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Forum Replies Created
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I HAVE RECENTLY become disappointed in my neurologist and have been dr shopping.
The bottom line is that I am now confused by my current evaluation. I have a serious problem with Freezing of gait and have had falling issues from the
Beginning of my symptoms approximately 5-6 years ago. The problem is whether or not
I have traditional parkinsons or multiple system atrophy (MSA). The treatment is the same, although I do not respond well to my ever increasing dosage of carba—
Dopa. In fact,I don’tfeel any noticeable difference in my condition regardless of my medical dosing. I do have most of the non-motor symptoms of Parkinson’s but have never had any tremors. I am fortunate in that regard but was wondering if anyone Here has been diagnosed with MSA?
I motived that the trials going on with Vaxxinity Ub-312 are lumping Parkinson’s and MSA together. I was initially told I might have PSP but quickly learned I didn’t have it.I presently have regular caregivers keeping me upright but am really looking forward to any new treatment for motor symptoms. I am getting tired
Of watching NETFLIX all day. -
Why have we not heard from Dan Montana. ? Consider he has been testing this treatment in Mexico for months.
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I have lived in Hidden Hills ca for the last 25 years. It’s a suburb of Los Angeles and is well known as the home of the Kardashians’. Before that I lived on carbon beach in Malibu. Both have been great except the drive to the city each day over the past 45 years has been a killer. I am now fully retired, at home, and waiting for a new medicine or breakthru in our disease,
I m disgusted with the fact that I take 15 tablets a day of a medicine that is 50 years old.
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I have lived in Hidden Hills ca for the last 25 years. It’s a suburb of Los Angeles and is well known as the home of the Kardashians’. Before that I lived on carbon beach in Malibu. Both have been great except the drive to the city each day over the past 45 years has been a killer. I am now fully retired, at home, and waiting for a new medicine or breakthru in our disease,
I m disgusted with the fact that I take 15 tablets a day of a medicine that is 50 years old.
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No. I haven’t tried the Balanced version.I have used mannitol for over a year and can’t say I’ve noticed a substantial change in any of my PD symptoms. I’ve had Parkinson’s for six or seven years and have experienced almost all of the symptoms other than dyskinesia or profound tremors. In the evenings when I get tired I experience tardive-type symptoms and my balance is much worse. My handwriting is toast and my voice is getting weaker. I’m 82 years old and have CHF. My mannitol dosage is very small involving 2 teaspoons in my morning coffee. Unfortunately I don’t drink coffee like I used to and don’t take my mannitol. Recently I used a spoonful in a protein shake. And based open the above comments, I think I’ll increase my dosage.
Ive been active my whole life and I’m 82 years of age. I check Parkinsons News daily as my main source of information and believe this year will be producing some more breakthrough treatments.
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I88uuuuu=-
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Any news from Mexico how the trial is going ?