Parkinson's News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Ron B

Home Members Ron B
show less show more
Profile picture of Ron B

@ronb

  • Activity
  • Profile
  • Friends 5
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Ron B

    Ron B replied to the topic Long term Levodopa use in the forum Parkinson's Disease Medications 4 months, 2 weeks ago

    Hi Mike, You went 5+ years without meds?  Did you take any other supplements? Do you have tremor in both hands/arms?

  • Profile picture of Ron B

    Ron B replied to the topic Long term Levodopa use in the forum Parkinson's Disease Medications 4 months, 2 weeks ago

    I requested a nuerotransmitter test which oddly showed my Dopamine and Seratonin levels are normal, however my Dopac is highly elevated.  Dopac is a dopamine metabolite which indicates an inhibition of dopamine beta hydroxylase.  I am guessing this happens in early PD.  I used to work for an aerospace company where we used the chemical Tr…[Read more]

  • Profile picture of Ron B

    Ron B replied to the topic Long term Levodopa use in the forum Parkinson's Disease Medications 4 months, 2 weeks ago

    That’s really good to know … thank you.  I will keep DBS in mind for future reference.  Did you have to pay for the surgery, or do you live in a country with a national health plan?

  • Profile picture of Ron B

    Ron B replied to the topic Long term Levodopa use in the forum Parkinson's Disease Medications 4 months, 2 weeks ago

    Thank you John.  It’s good to hear about your long term success with C/L.  Are you taking any amino acids to compensate for the Levodopa induced depletion of Tyrosine and Cysteine?  Is there anything else that has contributed to your success?

     

  • Profile picture of Ron B

    Ron B replied to the topic Long term Levodopa use in the forum Parkinson's Disease Medications 4 months, 2 weeks ago

    I’ll be 56 in a month.  So far, my main symptom is left hand and forearm tremor.  Although I am  also getting numbness in my left foot lately.  I have weird twitches throughout my body, which are worse at night.  My neurologist suggested I not go on Levodopa yet since my symptoms are relatively mild.  In the meantime, I have been doing bi-we…[Read more]

  • Profile picture of Ron B

    Ron B replied to the topic Naturopathic Treatment of PD in the forum Parkinson's Disease alternative treatments 9 months, 1 week ago

    Thank you Janet.  Happy to hear you are managing PD well without traditional meds.  I am assuming you have a mild case?  I haven’t heard of the Patricia Kane protocol, but I have heard of Dr. Constantini’s B1 protocol.

    My main symptom is left arm, hand & finger tremor.  I am walking normally but my left leg feels just slightly heavier, and I don…[Read more]

  • Profile picture of Ron B

    Ron B replied to the topic Naturopathic Treatment of PD in the forum Parkinson's Disease alternative treatments 9 months, 2 weeks ago

    Thank you Marlo

  • Profile picture of WTW

    WTW and Profile picture of Ron BRon B are now friends 10 months, 1 week ago

  • Profile picture of Ron B

    Ron B and Profile picture of Glenn M.Glenn M. are now friends 10 months, 1 week ago

  • Profile picture of Ron B

    Ron B replied to the topic Should I start Levodopa right away? in the forum Parkinson's Disease Medications 10 months, 1 week ago

    Thanks for the insight Glenn.

    So your symptoms have gone from a 1 to a 3 in three years, without C/L?  Did your Neurologist accept your decision to postpone the medication?

    Do you have a resting tremor at all?  Currently I have a mild tremor in my left hand, fingers and forearm that come and go throughout the day, so I would give it a ‘…[Read more]

  • Profile picture of Ron B

    Ron B and Profile picture of LANCE BLANCE B are now friends 10 months, 1 week ago

  • Profile picture of Bruce Van Camp

    Bruce Van Camp and Profile picture of Ron BRon B are now friends 10 months, 1 week ago

  • Profile picture of Ron B

    Ron B replied to the topic Naturopathic Treatment of PD in the forum Parkinson's Disease alternative treatments 10 months, 1 week ago

    Thanks Bruce.  Have you had any luck with the Naturopathic doctor?

