hallman
Forum Replies Created
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Hello everyone,
I live in the small town of Clinton, Illinois in the center of the state surrounded by corn and soybean fields.
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I was diagnosed a couple of years ago when I was 42 with YOPD.  I always tell everyone that I definitely inherited it from my father’s side.  That’s because I found out that my grandmother’s maiden name was Parkinson, for real.  A little humor about this disease does help at times.
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This is a great topic.  I’m going on one year with my diagnosis.  I’m only 43 and for years I have been slowing down.  I’ve been on venlafaxine since 2013 but I’ve noticed my apathy and fatigue has really gotten worse over the past few years.  I used to follow most sports on a daily almost hourly basis.  Now I only follow a couple and that’s if I push myself to be interested.  I’ve never had to force myself to be interested in things like I do now.  It’s frustrating!  The only thing that I look forward to now is if I think that I’m going to be able to have a good nap because I’m always tired.  Thank you all for your input.  People just don’t understand what we go through and it’s depressing to think that people think I’m lazy.  I need to get one of those shirts as well.
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Does anyone lose feeling in their toes?  Oftentimes one or two of my middle toes will be numb, like they are asleep and I can’t feel them or move them.  If I sit in a hard or rigid chair my toes usually go numb.  Just curious if anyone deals with this as well.  Thanks
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Hi Jean.  You are right, PD isn’t what you want to hear at all.  These last 7 months or so have been difficult to wrap my mind around the diagnosis.  However, after going through the symptoms and researching PD it does at least give me an answer.  It’s not just in my head anymore.  Thank you for the words of support.
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Definitely a partner.  I dealt with plenty of doctors with my bad hip who treated me like I didn’t know anything.  When my wife and I started asking questions because we did educate ourselves then the doctor treated us like troublemakers because we didn’t worship the ground they walked on.  Of course the worst doctors are the ones who work for worker’s compensation.  I won’t say anymore.  As far as my neurologist goes I like the PA better than the neurologist because she treats you like a partner in your health, the neurologist not so much.  I live in a small town however and don’t have much choice.
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Pins and needles in my fingers as well as a lot of pain in my elbow and forearm had me going to an upper extremity doctor.  I thought I had hyperextended my elbow while getting into bed but no amount of p/t had helped to alleviate the pain.  So the doctor sent me to the neurologist to get an EMG thinking it might be a pinched nerve.  Everything was fine but the neurologist noticed my hand tremor an eventually diagnosed me with PD at age 42.  I had 4 hip surgeries on my right side before age 40 ending with a THR.  I thought my hand tremor was how my body responded to pain, boy was I mistaken.  Anyways, I’m thankful for the neurologist spotting my tremor.  The doctor did eventually give me a steroid injection in my elbow but it only gave me relieve for about a month and came to conclude it was PD, so just dealing with the pain.
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Mike,
The shaking in my right hand began after one of my hip surgeries, I can’t remember which.  It started mild and only when I was in a lot of pain or when my anxiety was high but steadily became more often.  I recently read about a case where a person came out of surgery but couldn’t move.  It took a while but he slowly began moving again and was eventually diagnosed with PD.  They were looking at whether the anesthesia triggered his PD.  Something to keep an eye on.  Thank you for sharing your story with me.
Chris