Habib nazarian
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My husband was diagnosed in Jan. 2020 at age 76, and has been on sinemet 2.5 every 4 hours. In February 2022, the medicine Amaltadin was added to his medication, within 2 days, he developed a terrible dyskinasia, could not stand on his legs, his arms were moving in strange movements, and while resting in bed, he felt like he was falling. He was hospitalized for 5 days, they did not believe us at first and kept the sinemet at the same dose, but the neurologist at the acute rehab was very knowledgeable. She cut the sinemet to 1/2 for two days, and said it takes two weeks for Amaltadine to leave his system. It took total of 3 weeks and he got very weak, being on the bed all those days. eventually, it did leave her system, and with OT/PT he got a bit stronger and came home. another movement disorder neurologist later informed us that he does not prescribe Amaltadine for patients older than 70.
Best
Mary
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I appreciate all the comments. My husband was diagnosed 5 years ago, the progression has been fast. I worry for what the future holds. I feel helpless that I cannot help him feel better. Depression and apathy are very difficult to deal with. Please if anyone has advice on dealing with depression, let me know. He agreed to try manitol, hopefully it will help. I pray that G-d gives us strength and patience ?
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I used to spend time with old friends playing backgammon. I used to play violin and piano, and used to paint. I have lost interest in all.
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My husband struggles with depression, the medication hardly helps. He is tired and depressed 90% of the time. What makes him come out of his shell is talking to his friends. Talking to friends who care about his well being gives him a hope that his life is very important to all of us, and as hard as PD is for him and others like him, they should remember how important they are to many others around them, and that is a reason for them to TRY.