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laura seymour replied to the topic Has your hair changed since the diagnosis? in the forum Parkinson's Disease Symptoms 3 years ago
I started losing my hair in a Christmas tree pattern about 2 years ago (before I was diagnosed, but certainly exhibited PD symptoms). I was puzzled as no one in my family had this happen to them. I tried Rogaine, which did not work for me and I found that when I stopped, the hair would fall out again. I stopped immediately. It’s been about 6 m…[Read more]
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laura seymour replied to the topic Are you participating in any clinical trials? in the forum Parkinson's Disease alternative treatments 3 years ago
Good to read responses from people from Michigan (my former home)! I have participated in all of the online trials that were offered to me through Michael J. Fox’ s foundation as others replying have. The 23 and Me only required saliva. I had a blood test when I underwent a DAT test and agreed to donate that blood to research at OHSU in Por…[Read more]
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laura seymour commented on the post, New PD Forum Moderator 3 years, 2 months ago
Hi Mary Beth!
I couldn’t find how to answer your reply to my comment about foot pain. I haven’t solved the problem yet. I cover up with an extra thick fleece blanket and my dog. It does subside after about an -
laura seymour replied to the topic Is anyone experiencing feet numbness or pain. in the forum Parkinson's Disease Symptoms 3 years, 2 months ago
I have only been diagnosed with PD for a few months. I, too, experience that feeling of something between the base of my toes and the ball of my foot. I thought that I had stepped on some tissue or tape, but there never was anything there. I went to a podiatrist who determined (with xrays) that I have a neuroma which could be treated with sh…[Read more]
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laura seymour replied to the topic Where do you live? in the forum Diagnosis Information and General Questions 3 years, 3 months ago
I’m an only child, so when my parents died, I really didn’t have anyone close to me except my husband. My daughter and her family lived in Oregon, so we decided watching videos of our granddaughter, we’d like to be there to be part of her life. Things fell into place rather easily, like it was meant to be. I guess it was, because my daughter is…[Read more]
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laura seymour replied to the topic Do you drool? in the forum Parkinson's Disease Symptoms 3 years, 5 months ago
Thanks, Jean! I’ve got the general idea. You’re right about ignorance being bliss. This is probably all I need to know. I love the quote that you or Ally sent me about acceptance is not resignation. My new mantra!
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laura seymour replied to the topic Trouble rolling over in bed? in the forum Parkinson's Disease Symptoms 3 years, 5 months ago
I kind of do the “hospital roll” that I learned when I had my back surgery. I kind of prop myself up with my elbows until I get where I need to be. However, for at least 2 years I can’t lie on my right side – it’s too painful at the time and then after I get out of bed. Not fun!
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laura seymour replied to the topic Do you still have your sense of smell? in the forum Parkinson's Disease Symptoms 3 years, 5 months ago
I lost most of my sense of smell about 10 years ago, but I thought it was because I was taking zinc (to help avoid catching colds). Candles are harder to smell now, but I still can smell my lavender, thank goodness!
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laura seymour replied to the topic Do you wake up exhausted every morning? in the forum Parkinson's Disease Symptoms 3 years, 5 months ago
I go to bed quite late, but am able to sleep in most days. However, I have noticed that I feel sleepy again after I eat. I fight it, but it’s not easy. The same goes for my walk – I know I have to do it both for PD and my arthritis.
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laura seymour replied to the topic Do you drool? in the forum Parkinson's Disease Symptoms 3 years, 5 months ago
Hi Jean, it sure is! Is there an article I should read that will give me a general idea of what this disease may bring? I know everyone is different and that there is no time schedule for various symptoms to appear. But, I would just like to be informed as I start this new phase of my life. Thanks so much!
take care,
laura -
laura seymour replied to the topic Why did you join this forum? in the forum Diagnosis Information and General Questions 3 years, 5 months ago
Thanks, Ally! I really appreciate your help! I do have loads of questions, but right now I’m concerned about the pain I have been reading about. I know PD is different for everyone, but I just would like some idea of what might occur. If you can give me some general idea about the pain, I would really appreciate it! The only thing I know…[Read more]
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laura seymour replied to the topic Why did you join this forum? in the forum Diagnosis Information and General Questions 3 years, 5 months ago
I joined because I was told (1 week ago) that I have PD and I wanted to learn about it. I saw the list of forums in the Parkinson’s News. My husband is joining the care-givers forum. We both have a lot of questions about what’s in store for us.
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laura seymour replied to the topic Where do you live? in the forum Diagnosis Information and General Questions 3 years, 5 months ago
I live in Silverton, Oregon and have done so for 12 years. Before that, I lived in Michigan (since birth) – Detroit, Dearborn.
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laura seymour replied to the topic Do you drool? in the forum Parkinson's Disease Symptoms 3 years, 5 months ago
I was given the diagnosis of PD a week ago today. But, way before that, I noticed I had been drooling on my pillowcase at night. I also thought I was not quite meeting all of my mouth when I’d take a drink, but now I think it was a form of drooling. I have been reading a lot about PD and it’s mindblowing to see the many symptoms/problems I ha…[Read more]
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laura seymour became a registered member 3 years, 5 months ago
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hi laura
Welcome to the forum! I am one of the moderators, diagnosed in 2015 at age 61. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic:it is a difficult diagnosis to accept.…[Read more]
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Laura, thanks for sharing. I’ve never heard of this mystery symptom. I’ll have to ask my Dad (diagnosed in 2013) if he has experienced something of the like before. Have you learned how to manage it with a little more ease?