• Judy posted an update 4 months, 4 weeks ago

    Jeanne,
    Your story is a lot like mine, but different problems. Have had 3 neurologists and like you, I feel were not attentive enough. Luckily I have a son who is super involved. Anything he has recommended has given me relief or answers in some areas. He found me a great PCP in my area and she is proactive. She has contacted my neurologist and gastroentologist and has lit a fire under them to work more closely with me. So don’t be afraid to make a change until you find the right doctor for you. Remember, this doctor will most likely be in your life for the long run so you need to feel comfortable with him or her. Also, ask questions. Call your doctor and tell him/her everything that is bothering you and keep calling. I just lived with all my problems and waited to address them at my next appointment. Then someone told me to speak up and call anytime I’m troubled and I’m feeling less afraid and out of control like you are now. I do hope you can get the help you need and get the right doctor to put you on the right medication. Don’t panic. Try to celebrate what you CAN do and keep a journal. That also has helped me. Hang in there, Jeanne. I do believe there is help out there for youl
    Judy

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