JulianH
Forum Replies Created
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Whoops. I think I made a mistake in the last post. Here it is in plain text.
I’ve been using Neupro for a number of years. I started with the 1mg pstch snd am now using an 8mg for 24 hours and a 4mg for 12 hours. I’ve been told by my neurologist that because of the transdermal delivery, the dose is more even than taking a different med by mouth. The manufacturer recommends that you put the patch in a different spot over a two week period. Otherwise you get a painful dermatitis. I can attest to that. So I made a chart for placement. So, today, the patches are on “left arm front down”. it is important, after application, to hold it down with warm hands for about a minute, so I set Alexa to time it. There is a picture chart in the box, but the Neupro website has a much better one in color. I have it taped to my bathroom mirror so that my caregiver and I can concur on the spot. I also set my Amazon Echo Alexa unit to sound an alarm when it is time for my Sinemet and when I can eat.
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<p class=”p1″>I’ve been using Neupro for a number of years.<span class=”Apple-converted-space”> </span>I started with the 1mg pstch snd am now using an 8mg for 24 hours and a 4mg for 12 hours.<span class=”Apple-converted-space”> </span>I’ve been told by my neurologist that because of the transdermal delivery, the dose is more even than taking an equivalent med by mouth.<span class=”Apple-converted-space”> </span>The manufacturer recommends that you put the patch in a different spot over a two week period.<span class=”Apple-converted-space”> </span>Otherwise you get a painful dermatitis.<span class=”Apple-converted-space”> </span>I can attest to that.<span class=”Apple-converted-space”> I can get away with a 7 day rotation. </span> I made a chart for placement. <span class=”Apple-converted-space”> </span>So, today, the patches are on “left arm – front – down”.<span class=”Apple-converted-space”> My neurologist recommended using it on the arms. It</span> is important, after application, to hold it down with warm hands for about a minute, so I set Alexa to time it.<span class=”Apple-converted-space”> </span>There is a picture chart in the box, but the Neupro website has a much better one in color.<span class=”Apple-converted-space”> </span>I have it taped to my bathroom mirror so that my caregiver and I can concur on the spot-of-the-day.<span class=”Apple-converted-space”> ( </span>I also set<span class=”Apple-converted-space”> </span>my Amazon Echo Alexa unit to sound an alarm when it is time for my Sinemet, exercise, and when I can eat. )</p>
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My movement disorder neurologist said that, in my case, I would have better luck using it on my upper arms rather than my thighs.
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I am not a swimmer like Steven, so I don’t know about whether the patch will stay in place while swimming, but it seems to be stable in the shower. The key thing is to read thoroughly the instructions in the box. The instructions are probably on the Teva (the manufacturer) website too.
I try to find skin that is not wrinkled, make sure the patch goes on evenly and press firmly for about a minute. Also affix the patch when the skin is dry. I think the patch has a 26 or 28 hour life, so be sure to do it at the same time each day. -
I have been on Neupro for several years. My movement disorder neurologist started me at 1mg and ramped me up to 8mg which I have used for at least 4 or 5 years. Also 7.5 tabs/day of Sinemet, 1mg Azilect (rasagiline) and Amantadine (2/day). No side effects from the Neupro. My understanding of Neupro’s advantage is a more even availability, over time, in the body than oral agonists. Only two downsides: Even with Medicare Part D it is very very pricey. Also, you need to develop a chart for placement or you get itchy dermatitis. (e.g: Monday –left arm, upper, front; tuesday left arm, lower , front…etc.) or you can use the chart on the manufacturer’s website). I have a seven day rotation schedule. The mfg recommends 14 days. My neurologist says in my case the arms work better than other locations. 8mg patches use a lot of real-estate. Remember: “one size fits all” doesn’t apply to us “Parkies”.
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Like Ally I usually give the quick response. or sometimes “challenging” or sometimes I say (truthfully) “I am very lucky, it has been 12 years since diagnosis and it’s progressing slowly”. Or “now I know what high maintenance really means”, or “i am learning too much about medical science” or “fascinating disease if you don’t have it”. I’d like to find some more humorous responses, because I think maintaining a sense of humor is a big help to yourself as well as to those around you.