Forum Replies Created

  • Grammie

    Member
    March 7, 2024 at 6:07 pm in reply to: Duodoa pump

    My husband has been struggling with dyskinesia as well. Some days it just takes him out for hours. We have just started Rytary. So far it’s been better but not 100 percent, which is fine. I was curious if you ever tried Rytary?

  • Grammie

    Member
    May 16, 2023 at 3:58 pm in reply to: Who are you in relation to your person with Parkinson’s?

    My 65 year old husband has Parkinson’s. He’s had it for about 10 years. Didn’t realize it the first year because he was someone who started with the restless legs and then progressed to vivid dreams. Shortly after diagnosis was Parkinson’s. He was an active surfer, tennis player, golfer etc.   First in his family to have experience with Parkinson’s.

  • Hello Omer,

    My husband is 63 with Parkinson’s for 9 years now. His neurologist did give him a small amount of lexia pro for apathy / depression.  It definitely helps. He too is tired but he’s also battling some other serious health issues that can lead to tiredness too. He was a very active man ; surfer/ tennis player so yes he was depressed once his tremors/ slow moving body made these two sports unplayable anymore. Yes, have your father do some sort of physical exercise daily. It truly helps the Parkinson’s systems. Also our neurologist said to try melatonin at night for sleep help. It too seems to be helping. He suffers from vivid dreams at night. Natural and please don’t be afraid of carbidopa/levadopa.  My husband has developed some dyskinesia but the amantadine seems to be helping. Best wishes to you and your dad.

  • Grammie

    Member
    August 16, 2022 at 3:40 pm in reply to: Which symptom is most challenging to navigate?

    For my husband it’s been dyskinesia. It hits after each dose and even with amantadine it will persist. We are now looking at possibly adding an amantadine. Can make his walking difficult and even dangerous because his leg throws out so far. Have the people with voice issues tried the Parkinson’s Voice project? It can be helpful.

  • Grammie

    Member
    November 6, 2023 at 2:37 pm in reply to: Have you tried CBD oil?

    MY I ask where you purchased your CBD tincture from? My husband has tremors that are stressed induced as well that become very difficult when he’s is stressed or anxious. I’d like him to try it out. Thanks you.

  • Grammie

    Member
    October 18, 2022 at 5:15 pm in reply to: Which symptom is most challenging to navigate?

    Have you tried Botox?  It can help.