Skip Shaputnic

Good discussion. I’m fortunate to receive care through a Center of Excellence at the University of CA San Diego Health, which is close to where I live, and see my movement disorder neuro every 7 months or so. It’s worked out well, especially when she tells me towards the end of our appts that I’m doing really well and that progression remains…[Read more]

Beth and others who need funding assistance for Rytary (like myself),

There are patient financial assistance programs out there that are funded by donations. Take a look at this resource from the Davis Phinney foundation https://davisphinneyfoundation.org/reduce-cost-parkinsons-medications/ Scroll down to “Patient Assistance for Specific Drugs”…[Read more]

Likewise, for many years before my diagnosis I would occasionally have strong bodily jerks involving legs or arms when drifting off to sleep–like a final surge of electrical release that my body needed in order to settle down or something. Then I could regroup and get to sleep without further incidence. These episodes would happen only every few…[Read more]

Good topic that has resonated with several forum participants, including me. Thanks to all for chiming in.

I have had a few bouts of acting-out while dreaming as well after being diagnosed with PD, including one vivid dream involving vigorous leg kicking to ward off a pack of dogs that were trying to attack me.  At the beginning of 2020 I…[Read more]

Will the Instagram Live content be available for viewing after the live event?

With mounting evidence of the exposure to harmful chemicals that are ubiquitous in our environment and the risk of developing neurological disorders later in life, there is little doubt to me that a strong connection exists. Please see my post of Monday “New Forum topic—Toxins’ Insidious Effects on the Brain” https://parkinsonsnewstoday.com/forums/…[Read more]

Here’s the skinny on the CBD oral emulsion that I’ve been using–it’s called Randy’s Remedy and is available at Randy’s Club https://randysclub.com/pages/randysremedy Scroll down to Randy’s Remedy Daily. Products can be purchased one-time or ongoing by subscription (with a discount). It’s basically a family business run by long-time friends who a…[Read more]

Jean,

I’m happy to respond, but to answer your question about where I obtain my CBD I’d need to supply product information, which might violate posting terms b/c it could be interpreted as an advertisement. Would it be better to send you a private message with product particulars or do you think it’s OK to post it publicly on the forum?

In gener…[Read more]

Hi Ally,

Thanks for posting this. I also read with interest another related Parkinson’s News Today article “The Science Behind Mannitol: How a Simple Sweetener May Help Parkinson’s Patients” https://parkinsonsnewstoday.com/2020/07/29/the-science-behind-mannitol-how-a-simple-sweetener-may-help-parkinsons-patients/ Only had time to mention this…[Read more]

Hi Ann Marie,

Although I like to theorize that lifelong commitment to exercise may delay disease onset, in my case until my early 60s, it may be more of a hunch than reality. But, since exercise is beneficial (read: vital) for PD it makes sense. If you have to deal with PD at least developing it later in life is much better than earlier onset.…[Read more]

I’d like to think I’m still a bit of an athlete, or at least a committed exercise fiend, though I don’t quite have the ‘go for it’ attitude that I once did when younger. My primary care physician delights in reviewing the results of my annual physical exams as the numbers remain very good, so I’ve at least got that going for me.

Going on 8 years…[Read more]

Good news. Some more insight into Summit for Stem Cell PD therapy. Yesterday’s San Diego Union-Tribune featured this timely article “Aspen Neuroscience gets funding to pursue personalized cell therapy for Parkinson’s…[Read more]

Good observations. An important aspect of this therapy is that no stem cells are injected into patients. Instead, stem cells are a step in the pathway to obtain dopamine-producing neurons. These neurons are then transplanted into the patient.  My understanding is these neurons are injected into the brain. Per Summit’s literature, the new dopamine…[Read more]

Thanks for the relevant stem cell article links, Jean.

A scientific stem cell therapy trial is being carried out utilizing autologous  (meaning cells obtained from the same individual) dopamine neuron replacement therapy at Aspen Neurosciene, Inc. labs of Summit for Stem Cell https://www.summitforstemcell.org in La Jolla, CA

Their approach…[Read more]