Forum Replies Created

  • nadine-eidman

    Member
    March 31, 2022 at 8:33 pm in reply to: Should I start Levodopa right away?

    My husband was diagnosed almost 3 years ago at the age of 65 and remains on Rasagiline. His symptoms are still relatively minor. He has been a dedicated gym rat for years which I think have helped him keep this in early stages. The Dr. Has offered him to go in C/L, but truly, besides stiffness a foot that drags some and a minor tremor on one side that is moving slightly to the other, it hasn’t affected quality of life, as of now. Every drug has side effects and they can be scary. We look at the cost/benefit and decided to remain the course until such time it really impacts his life. He needs help with buttons sometimes. He is enrolled in 2 PT programs that have been exceptional. BIG and LOUD. We’re in Houston and TIRR offers them. Life skills in order to help you with Occupational Therapy, voice and movement as the disease progresses. I encourage you all to look into such programs. At the end of the day, EveryBODY is indeed different.

  • nadine-eidman

    Member
    June 29, 2021 at 4:10 pm in reply to: Mannitol, a sugar, has given me back my life!

    I am thrilled to hear about your experiences. Thank you for this forum and to those who are willing to share. Will give mannitol a try and be patient with it. Seems if it works, it takes a few months.

  • nadine-eidman

    Member
    June 24, 2021 at 2:06 pm in reply to: Mannitol, a sugar, has given me back my life!

    Would love more information on brand, frequency, dosage along with side effects. Thank you.

  • nadine-eidman

    Member
    October 15, 2020 at 2:42 pm in reply to: Where in the world are you?

    We live in Houston, TX. My husband has early stages and still just on rasagiline. Not sure it’s helping. Thank you for this forum. It is an enormous resource and gift to benefit from one another’s experiences.

  • nadine-eidman

    Member
    October 27, 2019 at 1:19 pm in reply to: Are you taking any vitamin supplements to help your symptoms?

    Hello everyone. I/we are new to all of this. My husband (66) was diagnosed with early stage PD 2 months ago. Have been meeting with neurologists, naturopath, reading and researching. A couple of supplements that seem to come up a lot are: probiotics, calcium, magnesium, D3, K2, DHEA, A, B complex and GLUTATHIONE (pill form). Certainly, quality products are vital. The last one appears in recent literature. https://www.michaeljfox.org/news/ask-md-glutathione-and-parkinsons To my knowledge, none of these have any negative side effects. Has anyone tried these, especially the glutathione or is on a trial? Thank you so much.

  • nadine-eidman

    Member
    June 29, 2021 at 3:55 pm in reply to: Mannitol, a sugar, has given me back my life!

    Thank you. I wonder if the brand matters. Hoping this will help my husband.