Forum Replies Created

  • SteveNaive

    Member
    March 5, 2020 at 1:56 am in reply to: How is Parkinsons stigmatized?

    I can see this one coming a mile away when my voice is “park’d”. The stranger I am conversing with hears my voice and immediately drops into the dialect they use for dealing with mentally disabled persons. Every syllable is broken apart and spoken very slowly as they nod their head in agreement to whatever they think you are saying. From here on out, there is nothing you can say to get them out of that mode. You’re probably best off finding someone else to deal with.

  • SteveNaive

    Member
    March 5, 2020 at 1:35 am in reply to: The worst advice?

    The worst advice I get all the time is something like David mentioned: “You have Parkinson’s? You’ve got to try this supplement!” Like, they are certain that their FDA-unapproved snake oil with zero science and research behind it will stop Parkinson’s dead in its tracks. Thanks but no thanks. Life is too short to spend my time disproving your baseless claims.

  • SteveNaive

    Member
    February 14, 2020 at 11:11 am in reply to: Dysphasia-swallowing disorder

    @Tina

    After you’ve given up Sugar Babies and Milk Dues, what’s the point in going to see a movie? And popcorn gives me almost as much grief. Perhaps the most insidious offender is that innocent looking lifesaver breath mint. Oh, how many times have you pleaded with me for one more chance. then, ambushed me into what looked and sounded like corona virus on top of emphysema.

  • SteveNaive

    Member
    February 13, 2020 at 12:23 pm in reply to: Dysphasia-swallowing disorder

    Thanks for the info on xylitol. I have a similar problem your husband has, but I have been using Listerine for the germ-killing component of the treatment. I have had good luck of with the exercises the speech pathologist gave me. Being essentially a lazy person, I did some experimentation and found that I could distill the original exercises I received from her down to three or four minutes of exercise which were enough (for my body) to stop the problem. I Also find that I need to avoid Certain sweets – caramels or really any candies that you suck on which seem to generate saliva. So that is probably the cheapest control of any PD symptom I know of.