Jean Mellano

tina, my comments imbedded in caps:

“Well I just went to my neuro appt today and of course I forgot to ask her what I really wanted to—why I’m so talkative, especially since I have declining breathing, swallowing and vocal control. Oh well. I ALWAYS WRITE A LIST OF QUESTIONS AND I DO REMEMBER TO BRING WITH ME ON MY DR VISIT, BUT I ALWAYS FOR…[Read more]

Thank you Andrew for your words of wisdom… “…one moment at a time”

thank u so much lou for your kind words and encouragement. know that i do have my bitching and whining days.  i just try not to give in to it.  somedays i am better at being strong.  one of my upcoming articles was started when i was in a bad place. However,  i had to set it aside until i felt i could put a more positive spin on the str…[Read more]

Thank you Amelie…  all the best to you as well..

Jo. Thank u for ur kind words. I will still be around responding and posting when I am good to type.  Ally is still here as is Mary Beth.

christine, not sure when i will get article out on infrared light… the jury is still out for me.. plus, i have already written 3 articles scheduled for next 3 months.

thank you for your well wishes 🙂

sharon,  we are all so different in our symptoms and what works to ease those symptoms.  Dr. Laurie Mischley (naturopathic PD doctor) compares pd to a boat with many holes and we need many plugs to prevent ship from sinking.  i wish i had some words of wisdom for you as to what to suggest, but i still struggle myself trying to find the right co…[Read more]

thank you Mary/John.  it was our goal to create a community where we could all support each other

Joe, you hit the nail on the head… ‘our new normal”.   Keep doing what you are doing.   Your website is nicely done and although.i am a hard rocker as far as music goes, your work is very good.  Keep at it and don’t let
pd limit you.

Toni, i hope it is easier for you in Canada.  it seems our brains are desperately needed for research.    That is my gift of hope to those that will be diagnosed with this disease in the future.

George, Toni, Michael.. thank you so much for your kind words.. i do hope for a cure for all of us in 2020 and i will still be active on the forum, not just as a moderator…

Toni, usually if there is a link in the response it will flag for moderation, but you had no links… go figure…

Robert

thank u for your kind words.  We are all in this together.    Happy new year to u as well

well said Tina.. “This is a condition that calls for reflection, acceptance, and action. It’s preparatory and impetus for living life to the fullest, which is really a good recipe for everyone.”

Helen,

I feel for you and am so sorry you are so down.  Totally understandable, we all have moments/days/weeks like that.  I fear loss of independence myself, but I cant go down that rabbit hole or I will never come out.   I try to focus on being in the moment and thankful for what i still can do… easier said than done.. I wish you peace Helen..

Tina, no need to worry about wordiness, we are all here to share experiences.

Mike p.   We r all in this together…

joe,

thanks for sharing.  i too sometimes worry if PD is going to make me do something stupid and what people will think.  eg;  when i fell and people came running up to me to help me. most people are kind and understand, if they dont, it is their problem, not mine.  i too have problems with using my hands like typing, putting bills into a wal…[Read more]