this disease. Sometimes I feel so weak and shaky inside and just plain miserable, yet people look at me and think I am fine. It is so far from the truth, I hide it well, but, this is my new ‘normal’.

            • I agree. We look the same, pretty much, so nobody quite understands. It’s time for me to accept that this is my new normal, get back in my car, and go get food back in here today! This IS a better day today so I can do this. Small quantity. 😉

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