Ron B

Hi Mike, You went 5+ years without meds?  Did you take any other supplements? Do you have tremor in both hands/arms?

I requested a nuerotransmitter test which oddly showed my Dopamine and Seratonin levels are normal, however my Dopac is highly elevated.  Dopac is a dopamine metabolite which indicates an inhibition of dopamine beta hydroxylase.  I am guessing this happens in early PD.  I used to work for an aerospace company where we used the chemical Tr…[Read more]

That’s really good to know … thank you.  I will keep DBS in mind for future reference.  Did you have to pay for the surgery, or do you live in a country with a national health plan?

Thank you John.  It’s good to hear about your long term success with C/L.  Are you taking any amino acids to compensate for the Levodopa induced depletion of Tyrosine and Cysteine?  Is there anything else that has contributed to your success?

I’ll be 56 in a month.  So far, my main symptom is left hand and forearm tremor.  Although I am  also getting numbness in my left foot lately.  I have weird twitches throughout my body, which are worse at night.  My neurologist suggested I not go on Levodopa yet since my symptoms are relatively mild.  In the meantime, I have been doing bi-we…[Read more]

Thank you Janet.  Happy to hear you are managing PD well without traditional meds.  I am assuming you have a mild case?  I haven’t heard of the Patricia Kane protocol, but I have heard of Dr. Constantini’s B1 protocol.

My main symptom is left arm, hand & finger tremor.  I am walking normally but my left leg feels just slightly heavier, and I don…[Read more]

Thank you Marlo

Thanks for the insight Glenn.

So your symptoms have gone from a 1 to a 3 in three years, without C/L?  Did your Neurologist accept your decision to postpone the medication?

Do you have a resting tremor at all?  Currently I have a mild tremor in my left hand, fingers and forearm that come and go throughout the day, so I would give it a ‘…[Read more]

Thanks Bruce.  Have you had any luck with the Naturopathic doctor?

What supplements did she recommend?

Thanks wobblygirl.  Can I ask how old you are?  Do you have any ‘off’ times?

Thank you Rob!

Thanks John.  I appreciate the advice.  When you started the Levodopa, did you feel ‘normal’ again, without tremors or stiffness?

How old were you when you got diagnosed?  Do you exercise much?