Marie
Forum Replies Created
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We have a wonderful rescue beagle. He is our 3rd beagle. And on his own his wakes up my husband when having night terrors. And as soon as my hubby say, good boy, I’m ok, he goes back to bed. We did not teach him, he noticed changes ion his own
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My husband was always a planner for retirement his whole working career. Then at 48 bam, early onset hit. So he shifted how his money earns, and we are pretty well set up. His mom had a will and it still went through probate. The attorneys are saying everything goes to probate these days due to relatives coming out of the woods to lay claim to an estate. So we continually evaluate.
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I have not noticed any real difference in my husbands who has Parkinson’s and had Covid pneumonia and was in the hospital for a week. It was a good three months until he was back to himself, but I had a mild case, and I am forever tired, with brain fog.. which I get anyway from migraines. Just more often I feel it, these days.
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Absolutely not!!! @Cynthia Ball I am so sorry for your husband after both shots. My friends dad had the shot, got a clot, then surgery, then passed. However, her dad also check himself out of the hospital AMA, didn’t do stated exercises. But I would have waited on a knee replacement if I had a clot after getting the shot. No one in my house got the shot. I had one doctor tell me due to my egg allergy not to get it. And then also after all the people going into anaphylactic shock when getting it, I question it. I am very allergic to all penicillins, and all fish. So that was a hard no for me. My husband who has Parkinson’s has thickened heart walls from the days when he lifted weights, and my son, had objections from the ingredients.
But this also is not a “vaccine” in its true form. A vaccine prevents disease. This shot definitely does not. It doesn’t prevent the spread or even prevent people from getting the disease. In my family alone everyone who has gotten the jab has gotten covid at least twice. Except my mom who lives at a planned community, and they did a really good job at controlling the spread. But I will say that right after they gave the newest booster, 7 people got covid right away, and 50 people had to be quarantined. I plan to call her tomorrow to see if more people have it or if we can finally get together.
Also the the flu and covid are two different types of shots, one is an actual vaccine, the other one as someone mentioned above is breaking down our bodies own immunity every time you get a booster, is a MRNA shot. Doing damage to young peoples hearts.I think if you have have had two that is enough,, and have had Covid you have natural immunity you are good, but that is my thinking … so I do not think an actual flu/covid shot combined will ever be a thing, more my thinking.
And no one judges here!! I also am grateful NOT A SINGLE one of my friends judged me for not getting the shot. When all of my friends got together last summer, I mentioned I was not “vaxed” and if they did not want me to go.. it was perfectly ok by me.. everyone said are you crazy?? And all friends are very good at who has a sniffle, or cough, do you want to go out, or reschedule? As some have grandkids at home, or others who are compromised. So we all are good that way as well. And that it has become so political is so very sad.
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This silly dog we rescued… our third beagle. He is like our other beagles in many ways, but as our others, also different. He buries his “bones” dog treats. First he did this outside, now he looks for places around the house to bury it. And about a week later he “digs” it up to eat it. Natural dog instinct to bury. Our other dogs didn’t have it. He does. And he takes very good care to bury it under toys, inbetween couch cushions.. we crack up!
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Hello Omer!
Welcome! How awful to get covid after traveling, and I hope you had a nice visit to the states. My husband has been diagnosed with Parkinson’s for 10 years I believe, is on carbadopa L-dopa, 2 kinds, one is fast acting, one is time released I believe. He is also on a neurpo patch, which he believes does nothing and something else that escapes me as I am brain dead these days. We rescued a pup, ( advertised as 2 1/2 but was more like one and a couple of months. He is like the late in life child you didn’t plan for, but we love him) and when I had a tooth pulled a month ago he and my son decided to stay all night with him. Now he will not sleep by himself, and my husband will not listen to him cry for one night in his crate, so we take shifts.. plus I suffer from migraines..
My husband does not move nearly enough, but today he was out with the dog for 45 minutes with the dog, who loves to run the yard. And said he did his version of running with the pooch. His trouble, pain times, I’m dying times are 7-11 pm. he knows he needs to move more.
He has both apathy and depression. He takes lexapro for night terrors. I also know it is for depression. But it definitely helps with night terrors, and his sleep has been terrible since I have known him for 22 years. I add a Benadryl to his night time meds, he tried melatonin once and it gave him terrible nightmares.
i would speak to he doctor about meds, I can make life a lot better for your dad, and you as caregiver ♥️
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Well, this is more anecdotal as of June, than Parkinson’s related which is horrible. My husband takes lexapro (generic) for his night terrors. If he takes too late or falls asleep too soon well, he may take out his whole sideboard of meds, drinks, remotes, fling a remote, his pillows that he uses to prop up his arms and slides down his chair. Or I will find him having a “colorful” conversation, or yelling in that same colorful way at someone. We usually have a good laugh at what he has dreamed about.
