Krukar
Forum Replies Created
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Mary Beth,
I live in Sedona Arizona. I just met for weekly lunch with my pal Tom. He is having some difficulty with his new Medication. My other friend Dan we meet for breakfast Fridays he has different medical issues that he deals with in a positive way. They are both great pals. It gives me perspective to watch them. Great topic! Blessings, Mike
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Mary Beth,
Parkinson’s is tough. And it gets worse, harder not easier. My wife and I live with the struggles. We just travelled to Minnesota for our Grandson’s
wedding. It was a great ceremony but I struggle with finding joy in stuff. At 66 this condition has changed my perspective fairly dramatically. I do enjoy sharing in these forums. Thank-you all for sharing your experiences. Thank- you Mary-Beth for leading the Forums. My massage therapist suggested is there may be a time when I look back on Parkinson’s as a blip on my list of challenges. Blessings, Mike
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Hi Mary Beth.
I think loneliness can be a part of the isolation that we all must fight. Parkinson’s shows up in so many ways. If it is not one thing than it can be another. This website does an outstanding job of keeping folks in touch. Blessings, Mike -
Hi Mary Beth.
I like to walk with my wife. In the summertime we like to go to our time share pool in Cornville Az. These days it might get too hot but we use lots of SunScreen. I do lots of exercise on my deck in the fresh air. It is a good question you ask. Blessings, Mike
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Mary Beth,
We like to walk (without sticks since Neuralli), also ‘boxing sometimes with my cat’ other times not. I think it helps me move in bed.
Thanks for your question.
Mike
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Hi Mary Beth,
I am not a Doctor…..but I feel like it has helped my walking, the lift in my legs. It is also good for my digestion.
Mood is tougher for me to judge. I must keep up my other routines.
Blessings,
Mike
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Mary Beth,
I currently take the probiotic Neuralli made by Bened Life. I it is a supplement for Parkinson’s. It is a capsule that impacts gut health. I take 2 tablets at 8 pm before bed time. My sleep is better as is my mood. Most of all it seems to help my walking which is very important to me. I have been taking it for 6 months. I is not a cure but it helps. Blessings, Mike
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Mary Beth,
When I rise in the morning I do some weights, boxing and then usually my wife and I walk. Then I have other things, PT and Accupuncture weekly and a couple of on line yoga classes with Norton Neuroscience Institute. I stick with the same stuff weekly.
It helps my Neuroplasticity for brain rewiring. It takes work and it is easy to become discouraged. You folks are the best for my thinking. I am a Dr.C fan! Blessings, Mike
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Hi Ally,
Fraya and I have been active throughout our marriage. We have always walked it was 5 miles per day, now it is about 1 mile. I have been doing Yoga twice a week on line with Norton neuroscience Institute , 502-559-3221 Phone. They have lots of classes and they are free. I also do massage 2 times a month. In Sedona I go to PT once a week and Accupuncture once a week. I now ride an exercise bike daily for 20 minutes.(trying). I have been taking Neuralli for 4 months, a Probiotic. All we can do is try. It is a great project. Blessings, Mike
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Steve,
Have you looked at Parkinson’s Voice Project. It is a free On- Line Voice program out of Texas that I have found to be very beneficial for my voice consistency. Blessings, Mike
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Mary Beth,
It is difficult to stay positive. Parkinson’s is a challenge
all of the time and it does really not get much better. But different strategies come up often . I currently taking the Probiotic Neuralli with some positive effects. I also came close to getting on the Vibrating Glove study. Now I see that a glove may get FDA approval this year. Mary Beth I just keep trying , Praying and that gives me and my wife hope. Blessings, Mike
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Claudia,
Neuralli has helped my walking lots. My legs are lighter, my digestion is better and it has helped my attitude. I recently had a tooth pulled and was on Antibiotics. The Neuralli effects were neutralized, I could definitely feel that. Now my tooth is healed and I feel the full effects of Neuralli again. Blessings, Mike
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Ally,
I have been taking acupuncture treatments for about 6 months now. It does not hurt. My Practitioner is very good and encourages me a lot. She targets whatever area I ask for but more she works on my stiffness and balance. I enjoy it which also helps lots. Thanks for the question. Blessings, Mike
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Hi Ally,
I do everything possible to combat Parkinson’s. Of late I have begun taking the Probiotic Neuralli with good results. My walking is much better. I do Accupuncture weekly along with massage twice a month. My thought is that if it gives me some hope it is well worth it. I am also pursuing the Vibrating Glove. I am too late for their study, but it may be offered to the public in August of this year possibly. My regime is also traditional P.T. , diet, exercise and medication as prescribed. I will keep you posted….Blessings, Mike
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Charles,
The E-mail address for the Vibrating glove project is
[email protected].I submitted my name about 10 days ago and received an automatic response.
