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Mary Klein / John Klein replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis Information and General Questions 4 months ago
My husband was diagnosed two years ago with PD. He spent 35 years as a professional firefighter and, during this time, was involved in several major fires including industrial blazes. When he first got on the department the equipment was inferior to what is being used today. The stats show that firefighters are diagnosed with PD at a rate 10…[Read more]
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rose and
Mary Klein / John Klein are now friends 6 months, 3 weeks ago
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Mary Klein / John Klein replied to the topic Firefighters with Parkinson's Disease in the forum Using our forums 8 months, 2 weeks ago
Hi Rob,
Nice to have your input! I think, as time goes by, more and more evidence will emerge as to the factors involved in some cases of Parkinson’s Disease. Our dear friend had PD for 14 years and passed away a year ago. Just recently as report was issued (it is posted on this site) with respect to exposure to diesel fuels being linked to PD…[Read more]
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I find it really fascinating to look for parallels too. My Dad is convinced that his journey with Parkinsons relates to the harmful weed killer “Round Up”. And the brand has an array of lawsuits against them for causing long-term physical effects.
Do you think we’re making advances in firefighting equipment to adequately handle toxic exposure?
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Mary Klein / John Klein replied to the topic Firefighters with Parkinson's Disease in the forum Using our forums 8 months, 2 weeks ago
Thanks Mike! You live in a beautiful area – been there a few times for Conventions.
Your input regarding your change in your exercising routine, upon the closure of gyms, and now a gradual return to your previous norm speaks volumes about the benefits of ‘activity’. The Rock Steady Boxing classes here have also been banished from the gym so Z…[Read more]
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Hey Mary and John,
I see a lot of parallels between your story and my Dad’s (diagnosed in 2013). Once he realized he had Parkinsons, he recognized a number of symptoms that were probably early indicators too. The main one was his loss of smell. Regarding medication, it’s interesting to hear how different people manage this process. I had the…[Read more]
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Mary Klein / John Klein replied to the topic Firefighters with Parkinson's Disease in the forum Using our forums 8 months, 2 weeks ago
Hi John,
I am getting back to you regarding your note above. It seems that your State has already begun the process of recognizing PD as being a job-related illness. Since I wrote my initial comments, I have been in touch with an Australian FF who is a similar situation to yourself – diagnosed and suffering with PD and still on the job in a d…[Read more]
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Mary Klein / John Klein started the topic Firefighters with Parkinson's Disease in the forum Using our forums 9 months ago
Hello everyone,
We are just wondering whether there are others on this site who are/were Firefighters. There are statistics indicating that Firefighters are approx 10 times more likely to develop PD than others not in the profession. There is currently much interest in having PD recognised as possibly being related to the job. For any…[Read more]
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Mary Klein / John Klein replied to the topic KAILO Pain system in the forum Using our forums 9 months ago
Hi Dale,
Just a question in general. My husband was diagnosed a year ago and continues to do well with his primary symptom being a left-handed tremour. He does experience some slowness but it is more just an inconvenience. We had a friend who had Parkinson’s for many years and the last three or four he suffered with back pain from muscle sp…[Read more]
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Mary Klein / John Klein replied to the topic Mental Health Check-in in the forum Coronavirus (COVID-19) and Parkinson’s 10 months, 1 week ago
We are hanging in there and breathing a sigh of relief that the weather is finally becoming much more pleasant here in Southern Ontario. There is nothing fun about going out for walks with a cold, biting wind howling at you! Having a large breed dog to walk definitely encourages us to be outdoors for daily walks. The whole neighbourhood is ou…[Read more]
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Mary Klein / John Klein replied to the topic Tips to Stay Fit During COVID-19 Isolation in the forum Coronavirus (COVID-19) and Parkinson’s 11 months ago
Our Rock Steady Fitness instructor has arranged at-home classes, through Zoom, three times a week for all participants. We probably had our first class today. It ran for the full hour at the same time we would generally be at the gym together. It was encouraging to see how many joined in – pretty much the entire class. Lots of waves and lau…[Read more]
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Mary Klein / John Klein replied to the topic Were you an athlete before diagnosis? in the forum Parkinson's Disease and exercise 11 months, 1 week ago
We, too, believe that one of the best therapies is exercise and keeping active. My hubby had his knee replaced last June – less than a month after his Parkinson’s diagnosis. This surgery turned out well – but there will always be certain limitations. After having joined Rock Steady Boxing in December, once the knee was healed, he has found it…[Read more]
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Mary Klein / John Klein replied to the topic Would you like to be featured for Parkinson's Awareness Month? in the forum A Forum for Parkinson's Disease Caregivers 11 months, 2 weeks ago
Our best friend struggled through being a full-time caregiver for her husband who had Parkinson’s for approx. 15 years. Most of those years they did well. The last 3 or 4 were far more challenging (also his age was advancing – he was 80 by then – but formerly very young for his age – in looks and actions). If I didn’t know otherwise, I would ha…[Read more]
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Mary Klein / John Klein replied to the topic What's Funny about Parkinson's Disease? in the forum Living With Parkinson's Disease 11 months, 2 weeks ago
All your posts have been a delight to read. Some great insights and ideas to ponder!!!