Anyhow, we rescued a beagle in June who was advertised a 2 1/2 and as chill as his namesake Marley, as in Bob Marley. Great with other dogs. Housebroken. None of it true. He turned out to be just over one, not chill at all, not at all good with other dogs. Semi housebroken. Well he doesn’t sleep very well. And now it’s worse since I had a tooth pulled two weeks ago. My son and husband, took all duties that I do for two day, meaning they stayed with him all night and screwed up bed time. So he has to have someone with him ALL the time. So no one gets any kind of regular sleep around here!! I told the dog the other day he is like the late in life child that was unexpected, and he is exhausting me!! He just stared back at me.. I said it’s a good thing you are cute..
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We rescued a beagle on June 4, after our beagle of almost 12 years succumbed to kidney disease. The house was so quiet without Lucy. She was so sweet, she never ever went upstairs, so when her water dish was empty she would bark from the kitchen. My husband and I would always say, it was her way of saying “hey, I’m thirsty over here.” Or sit next to the water dish waiting for someone to pass by. So after getting through the holidays, and winter, we really began missing a dogs presence in the home. It took more than four years between the beagle I brought with me into this my current marriage, and Lucy. So as my husband is the PWP, we would look for a new dog when he felt he was ready. And we would rescue this time. So one morning he showed me a picture, and said what do you think about this guy? I said he was cute. And then he told me he applied. After a long couple of weeks, we were approved. Now Marley’s bio said he was chill just like Bob Marley, and 2 1/2.. all wrong. He is just over one, and very active. But he is so cute and funny, and a love. And my shadow. He loves to zoom around the yard, treats, and his fence friend Petey. And while he has gotten my husband moving more, he takes the morning shifts so I sleep later. My husband has night terrors so I fall asleep after him to make sure his night meds have kicked in. And once this pea soup weather is over, I cannot wait to walk him again.. although this is the first beagle we have had that loves being out in the high humidity.. I hope he loves the snow, our previous beagles loved it!! I wish I knew how to attach a pic here to show a pic of our Marley..
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I had a beagle that came with me from my first marriage. My husband fell in love with Snoopy. However when he passed suddenly from kidney disease it took us many years and a spur of the moment purchase to get another beagle. She passed last November after 11 years. We, me, my son and the hubby were missing a dog. Mind you I am the caregiver for my husband and the dog. But, much to my surprise one morning I woke up and he told me he applied for a rescue beagle. And we picked up Marley on June 4. I have to say, he has become more active, and gone outside more than ever before in the last two years. He typically takes care of the mornings, and I go all day and into the early morning hours. He is a stubborn rescue, but we made it through his neutering during fourth celebrations.. and he is so handsome,, and a good nap mate after he wears down!
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Yes, count me in!!! Late afternoons, evenings eastern United States time is good for me!!! Great idea!!!!
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Yes, we take magnesium here.. but make sure it’s the magnesium oxide, not citrate.. my husband takes it daily. And I take if I have not had enough steps because I get restless legs. And potassium as well. My husband does not have much cramping, but I make sure he has the magnesium every day.
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All the meds are down in our kitchen, his and mine (expect for when I managed to get covid in January I brought mine to the upstairs bedroom for a time and I have kept some there) but I actually set up his daily meds. And we use empty prescription bottles of different sizes for the time of day and what meds are needed when. I use skinny ones for the his 3 times meds, a super large for the one and other meds, and a medium one for nighttime that includes his meds for night terrors. He also had Covid, was in the hospital, but for a uti to begin with. He is more accurate on taking on time now since he has gotten home. So I wrote him a timetable, which he seems to not to like, but when he asks me when is my next med I have to ask him when did he take his last one. But for the most part he has taken control, and as I pass by I make sure the next med is on a particular part of his dresser that we together decided on. I know as mental decline goes on, I will have to make sure I am the one who is more in charge of times as I did when he came home from the hospital and was not a hundred percent. It works for us, and he was the one who began putting the meds in empty bottles when he was still working for the daytime, he would put the ones he needed daily. Now I take care of that.
