Gregg I Daniels

KG,
Everything you state in your message is true regarding that there is no actual scientific “proof” that exercise delays the progression. As a science oriented individual, I can appreciate that. However, it is a fact that people who exercise are statistically better off than those who do not, whether they have PD or not. Statistically…[Read more]

I am nearing my 73 third birthday and have had Parkinson’s for 11 years. Mine is tremor dominant and I had DBS 2 1/2 years ago which has helped the tremor significantly. I have a number of other symptoms popping up including frequency of urination, trouble sleeping through the night, some neuropathy in my feet and my balance isn’t as good as it…[Read more]

Right hand tremor and some minor left hand tremor are my main symptoms.  I have had PD for 11 years and got DBS 2 1/2 years ago. Prior to DBS I was taking 5-6 100/25 c/l  per day.  Since DBS I now take 0 to 1 100/25 c/l a day depending on physical or emotional stress, injury, or sometimes its just worse for no reason that I can identify. DBS an…[Read more]

Taking online classes from MIT.  There is a large selection of subjects for undergraduate and graduate level classes.  Some classes are coordinated through edx and MITx.  These classes are graded and include lectures and quizzes.  They are not easy for the most part and require some critical thinking. Some of the classes can also have imp…[Read more]

I don’t know about availability  on you.tube but I have a heavy bag and train at home.  Really gets your heart rate up and is great for alleviating any depression and aggression.  I also mountain bike, lift weights, dirt bike (most fun for those of us who crave speed) and use an elliptical machine (least favorite exercise).  Yoga stretches and bal…[Read more]

Bill, I agree with you on every point.  Both my wife and I initially got a shot and a booster in 2021.  No shots since.  We both got Covid over Thanksgiving and it lasted about 7 days and seemed like a flu/cold hybrid.  Except for loosing my sense of taste and smell off and on for 3 weeks, and my wife having a recurring mild sore throat for abo…[Read more]

My wife and I got the initial shot and then one booster.  Neither of us got Covid.  However, we know a lot of people who got 2 or 3 shots and still got Covid.  Some more serious than others.  We also know people who didn’t get any shots and some got Covid of varying seriousness while others didn’t get it at all.  I also believe that it will be a…[Read more]

I guess I would say that I am both, a researcher and someone who takes it day by day.  50 years ago I got my degree in physiology and psychology, known as neuroscience these days.  I am still curious about this science and others as well.  So I have kept up as best I can by taking online courses from MIT and other colleges.  So I tend to read and…[Read more]

Robert, You are definitely on the right track with the exercise routines.  I am 72 and have had PD for 11 years.  The main symptom has always been a right hand tremor.  I started taking C/L about 2 years after getting the disease and gradually increased it to 6 per day before getting DBS in 2020. Now I take 1/2 to 1 C/L per day with no problems wi…[Read more]

As Charles indicated above, how do we measure whether exercise really delays the disease on an individual basis?  On the other hand statistics show that people who exercise regularly tend to progress slower than those who don’t.  I have always exercised regularly doing a variety of things; weights, cardio, boxing, mountain bike, dirt bike, e…[Read more]

Joakim,

Send me a private message.

Joakim,  sorry to hear you have given up motorcycles.  They are my first love (well besides my wife) and I am reluctant to give them up any time soon.  See my original post.  Don’t know if you have considered DBS but it made a huge difference for me.  Tremor is my main symptom to date and DBS alleviated that considerably.   Also a 80% reduct…[Read more]

I am 71 yrs old, have had PD for about 9 1/2 yrs with major symptom being a right hand tremor.  Was taking 51/2 Sinemet a day prior to DBS last October. Prior to the surgery I was always able to drive ok but if riding my motorcycle I had to time the meds and be back before they wore off, usually in about 3 hrs.  After DBS, I now take 1 Sinemet a d…[Read more]

A ridiculous cutesy term that signals weakness.  What about calling people with cancer Cancies?  Degrading in the same way as calling someone Whitey or Blackie.

I am 69 and have had PD for almost 8 years. Right hand tremor and difficulty staying asleep are the problems. I take 4 c/l tabs a day and azilect. We are getting ready for a major move and my 44 year old learning disabled daughter who is also mildly schizophrenic has been living with us for the past year. Stress certainly increases the…[Read more]

Jean, I did see the article and am encouraged by it. My goal is to stay as active as possible for as long as I am able.
Hopefully there will be some approved research soon that will slow the progression or stop the progression. Due to the complexity of the disease and great differences in individuals symptoms, I seriously doubt a cure will be…[Read more]

I first noticed tremor symtoms in 2012 and saw a neurologist in 2013 who confirmed that I have Parkinsons. So far my only symtoms are tremor and slight stiffness in my right arm. I am very active and exercise regulary including cardio, weights, stretching, mountain biking and dirt biking. I take 3 doses/day of Senemet, 1mg/day of Azilect, and…[Read more]