Jean Mellano

scott  i hope you enjoy them.  rsb is my support group.  it is wonderful being with people who can relate to what you are going through..

thank you lou for your detailed post.  this is good info.. thank you

scott, i think you could be right, luck of the draw. i too led a clean healthy life, exercise, good diet, good sleep etc…  keep eating your ice cream…..we all need guilty pleasures and the beauty is in the valance

hi dave i have heard of it but do not experience bad off periods…. yet.  i image if it is new, it is probably very costly and medicare probably doesnt cover iet:-(

scott, you have come to the right place! and sharing laughs is KEY…

it seems we all are in search of relief from our symptoms and some of us have found something that makes the symptom more bearable.  i hope we all can learn something from each other, thanks to all for sharing…  we are not alone!

garret, i am a type A personality and must consciously remind myself to slow down.  there is no doubt stress makes my symptoms worse.

Roseanne, that must be difficult, having aging parents to care for when you have a chronic illness and you want to spare them from knowing what you have.  i believe scott milsten (an earlier poster in this thread is in a similar situation with aging parents.

robert, i believe nausea on c/l whether generic or brand is par for the course until you can time it right with meals/food and one gets used to it.  i have been playing with c/l dosages for almost 2 years now and for most part no longer have nausea. although once in a blue moon it hits me… as it is with most things related to PD, who knows?

Joe, I love Dr. Mischley… I went to her PD summer school this past august and blogged about it…

https://parkinsonsnewstoday.com/2019/09/03/top-six-parkinsons-summer-school/

scott, i do rock steady too and love it, best thing to ever happen to PwP….

Perhaps you might enjoy some articles I have written about Rock Steady…[Read more]

laura, that is amazing all that and no dyskinesia, sounds like every 2 hours is a good way to go.. i have started today.

laura, sounds like my challenge…i am going to try that.  my main symptoms are bradykinesia, fatigue and poor fine motor skills. did your revised plan of when you take meds help your symptoms more?

Larry. Thanks so much for sharing this info…

Stephen. Why did you switch from azilect to Xadago?  I am appalled at the drug situation in USA, so expensive and if it is a new drug most insurance does not cover

pamela, Dr. Laurie Mischley, a naturopathic doctor notices in her practice most people with PD are deficient in B12, among other nutrients.  whether it is C/L related is unknown.  here isan article i wrote about attending her PD summer school this past august.. https://parkinsonsnewstoday.com/2019/09/03/top-six-parkinsons-summer-school/

gail, yes, we are starting to become a community on this forum and misery certainly loves company 🙂

pamela, i was diagnosed with PD in 2015 and have not had tremors.  my biggest concerns are extreme fatigue, bradykinesia , balance and poor fine motor skills…

Christine, reflexology, even if it doesnt help, it is always good to treat oneself and relax once in a while.

Laura, i hope you find a solution for you foot pain.  i too have cold hands and feet, worse of a problem in NY winters..

Scott, keeping it simple is probably the best approach.  Everyone has their own challenges to deal with and they probably do not want to hear about outs…

Christine,

yes, I purchased the coronet from the woman who owns that website in the article.  U can also DIY as she provides instructions.   I look like ET when I use it lol