Rob

I have been looking for commonalities, patterns and connections. So far, I have to say that toxic pollutants  that are metallic in composition play a role, There are many threads that address the autoimmune network, and occupations and workplace safety plays a role.  Does anybody know: Is there a giant box stashed away in a far distant land, w…[Read more]

I see that some people have TWO sets of symptoms. Is it possible to have two illnesses?

I was diagnosed in 2005 with Parkinsons. I had a slight vibration in the right arm, had trouble with writing and typing. Everything else seemed mostly okay. Most of the clinical tests supported the diagnosis, and I have accepted it as my issue.

But…. …[Read more]

There are so many these days, but my fave has to remain Michael J Fox. I admire his courage for remaining in the limelight, so that the cause remains there also. We all owe him a debt of gratitude for the work he has done for all of us.

I have been hoping that one day, our paths may cross. We are of the same demographic, and share an interest in…[Read more]

I believe that the issue with toner, is it’s state of matter. It appears to be a messy liquid, but in fact it it more resembles ultra fine dust. It hangs in the air for extended periods of time and creates a host of respiratory illnesses.  Once in the lungs, it then works its way through various organs,  the brain, and the central nervous s…[Read more]

I must admit, I have given up on this one. On a good night, I probably sleep about 5 or 6 hours.  More commonly, two sets of 2 or 3 hours seems to be the pattern. Some things I have tried

– meds:  I didn’t like how I felt when awake, so I discontinued.

– daily exercise: as much as possible

– diet: avoid caffine and sugar

– avoid media late i…[Read more]

I recall taking quizz in a magazine about introverts. One of the questions asked “Do you like your dog better than most people?” After a moment of laughter, I pawsed (sp?) and answered YES, I do. Having a dog is what gets me up in the morning, a) because of the joy she brings, and b) because of her aging canine bladder.

Over the past 30 years, we…[Read more]

Greetings All,

I have a few seemingly random points that I would like to contribute, if I may:

– Of all of the people I have met or corresponded with, who would place themselves in the Young Onset group, None were aware of any relatives who had PD.

– My first full-time job involved spraying herbicides, painting, welding etc. Each day at 4:30, I…[Read more]

The greatest challenge with all of this, is finding the relationship between cause and effect. Some of the things we do to ourselves may not reveal consequences for decades. As armchair scientists, we can speculate what possibilities (or combinations of) might be at work.

When I worked for the park spraying gallons of chemicals, I booked off work…[Read more]

What i have found is that the pump is relatively low tech, which has its pros and cons:

Pros

– easy to operate, intuative, robust, sturdy, easy to change batteries. Has no connection to iphone

Cons

– heavy to carry all day, small hose kinks right at port of entry, often without tripping alarm. It appears that a small piece of hose is…[Read more]

Hello Firefighters,

I am glad I stumbled across this, because it is not something that I have given a lot of thought to. I am not a firefighter, but I actually have 2 connections to this situation:

– I completed most of my degree in Environmental Studies, where we discussed at length, the relationship between toxic chemicals and neurological…[Read more]

I should add that the benefits far out weight any discomfort you might have. Today was a a sunny, dry, near-perfect day. As I type this at 12:16 AM, I am still awaiting a freeze up. heavy, but worth its weight in gold.

Other than offering a patients perspective, I hesitate to comment with confidence and certainty. But…. With that said, I too had a freezing gait. I still hesitate sometimes on the first step, and on occasions I get tired and slow on my feet. But overall, gait and other functions have improved considerably.

The last few days, we have had some…[Read more]