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    • #20449
      Roy
      Participant

      My husband often has a freezing episode when he is standing in front of the toilet trying to back up and turn to exit the bathroom. He makes sure that he is standing upright, begins swaying side to side, then stepping left, then right, forward, then backward, until he is able to turn around and walk. It took many nights to find the combination of movements that worked to unfreeze his body.

    • #19951
      Roy
      Participant

      I have had nightmares similar to your dad’s for many years, way before I knew I had PD. Therefore, I do not believe they are caused by medication.

    • #19673
      Roy
      Participant

      Most of our adjustments have been an attempt to make life easier for me. We added a portable bidet and grab bars to the toilet in the master bedroom. If you have trouble with keeping your hiney clean due to limited mobility, the bidet is a Godsend. We had put in a low threshold shower with grab bars several years ago when my mother-in-law lived with us, so that wasn’t a problem. Our home was already elderly safe from her stay, so we left it pretty much the same.  To make it easier for me to get out of my living room chair, we purchased an electric chair that opens up completely so that I can sleep in it, if that is more comfortable. The last item we changed was a “Parkinson’s” mattress, a ThevoCalm, which we learned about on the site. The stairs up to our front door has railings on both sides. But, there aren’t any on the side door. We need to address that soon, as I have felt it is currently an unsafe stairway for me.

    • #19503
      Roy
      Participant

      I have had very vivid dreams for many years, even before my diagnosis of PD. What I have had in the past year is equally vivid, but I also don’t recognize my own home. For example, last night I dreamt that a bald man had set my legs on fire. I jumped out of bed when normally I need my wife’s assistance to get out of bed safely. But, in the throes of the dream, I moved without problem. Once up, I started looking for a bathroom. I even walked through the door to my master bathroom, but didn’t see it as my bathroom. Once my wife walked me to the bathroom and turned on a light, I knew where I was. She did have to have me examine my legs for lack of burns before I would believe that  the bald man scenario was not real. So, is that a vivid dream, a hallucination, or too much medicine? I don’t know, but it is scary for both my wife and me.

    • #19413
      Roy
      Participant

      I believe that exposure to chemicals has caused me to develop PD. I worked on a Navy ship in dry cleaning during the Vietnam War. After that, I worked in a wastewater treatment plant, a R&D lab for insecticides, worked at and then had a lawn service that included insecticide/herbicide  spraying, and worked for about 20 years in the Inside Garden departments at 2 large Home Improvement stores. I was tested for heavy metals and other toxins when going through my diagnostic period by a super neurologist at the VA. She was sure after seeing the results that chemical exposure was the cause. I know of no one in my family tree that had PD. I pray it isn’t genetic, because I don’t want my kids to have PD.

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