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Rick M replied to the topic Have you read about Neuralink? in the forum Parkinson’s Research News 6 months, 3 weeks ago
Yes, I’veYes, I’ve read about it. There’s some great YouTube videos posted.
It has promise for PD but PD is not their initial focus and they are years away from FDA approval on anything.
Maybe a push from MJF foundation might help them focus more on PD?
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Rick M replied to the topic Do you have multiple illnesses? in the forum Diagnosis Information and General Questions 1 year, 2 months ago
I won the lottery.
I was diagnosed with PD in 2017.
After the last two years wrestling with Idiopathic Neutropenia (low neutrophils with unknown cause) I was six months ago diagnosed with MDS which is a form of bone marrow cancer.
Two months ago was diagnosed with breast cancer which is unrelated to my other cancer.Presently in chemo for MDS…[Read more]
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Rick M replied to the topic How does the heat affect you? in the forum Parkinson's Disease and exercise 1 year, 5 months ago
I live in Phoenix, Az and as my PD progresses it seems that I get more and more fatigued by the heat. I get tired just walking outside and it’s getting worse.
I have air conditioning and I go inside to cool off. (or jump in the pool)
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Rick M replied to the topic Do you cook certain meals for your Parkinsons patient? in the forum A Forum for Parkinson's Disease Caregivers 2 years, 3 months ago
No but always have lots of liquids available to help with swallowing. The a bite, have a drink….
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Rick M replied to the topic Did you experience tinnitus before being diagnosed with PD? in the forum Parkinson's Disease Symptoms 2 years, 5 months ago
Yes, I was experiencing tinnitus before being diagnosed with PD.
Lost my sense of smell first. Ears started feeling plugged and then after several years the ringing started.
Was diagnosed with Meniere’s disease at one point. Then was diagnosed with hearing loss which they said caused the tinnitus.
Was diagnosed with Parkinson’s several y…[Read more]
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Rick M replied to the topic Medical cannabis, have you tried it? in the forum Parkinson's Disease alternative treatments 2 years, 10 months ago
Hi Andrew,
So you feel that the benzodiazepines makes you more groggy the next day than vaping THC at 2 A.M.?
My biggest concern with THC is grogginess/being spacy the next day
Thanks
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Rick M replied to the topic Medical cannabis, have you tried it? in the forum Parkinson's Disease alternative treatments 2 years, 11 months ago
My major challenges are chronic fatigue and restless sleep; sometimes waking up in the middle of the night and waking up early in the morning and not being able to go back to sleep.
My experience with recreational use of marijuana when I was younger was fatigue and foggy head the next day so I would be reticent to start using for sleep as I fear…[Read more]
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Rick M replied to the topic Are you deficient in Vitamin B12? in the forum Parkinson's Disease Symptoms 3 years, 1 month ago
I was diagnosed with PD in 5/2017. No B12 testing was done. But later was found to be 207 which is below the low range of 232.
As part of a normal physical in 7/2018 my blood tests showed low white blood cell count and low neutrophils. ANC 1.05, WBC 2.5. Went to a hematologist who did a B12 test and B12 was very low: 207.
Over the fo…[Read more]
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Rick M started the topic Is anyone experiencing feet numbness or pain. in the forum Parkinson's Disease Symptoms 3 years, 1 month ago
I was diagnosed with Parkinson’s in 2017.
In addition to the normal PD symptoms, the balls of my feet have been getting increasingly numb over the years. I first noticed it years ago getting into my hot tub.
Recently, I sometimes feel a burning sensation on the bottom of my right foot. Recently, my right foot is also starting to hurt when I…[Read more]
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Rick M became a registered member 3 years, 3 months ago
hi rick
Welcome to the forum! I am one of the moderators, diagnosed in 2015 at age 61. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic: