laura seymour

I started losing my hair in a Christmas tree pattern about 2 years ago (before I was diagnosed, but certainly exhibited PD symptoms).  I was puzzled as no one in my family had this happen to them.  I tried Rogaine, which did not work for me and I found that when I stopped, the hair would fall out again.  I stopped immediately.  It’s been about 6 m…[Read more]

Good to read responses from people from Michigan (my former home)!  I have participated in all of the  online trials that were offered to me through Michael J. Fox’ s foundation as others replying have.  The 23 and Me only required saliva.  I had a blood test when I underwent a DAT test and agreed to donate that blood to research at OHSU in Por…[Read more]

I have only been diagnosed with PD for a few months.  I, too, experience that feeling of something between the base of my toes and the ball of my foot.  I thought that I had stepped on some tissue or tape, but there never was anything there.  I went to a podiatrist who determined (with xrays) that I have a neuroma which could be treated with sh…[Read more]

I’m an only child, so when my parents died, I really didn’t have anyone close to me except my husband.  My daughter and her family lived in Oregon, so we decided watching videos of our granddaughter, we’d like to be there to be part of her life.  Things fell into place rather easily, like it was meant to be.  I guess it was, because my daughter is…[Read more]

Thanks, Jean! I’ve got the general idea. You’re right about ignorance being bliss. This is probably all I need to know. I love the quote that you or Ally sent me about acceptance is not resignation. My new mantra!

I kind of do the “hospital roll” that I learned when I had my back surgery. I kind of prop myself up with my elbows until I get where I need to be. However, for at least 2 years I can’t lie on my right side – it’s too painful at the time and then after I get out of bed. Not fun!

I lost most of my sense of smell about 10 years ago, but I thought it was because I was taking zinc (to help avoid catching colds). Candles are harder to smell now, but I still can smell my lavender, thank goodness!

I go to bed quite late, but am able to sleep in most days. However, I have noticed that I feel sleepy again after I eat. I fight it, but it’s not easy. The same goes for my walk – I know I have to do it both for PD and my arthritis.

Hi Jean, it sure is! Is there an article I should read that will give me a general idea of what this disease may bring? I know everyone is different and that there is no time schedule for various symptoms to appear. But, I would just like to be informed as I start this new phase of my life. Thanks so much!
take care,
laura

Thanks, Ally! I really appreciate your help! I do have loads of questions, but right now I’m concerned about the pain I have been reading about. I know PD is different for everyone, but I just would like some idea of what might occur. If you can give me some general idea about the pain, I would really appreciate it! The only thing I know…[Read more]

I joined because I was told (1 week ago) that I have PD and I wanted to learn about it. I saw the list of forums in the Parkinson’s News. My husband is joining the care-givers forum. We both have a lot of questions about what’s in store for us.

I live in Silverton, Oregon and have done so for 12 years. Before that, I lived in Michigan (since birth) – Detroit, Dearborn.

I was given the diagnosis of PD a week ago today.  But, way before that, I noticed I had been drooling on my pillowcase at night.  I also thought I was not quite meeting all of my mouth when I’d take a drink, but now I think it was a form of drooling.  I have been reading a lot about PD and it’s mindblowing to see the many symptoms/problems I ha…[Read more]