Forum Replies Created

  • excalibur07

    Member
    June 9, 2022 at 5:23 am in reply to: What’s your weirdest symptom?

    Weirdest syptom 1 : Slow growth of hair on the top of the my head!

    Weirdest syptom 2 : Slow growth of some of my nails

    Weirdest and painfull syptom 3 :Excruciating pain and ache covering my entire right leg and inner part of my left arm

    Weirdest syptom 4 : Excessive sweating  ( I’m so helpless )

  • excalibur07

    Member
    December 6, 2021 at 8:37 am in reply to: Back pain or neck pain: Anyone else suffers from this?

    My muscle pain arm pain and also neckpain ! Absolutely related my PD. Its form of occuring symptom of some type  of PD.

    It reliefs with PD treatments.

     

     

  • excalibur07

    Member
    November 2, 2021 at 5:04 am in reply to: Have you undergone Deep Brain Stimulation?

    Anyone make a post this topic if have any experience with DBS ?

    Thank you…

     

  • excalibur07

    Member
    July 20, 2021 at 9:37 am in reply to: Have you experienced a misdiagnosis?

    I have misdiagnosed during 10 years…

    My most-discomfort complaint was right whole leg pain and ache,

    a lot of examine by nourologist, EMG and MRI SCAN, during 10 years i searched my real diagnose !

    Docs says these were calling stucking nerve syndrome, meralgia paresthetica etc.
    after all, i sense bradykinesia my right hand’s fingers, diagnose was clear about PD.

    But i think these misdiagnoses give me 10 years free – without PD, i was lucky for that, i was upset and worry if i knew real diagnose

  • excalibur07

    Member
    December 10, 2020 at 3:38 pm in reply to: ANYBODY GET THE COVID 19? HOW DID IT GO?

    I really want to know how will COVID19 GO and will we weak against Corona virus?

    I am scarrying and nervous about it

    can anybody tell their experience if infected?

  • excalibur07

    Member
    September 16, 2020 at 3:47 am in reply to: When did you first suspect that you had Parkinsons?

    Several several years I felt right whole leg pain. ~10 years. Many times doc visits, MRIs and EMG tests

    I cannot bring any explanation or diagnose from doctors  it was different type of pain whole leg

    and after 10 years I feel stiffness on my right hand, And as your guess visit neurologist finally diagnosed PD

  • excalibur07

    Member
    August 25, 2020 at 3:36 pm in reply to: Have you tried CBD oil?

    I used but nothing happened for better situation. ?

  • excalibur07

    Member
    May 14, 2020 at 4:26 pm in reply to: Butyric Acid and Niacin

    ?

  • excalibur07

    Member
    February 7, 2020 at 9:27 am in reply to: Your Amantadine Experience?

    Hi Charne

    did you recover your starting  point to before starting amantadine ? or did you worst than starting point ?

  • excalibur07

    Member
    February 7, 2020 at 9:22 am in reply to: Your Amantadine Experience?

    Hi Mike,

    This is not about cost or price problems. I afraid that Dopamine agonists will be resistance and not work a long time if  I start dopamine agonists. 1-1.5 year later, I will need carbidopa/levadopa support.

    if I start agonists, and also carbidopa/levodopa will work 2-3 years, And after ? what will I do ? I don’t want finish all treatment in 3-4 years later. I want to find another way for  late start dopamines. I can not retire on 47-48 or 50 y.o. Because I have 2 little child and must be power . ?

    But  I know, I need something because my symptoms blockes me ! my right hand not working properly. ı do not have tremor on my arm and right hand, I have Bradykinesia on my right hand and arm .?

  • excalibur07

    Member
    February 6, 2020 at 10:45 pm in reply to: Your Amantadine Experience?

    did you going worst when leave amantadine treatment ? i affraid from this worsenining if will happen.

    Anybody can say something ?