    What supplements did she recommend?

  • Profile picture of Ron B

    Ron B replied to the topic Should I start Levodopa right away? in the forum Parkinson's Disease Medications 10 months, 1 week ago

    Thanks wobblygirl.  Can I ask how old you are?  Do you have any ‘off’ times?

  • Profile picture of Ron B

    Ron B and Profile picture of KrukarKrukar are now friends 10 months, 2 weeks ago

  • Profile picture of Ron B

    Ron B replied to the topic Should I start Levodopa right away? in the forum Parkinson's Disease Medications 10 months, 2 weeks ago

    Thank you Rob!

  • Profile picture of Ron B

    Ron B started the topic Naturopathic Treatment of PD in the forum Parkinson's Disease alternative treatments 10 months, 2 weeks ago

    Has anyone had any benefit from Naturopathic supplements?  Are there any supplements that are safe to use along with C/L?  Are there any supplements that prolong the use of Levodopa?

    Thank you

  • Profile picture of Ron B

    Ron B's profile was updated 10 months, 2 weeks ago

  • Profile picture of Ron B

    Ron B started the topic Long term Levodopa use in the forum Parkinson's Disease Medications 10 months, 2 weeks ago

    Hello,  Has anyone taken Levodopa for long term use of 10 to 15 years or more?

    I have read conflicting reports on long term use of C/L, so I am looking for insight into the wearing off phase.  What happens if Levodopa is no longer effective for you?

    I am 55 years old so I am concerned about starting C/L too early.

     

  • Profile picture of Ron B

    Ron B replied to the topic Should I start Levodopa right away? in the forum Parkinson's Disease Medications 10 months, 2 weeks ago

    Thanks John.  I appreciate the advice.  When you started the Levodopa, did you feel ‘normal’ again, without tremors or stiffness?

    How old were you when you got diagnosed?  Do you exercise much?

  • Load More
Profile Photo RDB

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • DBS surgery forum by Elie Itr
  • How do you manage to stay optimistic? by Mary Beth Skylis
  • Parkinson Denial by Jean
  • Have you always been an introvert? by Mary Beth Skylis
  • Electroacupuncture by Jon Busch

Recent Replies

  • Do you struggle with sleep disturbances?
  • Do you struggle with sleep disturbances?
  • Do you struggle with sleep disturbances?
  • Do you struggle with sleep disturbances?
  • Do you struggle with sleep disturbances?

Members

Newest | Active | Popular
  • Profile picture of Stuart Maxwell
    Stuart Maxwell
    Active 4 hours, 30 minutes ago
  • Profile picture of Rosie
    Rosie
    Active 12 hours, 19 minutes ago
  • Profile picture of Patrick Kelly
    Patrick Kelly
    Active 13 hours, 48 minutes ago
  • Profile picture of Charles A Wiley
    Charles A Wiley
    Active 14 hours, 42 minutes ago
  • Profile picture of Robert Morgenstern
    Robert Morgenstern
    Active 17 hours, 53 minutes ago

Forums

  • 30 Days of Parkinson’s
  • Coronavirus (COVID-19) and Parkinson’s
  • A​ ​Forum​ ​for​ ​Parkinson’s Disease ​Caregivers​
  • Flash Briefings and Podcasts
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Living ​With​ ​Parkinson’s Disease
  • Parkinson’s Disease Symptoms
  • Parkinson’s Disease alternative treatments
  • Parkinson’s Research News
  • Parkinson’s Disease Medications
  • Parkinson’s Disease and exercise
  • Parkinson’s Disease Awareness and Advocacy
  • Using our forums
  • Most popular topics
  • Topics with no replies

Parkinson’s News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer:

Parkinson’s News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©2023 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?

Forgot your details?

I remember my details

Create Account