Forum Replies Created

  • jack-edmonston

    Member
    April 14, 2021 at 9:03 am in reply to: What are your thoughts about Deep Brain Stimulation?

    Focused Ultrasound (FUS) is cheaper, far less invasive, has almost no surgical risk and is just as effective as DBS. However, US has been slow to adopt the most successful version of FUS for PD, which is practiced at SoniModul clinic in Switzerlaned. Even as I type, a fellow PWP is boarding a plane for Zurich to get his other side treated after having had remarkably good success with the first side. Each side costs around $40,000. US has been promising clinical studies of this procedure but has not yet conducted them.

  • jack-edmonston

    Member
    April 1, 2021 at 2:52 pm in reply to: Book Reccomendations

    The New Parkinson’s Disease Treatment Book” by PD Expert at the Mayo Clinic seems to have a different take on what causes many PD symptoms. I have been reading about insomnia and night sweats and he seems to think very differently than my docs at Mass General Hospital about both cuase and treatmnent.

  • jack-edmonston

    Member
    March 16, 2021 at 3:21 pm in reply to: Parkinon's impact on sleep and dreaming

    ervI didn’t read every word, but I saw no mention of roprinerole. EVERY doc and PWP I have discussed my dream with says that the dopamine agonists like roprinerole, are often involved in the production of these strange dreams. I have been taking it for eight years and I’d say it causes me to have one for three of these acting-out dreams every year. Many involve defending myself from my attacking wife. In another I tried to climb out a second story window.

    My first wife, whose name was ALLYson, would not have awakened I believe, but my second has been able to shock me into awareness every time before I hurt myself or her

  • jack-edmonston

    Member
    December 22, 2020 at 4:04 pm in reply to: Why do you think Parkinsons patients have nightmares?

    I’ve had vivid nightmares and have acted some of them out.  Tried to crawl out the window,.  Up a wall.

    Punched my wife.

    Here’s the story: https://www.healthline.com/<wbr />health/vivid-dreams-causes#<wbr />causes