[Gale Dowd]

Joyce:
As well as the PD meds//Apo-LevoCarb 100/25mg x2 – 5 times a day//stalevo 75/18.75 x1 also 5 times a day//Amantadine 100 mg x1 time a day(am)//LevoCarb -CR200/50mg-xI at bedtime-along with Auro-Mirtazapine-20mg 2tabs also at bedtime and finally I take
Siv-Rabeprazole 20mg – 1 tab in am.
I also take VitaminD3/1000 ui 1 a day //Digestive Enzymes (3)1 at each of the three larger meals and a probiotic (Align) once a day.( A total of 23 pills a day which would turn any stomach !
By eliminating acidic fruits and juices of lemons,limes,grapefruit, grapes and apples (skins),raspberries,blueberries,all spices and some vegetables including onions, tomatoes are not all of the food items that no longer grace my table
I can tolerate porridge (not all), toast,butter,honey,creamy peanut butter,jams and jellies( not all),scrambled eggs (not fried),pancakes and waffles.This is generally my favourite meal of the day ! I have snacks midway between the 3 main meals / I try to include 1 nutritional drink per day which may be the snack (Ensure or similiar) Deserts can be jellos(non citric),puddings cake and cookies depending on content, ice cream and most ice
cream bars.
The 3 main meals which may include potatoes,meat such as hamburger, chicken( no bones) that has been through a blender befor cooking.Squash,carrots and peas need not go through this process.
The medications and food and it,s preparation have eliminated most of the bloating,nausea,etc. which hopefully will allow me to gain some of the weight,including muscle strength, back to something close to normal!(I had lost about 30 lbs / down to 110 and am slowly regaining a few lbs now )
This has been a long story but I think necessary to describe in detail for which I apologize !!!
Gale

[Gale Dowd]

The more I read the more I am convinced that with many of the people living (?) with PD have had problems, or will have as the disease progresses ! I was diagnosed in 2010 and my gut problems started about 6 years later after being treated for H Pylori.
Many of the food choices in my regular diet now seemed to cause nausea and severe bloating,generally within 1/2 hr after eating and mostly my noon and evening meals. I lived with this problem for several years making changes in food choices which helped but stil troubled with nausea,some bloating and acid reflux.

With the help of a nutritionist,and fine tuning of food choices/ no spices, pickles,tart fruit(lemons,etc.)as well as no food that is difficult to break down either by chewing or later in the stomach. Most of the food choices after being cooked go though a blender before being served.
There has to be considerable fine turning in the choice of vegetables and fruit as well as what liquids would not be on the menu any more.
The final and extremely important part of my cure was and is my extremely patient and understanding caregiver, my wife of 63 years !
Gale Dowd.

[Gale Dowd]

I have on LevoCarb from 2010 when first diagnosed until now.The med has worked well although the strength and time is needing adjustment.My problem(s?) lie with my stomach ! I take my 1st. meds at 6am / breakfast at 7 to 7:30 am and approx.1 hr later I have a build -up gas / bloating and nausea.( next meds at 9:15 / 3 hrs and 15 min. Intervals ) This can last from 1 to 1 and 1/2 hrs and unable to walk / talk /heavy drooling and shortness of breath. This can happen after lunch and after the dinner meal / about 7 pm. This condition can happen several times a day or not at all / the good days ! I have contacted a nutritionist and will be following suggested foods to avoid, etc. Are there others having this problem ?
Gale