Tammy
Forum Replies Created
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Very hard to sleep. Very heavy thighs, especially right thigh. It’s like a magnet to the bed. They ache consistently. Sometimes it’s more uncomfortable and sometimes it’s not that uncomfortable, but on a scale from 1-5, 5 being at it’s worst, It is always a 3-5. No doctor has heard of this. Not my general doctor, internal medicine doctor, movement disorder doctor or the chiropractor. I’m at a loss and can’t believe others on here have finally talked about it. Tried leg massagers/compressors, bought an adjustable bed, magnesium gel, pain meds, compression socks, nothing makes it better. It used to be just when I got in bed, but now I have it throughout the day, just worst at night, I guess since no distraction? From all my research, mine is not RLS.
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My HWP is only 55, so long time until we can afford retirement, however, there is no way he will make it to retire until Social Security. Has not told the job yet, too afraid. He would like to go out on Long Term employer disability, but not bad enough yet to qualify I’m sure (diagnosed 2014), but starting to struggle cognitively and anxiety so worried his days are numbered if the company sees his work being affected.
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My husband says the brain fog is the worst. Have no idea how to help with that. Diagnosed 2014, he is now 55.
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My HWP is too afraid to tell him employer. They usually “reorganize” have layoffs every December. So, they don’t have to give you a reason to let you go (TX is a right to work state). So, it would be easy for them to not show discrimination. PD is affecting his job some, mainly with his mind, not his body. Not enough to go out on long term disability that he pays for, but by the time he would qualify for that, he would have already lost the job due to poor performance, most likely. He’s only 55, diagnosed 2014. I’m guessing we might need to consult with a disability insurance attorney to help us to understand what paper trail we need to be laying with his doctors, etc. for an eventual long term disability request.
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Please let me know what brand you use. So many out there and I want him to try the one I know someone with PD says works for them.
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So, I did a little research and it looks like the only one I could find with PS128 was Neuralli. Have you heard of any other brand?
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Thank you for posting. What was the brand of the lower expensive one you tried that seem to work? Where did you buy it? I would like to try the one that worked on his constipation issue first.