I hope to be selected. Mike
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Mary Beth,
They have not contacted me yet. I just hope they will give me a chance.
Blessings, Mike
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Hi Phil,
Like you I am very excited about the possibilities that this type of treatment may offer. Dr. Peter Tass at Stanford has created a strategy that could well change the treatment landscape for our community. In fact I have volunteered for the study since they still have room for participants.
I still know that exercise, diet, and medication are keys to my symptom management. I always remember that Faith without Works is Dead. Blessings, Mike
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Hi Ally,
Fraya and I just returned from our Holiday lunch at Up the Creek in Cornville Az. It was very fun. Gazing on the creek it is easy to forget health issues and recall how blessed we are. For Christmas Eve our friend Rose will join us for Chinese food for the 3rd year now. We are so very blessed. It is good to hear you and your family are doing well and still singing. Blessings, Mike
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Hi Ally,
Happy Thanksgiving to all.
Mental Health sure can be an issue for Parkinson’s folks. I think it is partially the result of sitting around. So I am especially grateful for Fraya purposing we walk this morning. We have both had colds so that made it easy to give me an excuse not to exercise which helps so much. I have got to attack my condition.
So lately I have been taking the probiotic Neuralli made by Bened. I have taken it for 40 days now. It has helped my digestion, mood, and I am walking without a stick now. See for me I have got to keep up my exercise regime for my physical and mental health. Neuralli is not a cure but it has provided some symptom relief for me. Like I told my sister it gives me some hope. Blessings, Mike
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Hi Ally,
I consider myself extremely lucky. My wife is an absolute Peach as we battle our mutual health issues. Tom and Jeri could not be better cat companions and we love them lots. We have a supportive family. I lost my 90 year old “Aunt Ester” who I loved a lot but she was ready to go.
Recently I purchased the probiotic Neuralli and so far it is working very well after 20 days. My walking is better along with my sleep and mood (just ask Fraya). The course of this is program is 90 days to receive its full benefit. Neuralli is not a cure for Parkinson’s but so far it has helped to modify my symptoms. I really think attacking Parkinson’s is my only way of coping. You and your support has really helped, Blessings, Mike
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Hi Mary Beth,
I meet weekly with 2 different guy with Parkinson’s.
I have breakfast with Dan weekly , then lunch with Tom on a different day. We talk about lots of things besides Parkinson’s. The friendships are good. There has been some discussion about starting a Parkinson’s support group because one does not really exist in Sedona. I will keep you posted. Blessings, Mike
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Hi Mary Beth,
As a person with this condition I can’t help but acquire some knowledge about Parkinson’s, in fact I am an expert in coping. What I must do to make my situation palatable is exercise like a demon. Rather than think about my misfortune I choose to work it out daily. It also helps the time to pass. My wife and I are walking buddies. We await a cure but until then at 65 I am staying ready. Blessings, Mike
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Hi Ally,
What a great question. I am free to tell people I have Parkinson’s . Beyond that I really let them decide how they will label me. This life is a struggle with or without Parkinson’s. So I try and do the best I can. Blessings, Mike
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Hi Mary Beth,
I have been on C/L for close to 2 years. The research says it’s effect decreases. Recently with the help of my Doctor I have added a bedtime extended release 50/200 dose. With that I have reduced my Melatonin to 5 mg nightly. It has helped my sleep which is very important. I think it is critical to consult your Doctor for any changes. I hope that helps your Dad and others. Blessings, Mike