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Mary Klein / John Klein replied to the topic Faith in the forum Living With Parkinson's Disease 11 months, 3 weeks ago
My husband (who has PD) and I are optimists I would say. This disease is such that it is impossible to predict the course it will take. For this reason, we remain hopeful that his type of PD will hold its own for some time. We also keep the faith that newer and better treatment options will be on the market over time. We have just taken the…[Read more]
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Mary Klein / John Klein replied to the topic Back pain: anyone else suffer from this? in the forum Parkinson's Disease Symptoms 11 months, 3 weeks ago
Our friend who had back pain used a heating pad. He seemed to experience the pain when sitting for some time. So far, my husband does not have any. I believe it might be caused by muscle spasms. My husband is enrolled in Rock Steady Boxing 3x a week so is doing a fair bit of exercise, stretching and wonder if this is also benefiting him by kee…[Read more]
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Mary Klein / John Klein replied to the topic Did your tremor come on slowly or did it manifest itself fairly quickly? in the forum Parkinson's Disease Symptoms 1 year ago
My husband first noticed a left-handed tremor about two years ago. He was not formally diagnosed until close to a year ago. His tremor has increased slightly but still very sporadic. He joined Rock Steady Boxing which has been a great help physically and emotionally. Still not on any medication but follows/up with the Neurologist every six…[Read more]
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Mary Klein / John Klein replied to the topic Did your tremor come on slowly or did it manifest itself fairly quickly? in the forum Parkinson's Disease Symptoms 1 year ago
Hi Tina,
If you have the urge to write but typing is problematic, perhaps you could use one of the dictation aids – Dragon for instance. Then you could get your thoughts down quickly. This might be very helpful.
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Mary Klein / John Klein replied to the topic Was it difficult to find the right diagnosis? in the forum Diagnosis Information and General Questions 1 year ago
Try and find a Rock Steady Boxing group in your area – it is wonderful for the exercise component and also for the comraderie. We are finding that you have to be pro-active and do some of your own research -as long as our sources are credible.
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Mary Klein / John Klein replied to the topic Was it difficult to find the right diagnosis? in the forum Diagnosis Information and General Questions 1 year ago
We are somewhat surprised that Family Physicians don’t seem to be aware of some of the well-known symptoms associated with Parkinson’s (loss of smell, sleep disorders included) that can be powerful clues and that they seemingly aren’t trained to make an assessment based on gait etc. Your Neurologist and ours knew within a couple of minutes just…[Read more]
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Mary Klein / John Klein replied to the topic Was it difficult to find the right diagnosis? in the forum Diagnosis Information and General Questions 1 year ago
Hi Ally,
Yes, once we had a confirmation of the diagnosis, we could at least do some further research into what we could do on a personal level. One of the first things we discovered on-line was the recommendation to join a Rock Steady Boxing group. Fortunately for us, there is a group about a half an hour from us. This form of exercise has be…[Read more]
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Mary Klein / John Klein replied to the topic Was it difficult to find the right diagnosis? in the forum Diagnosis Information and General Questions 1 year ago
My hyusband was noticing left-hand tremors for a couple of months before he brought it up to our doctor. The doctor immediately said not to jump to any conclusions – that a tremor could have several causes. He told him to come back in a few months. My husband only lasted a couple more months before he went back to see him and asked for a re…[Read more]
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