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Crystal Belle

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@sybil1234

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  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Do you experience pain as a PD symptom? in the forum Parkinson's Disease Symptoms 4 years, 4 months ago

    Ally, I’m glad you enjoyed that. I’ve had an interesting life, and it’s not over until God says it’s over. Of course, had I known I’d be needing this body this long I would have treated it better. Nobody knows what tomorrow holds so we live it one day at a time. Hopefully, I’ll be on the meds to help these PD symptoms soon, and they could carry…[Read more]

  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Do you experience pain as a PD symptom? in the forum Parkinson's Disease Symptoms 4 years, 4 months ago

    Ally, I do still miss working. I worked in auto parts, of all things lol! Started as a cashier in 1990, soon learned raises and promotions would come from behind the parts counter, so asked to be moved. My boss said, “your job is to just smile, look pretty and take the customers money”. Challenge accepted. I bet him that I could sell more par…[Read more]

  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Do you experience pain as a PD symptom? in the forum Parkinson's Disease Symptoms 4 years, 4 months ago

    Thank you Jean, but all is well. Except I tried to edit my previous post to Ally and made a double post LoL!😂😁 Would you or she please delete the first one? You see? Give me one good day, and the shenanigans begin! Haha!
    You and Ally are both treasures whom I hope are doing well today. You truly are appreciated.

  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Do you experience pain as a PD symptom? in the forum Parkinson's Disease Symptoms 4 years, 4 months ago

    Ally, to get back on topic, I’ve experienced a new level of pain with my PD, although arthritis took me out of work in 2004. Yes, I do experience pain from my PD, as it is completely different. Being coupled with the other, survival has become more complicated while remaining doable. I admit that now there are some days I don’t greet the world wit…[Read more]

  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Do you experience pain as a PD symptom? in the forum Parkinson's Disease Symptoms 4 years, 4 months ago

    Hello Ladies;
    The sunshine is beaming down nicely here today. Someone told me recently that I’m not accepting my limitations and she is correct lol. Living alone, that would mean to curl up and starve so I’m definitely not. 😉 Today I have carried out the trash and taken the can to the curb after treating my family to a spaghetti dinner last eve…[Read more]

  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Do you experience pain as a PD symptom? in the forum Parkinson's Disease Symptoms 4 years, 4 months ago

    Hello Ally; It’s nice to meet you. I appreciate you and Jean very much. There has been much flooding in NC but we’ve been fortunate in this neighborhood. Water did get under my house and flood out the thermostat on my water heater again due to bad drainage in this city. Having arthritis also, the rain has put me behind on much, affecting my mob…[Read more]

  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Do you experience pain as a PD symptom? in the forum Parkinson's Disease Symptoms 4 years, 5 months ago

    Beautiful idea! Haha! Pain sucks, but is a part of life that can’t be avoided. To be young and carefree is only for those who are young and carefree. We can cry about our pain or play with it, giving it the thumping it deserves I think. I like your style. Thank you for sharing it.

  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Do you experience pain as a PD symptom? in the forum Parkinson's Disease Symptoms 4 years, 5 months ago

    Absotively right! My pity party is over and I apologize for bringing it aboard lol. I am blessed beyond measure with a peaceful life. I worked hard for it and made a conscious choice to live alone without drama and have enjoyed it. Life in this world can not be completely without pain and problems or this would be heaven. Yes, we choose our…[Read more]

  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Do you ever feel overwhelmed by all the exercises you must do to alleviate your symptoms?  in the forum Parkinson's Disease and exercise 4 years, 5 months ago

    Even so, I want to Thank You Jean, for being here for me while I’ve been going through my acceptance stage, or panic if you will, LoL. You are a Godsend my friend.

    My panic is over and acceptance has set in. Time to grab this bull by the horns and say; Let’s dance. Every time I stumble, that is the first step of a new dance now. That’s the first…[Read more]

  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Do you ever feel overwhelmed by all the exercises you must do to alleviate your symptoms?  in the forum Parkinson's Disease and exercise 4 years, 5 months ago

    Probably. But you are the same strong independent woman that walked through that fire and came out on the other side. I admit I didn’t walk through that alone either. We’ve got this,it doesn’t have us.

  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Hair loss; PD symptom or medication side effect, or just age? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 5 months ago

    Maybe it’s like medications; good for some, bad for others. No there are never any easy answer. I agree.

