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    • #19277
      Russell Dean Boyer
      Participant

      I have had similar but milder symptoms at times. It is hard to describe what I am feeling but you did a good job of putting it in words. In my case it is usually confined to the arms and I find myself kneading them, moving them, wanting to do just about anything to stop that sensation. I have even tried sticking them with a pin as a counterirritant but the problem is the pin pain doesn’t last. This almost always happens at night, as does RLS. Sleepiness seems to trigger it but that is only an impression, I haven’t tracked it closely.

      In my case I have had strong side effects from amantadine and can’t take that but luckily pramipexole does the job; I just have to increase the dose.

       

       

    • #18745
      Russell Dean Boyer
      Participant

      Personally I want to go to Nombei, an Izakaya here in Honolulu.  Their food is quite authentic for a place outside Japan. Then there is Arancino in the Kahala Hotel, Nobu, Rigo…..the list goes on and on.

       

      Russ

    • #18685
      Russell Dean Boyer
      Participant

      I can’t wait to get out to restaurants, etc.  I am 81 and have PD, so what do I have to lose? At most I have a few more years of being able to go out and travel and enjoy life. Hiding at home is not much of a life so it is now or never. If I lose the gamble, so be it.

      If I were younger the equation might be different and I  don’t judge those who feel differently.

       

       

       

    • #18269
      Russell Dean Boyer
      Participant

      You don’t describe where the pain is but if it starts in the back and goes away as the day goes on, it might be the piriformis muscle. Google that for a description.

       

       

    • #17928
      Russell Dean Boyer
      Participant

      Actually I thought I saw a few flashes at first; I had forgotten about that. In my case, they didn’t persist. But, as I said, we all react differently. I formerly worked in the pharma field.

      I wish there were generics from more reliable suppliers. You should read up on why Ranbaxy was fined $500 million by the FDA. (That is not a typo, it is a half a billion dollars. And I thought that was letting them off lightly.)  I have many Indian friends but when I worked in the pharma industry I had uniformly bad experiences with ingredients and manufacturing equipment from India. However, in fairness, Dr. Reddy was not one that I worked with.

      To make it harder to identify the generic manufacturers as of Indian origin they use names that sound American or Scottish, etc. But you can check the board of directors and find they are all Indian.

      My rant for the day. I love their food and know many exceptional people from India but I wish I didn’t have to use their generics.

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