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Ron B replied to the topic Long term Levodopa use in the forum Parkinson's Disease Medications 4 months, 2 weeks ago
Hi Mike, You went 5+ years without meds? Did you take any other supplements? Do you have tremor in both hands/arms?
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Ron B replied to the topic Long term Levodopa use in the forum Parkinson's Disease Medications 4 months, 2 weeks ago
I requested a nuerotransmitter test which oddly showed my Dopamine and Seratonin levels are normal, however my Dopac is highly elevated. Dopac is a dopamine metabolite which indicates an inhibition of dopamine beta hydroxylase. I am guessing this happens in early PD. I used to work for an aerospace company where we used the chemical Tr…[Read more]
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Ron B replied to the topic Long term Levodopa use in the forum Parkinson's Disease Medications 4 months, 2 weeks ago
That’s really good to know … thank you. I will keep DBS in mind for future reference. Did you have to pay for the surgery, or do you live in a country with a national health plan?
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Ron B replied to the topic Long term Levodopa use in the forum Parkinson's Disease Medications 4 months, 2 weeks ago
Thank you John. It’s good to hear about your long term success with C/L. Are you taking any amino acids to compensate for the Levodopa induced depletion of Tyrosine and Cysteine? Is there anything else that has contributed to your success?
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Ron B replied to the topic Long term Levodopa use in the forum Parkinson's Disease Medications 4 months, 2 weeks ago
I’ll be 56 in a month. So far, my main symptom is left hand and forearm tremor. Although I am also getting numbness in my left foot lately. I have weird twitches throughout my body, which are worse at night. My neurologist suggested I not go on Levodopa yet since my symptoms are relatively mild. In the meantime, I have been doing bi-we…[Read more]
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Ron B replied to the topic Naturopathic Treatment of PD in the forum Parkinson's Disease alternative treatments 9 months, 1 week ago
Thank you Janet. Happy to hear you are managing PD well without traditional meds. I am assuming you have a mild case? I haven’t heard of the Patricia Kane protocol, but I have heard of Dr. Constantini’s B1 protocol.
My main symptom is left arm, hand & finger tremor. I am walking normally but my left leg feels just slightly heavier, and I don…[Read more]
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Ron B replied to the topic Naturopathic Treatment of PD in the forum Parkinson's Disease alternative treatments 9 months, 2 weeks ago
Thank you Marlo
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WTW and
Ron B are now friends 10 months, 1 week ago
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Ron B and
Glenn M. are now friends 10 months, 1 week ago
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Ron B replied to the topic Should I start Levodopa right away? in the forum Parkinson's Disease Medications 10 months, 1 week ago
Thanks for the insight Glenn.
So your symptoms have gone from a 1 to a 3 in three years, without C/L? Did your Neurologist accept your decision to postpone the medication?
Do you have a resting tremor at all? Currently I have a mild tremor in my left hand, fingers and forearm that come and go throughout the day, so I would give it a ‘…[Read more]
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Ron B and
LANCE B are now friends 10 months, 1 week ago
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Bruce Van Camp and
Ron B are now friends 10 months, 1 week ago
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Ron B replied to the topic Naturopathic Treatment of PD in the forum Parkinson's Disease alternative treatments 10 months, 1 week ago
Thanks Bruce. Have you had any luck with the Naturopathic doctor?
What supplements did she recommend?
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Ron B replied to the topic Should I start Levodopa right away? in the forum Parkinson's Disease Medications 10 months, 1 week ago
Thanks wobblygirl. Can I ask how old you are? Do you have any ‘off’ times?
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Ron B and
Krukar are now friends 10 months, 2 weeks ago
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Ron B replied to the topic Should I start Levodopa right away? in the forum Parkinson's Disease Medications 10 months, 2 weeks ago
Thank you Rob!
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Ron B started the topic Naturopathic Treatment of PD in the forum Parkinson's Disease alternative treatments 10 months, 2 weeks ago
Has anyone had any benefit from Naturopathic supplements? Are there any supplements that are safe to use along with C/L? Are there any supplements that prolong the use of Levodopa?
Thank you
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Ron B's profile was updated 10 months, 2 weeks ago
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Ron B started the topic Long term Levodopa use in the forum Parkinson's Disease Medications 10 months, 2 weeks ago
Hello, Has anyone taken Levodopa for long term use of 10 to 15 years or more?
I have read conflicting reports on long term use of C/L, so I am looking for insight into the wearing off phase. What happens if Levodopa is no longer effective for you?
I am 55 years old so I am concerned about starting C/L too early.
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Ron B replied to the topic Should I start Levodopa right away? in the forum Parkinson's Disease Medications 10 months, 2 weeks ago
Thanks John. I appreciate the advice. When you started the Levodopa, did you feel ‘normal’ again, without tremors or stiffness?
How old were you when you got diagnosed? Do you exercise much?
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