  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Do you experience pain as a PD symptom? in the forum Parkinson's Disease Symptoms 4 years, 5 months ago

    Jean I haven’t had a massage in several years. The kids bought one for Mother’s Day one year and I loved it! Unfortunately I’m on SSD and Medicare living alone. I’ve enjoyed my serenity for decades and am paying dearly now lol. It was great when I was working and financing myself 100% of just enough. But arthritis took me out in 2004, wages w…[Read more]

  • Profile picture of Crystal Belle

    Crystal Belle posted a new activity comment 4 years, 5 months ago

    I agree. We look the same, pretty much, so nobody quite understands. It’s time for me to accept that this is my new normal, get back in my car, and go get food back in here today! This IS a better day today so I can do this. Small quantity. 😉

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  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Hair loss; PD symptom or medication side effect, or just age? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 5 months ago

    I am not on the meds yet but do suffer the hair loss. I learned recently that Head and Shoulders with zinc helps. Tried it and sure enough, from the first time, no fingers full of hair coming out in the shower! She said this seems to work for women only, not men for some reason. It worked for me, so thought I’d share. Good luck! 👍

  • Profile picture of Crystal Belle

    Crystal Belle posted a new activity comment 4 years, 5 months ago

    Thank you Jean. I’ve read your blog and left a short comment. My daughter in law came and mopped my house today, God bless her. I’m very grateful that she and my son live next door. He took me for my carotid surgery back in September, saw me do the therapy after, so thinks I should be well now. We’ve always been very close so he’s very much in…[Read more]

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    • Profile picture
      replied 4 years, 5 months ago

      Thank you for reading my blog. That is wonderful that your son and daughter in law live so close to you and keep an eye out for you. I have found that most people do not understand how PD affects our bodies and many think we are okay and we are not. That is one of the more difficult aspects of dealing with this disease. Sometimes I feel so…[Read more]

    • Profile picture of Crystal Belle
      Crystal Belle replied 4 years, 5 months ago

      I agree. We look the same, pretty much, so nobody quite understands. It’s time for me to accept that this is my new normal, get back in my car, and go get food back in here today! This IS a better day today so I can do this. Small quantity. 😉

  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Do you experience pain as a PD symptom? in the forum Parkinson's Disease Symptoms 4 years, 5 months ago

    Jean, my right side has been hit by my PD unfortunately. I wish it had joined my arthritis in my left hip and leg so I’d still have a good side. Yes, I do experience pain, different from the arthritis pain bc there is more stiffness and numbness involved, numbing my right foot as I walk at this point, moving up my leg, becoming stiff. I know now t…[Read more]

  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Do you ever feel overwhelmed by all the exercises you must do to alleviate your symptoms?  in the forum Parkinson's Disease and exercise 4 years, 5 months ago

    Thank you Jean. I enjoyed reading your column. I’m not the only one with that defiant fire. I may have PD but it will not have me. This is going to stay my mindset throughout this journey just as when I had cancer in 1997. Yet I can never agree with whoever said what doesn’t kill us makes us stronger lol. Must have been referring to heart sle…[Read more]

  • Profile picture of Crystal Belle

    Crystal Belle replied to the topic Do you ever feel overwhelmed by all the exercises you must do to alleviate your symptoms?  in the forum Parkinson's Disease and exercise 4 years, 5 months ago

    I applaud you both as a noob still in survival mode at this time. My PT is coming by twice weekly, getting little from me at this time despite my strongest efforts. I’ve had osteoarthritis and disc degeneration that took me out of work in 2004, then Subclavian Steal Syndrome since 2012 so the PD has been late diagnosed after slow movements b…[Read more]

  • Profile picture of Crystal Belle

    Profile picture of Crystal Belle and are now friends 4 years, 5 months ago

  • Profile picture of Crystal Belle

    Crystal Belle posted a new activity comment 4 years, 5 months ago

    Thanks for the warm welcome Jean. I am 56 and just diagnosed this March, been going through many scans and tests ruling out everything else. Still have to see a Cardiologist next month before I can start treatment other than in home PT but my legs don’t work many steps before freezing. So my doc already ordered a walker with a seat which has a…[Read more]

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    • Profile picture
      replied 4 years, 5 months ago

      I am so sorry Crystal. I felt I was deteriorating quickly about 6 months ago, but I was so much in denial and not accepting that I have this disease. As it is with PD, there isnt any one answer that applies to all or doesnt seem to be any rhyme or reason as to what may be working or not, but, I did have a stablization so to speak once I started…[Read more]

      • Profile picture of Crystal Belle
        Crystal Belle replied 4 years, 5 months ago

        Thank you Jean. I’ve read your blog and left a short comment. My daughter in law came and mopped my house today, God bless her. I’m very grateful that she and my son live next door. He took me for my carotid surgery back in September, saw me do the therapy after, so thinks I should be well now. We’ve always been very close so he’s very much in…[Read more]

        • Profile picture
          replied 4 years, 5 months ago

          Thank you for reading my blog. That is wonderful that your son and daughter in law live so close to you and keep an eye out for you. I have found that most people do not understand how PD affects our bodies and many think we are okay and we are not. That is one of the more difficult aspects of dealing with this disease. Sometimes I feel so…[Read more]

        • Profile picture of Crystal Belle
          Crystal Belle replied 4 years, 5 months ago

          I agree. We look the same, pretty much, so nobody quite understands. It’s time for me to accept that this is my new normal, get back in my car, and go get food back in here today! This IS a better day today so I can do this. Small quantity. 😉

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