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My husband was having erectile issues before he was diagnosed. And I read in article from here or another Parkinson’s source I get emailed, that ED early on could be a precursor to Parkinson’s. And then diagnosis at 48. So for us along the way we have had issues. Not to mention I lost my desire along the way. We still have moments of intimacy, here and there. Fortunately we find lots of reasons to laugh. I do not know if he and his doctor discussed our particular sex life, but I do know the subject came up, as he would tell me of some of the conversations they had at appointments, so he may have discussed.
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I got my husband four kinds of puzzle books for Christmas. Still has not looked at a single one.. another gift gone unused…
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No. No one in my house has had the vaccine. My doctor told me no due to an allergy, my son refused due to his age group, and my husband who is the pd person in the house, said no.
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When my husband was diagnosed almost ten years ago, and we needed a new mattress, we got a sleep number. A queen not the one that goes up and down separately but does go up and down. So when choosing, we chose a temper top (I do not think that is the word, I have brain fog from a migraine) maybe mattress topper. Thinking it would be better as his Parkinson’s progressed. Well, about four years into our new mattress he was not comfortable at all. Whether the mattress was soft, firm, up down. So he has been sleeping in an electric reclining chair. He has tried to come back to bed several times but is not comfortable at all. We are so far away from when he fell out of bed in our early dating years.. 22 years ago. He used to sleep on his side, on the edge.. one night he rolled over, crash.. and once I checked that he was not bleeding from his head from the sharp night table, he got back into bed.. and we had such a laugh…
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I live on Long Island, NY. In a town that loves fireworks ALL year round. Most of the town loves it, the dog owners hate it. I am part of the second group. Love, The End part of the island, Montauk.
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Nope~ it’s bad enough I feel our phones, tablets and tv’s are listening in on everything we say.. I never enable Alexa on my car (just noticed it the other day) or phone or anywhere. Rely on my feeble brain, it works about 80% of the time, I never know what day of the week it is.. and I use my phone calendar heavily.
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My husbands certainly have. It is usually when he has first taken his meds and until they take effect, mind you he takes them five times a day,, so sometimes in the middle of the night we meet coming and going into the bathroom .. and if he has a doctors appointment or if on the rare chance we go out, he delays taking them so he does not have to be running to the bathroom or in the middle of a procedure. But he has them with him so he can take them on the way home to start to get into his system..
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My greatest challenge has been to not give up and walk away some days. I know that may sound selfish.. but there are days when I ask myself how much more can I take? And these are when he is on his pity party days, I am going to die soon days, I can’t take this anymore days. When he refuses to try, to exercise, do for himself, act like he cannot do anything,, so I have to take a step back, breathe, talk to the dog, mutter, and pray next year I will be able to get away with my sister.. two years without a sisters getaway is not good for ones mental health!!! Thank you for listening!!!
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Hello all!!!
it’s all overwhelming at times. Add myself with migraines (and lots of bad weather lately) and a senior dog with health issues that my husband absolutely loves but can no longer walk, or get on the floor to pet, ( she is a beagle, who had double ACL surgery legs and hip bother her so she likes to sit making it hard for my husband to pet her).
It is dizzying the apathy, the depression, the anger, the whole ball of wax as you say.. when he is on a rant, I let him rant,, like a two year old, you pick your battles. I set his meds for he day every day. He takes them or not, wether or not he is awake or not. Some days from not sleeping well for two or three days, he is sleeping really and if I wake him to take his meds, do I know when he last ate?? I have many issues not sleeping as well. A momma’s ears.. but occasionally I get an hour or two of deep sleep, usually in the mornings when I know my son has made it home from the night shift, and after letting the dog out, checking on my husband, and then taking another hour or so to fall back asleep. Covid and lockdown made everything so much worse.
As like you, I feel anger and resentment, guilt. All for what my husband and I should have had. We are 57 and 55 respectively, now he rarely goes anywhere. Although he did make two family parties this month, went to lunch with friends from his last job, and a childhood friend. But gone are the days of traveling in our retirement. And he makes sure I get out for lunch dates with friends, today I canceled a date, he got mad I did. But the high humidity has been irritating my asthma so I have stayed in with the ac. I generally take a long weekend getaway with my sister, but due to covid, no respite for two years.. so stress levels are very high.
I am going to look into this mannitol. If it’s a sweetener, he likes black coffee, I can use that instead of truvia once a day. we are all caregivers, and stressed, and here!!! I love to read to get away!! What do some of you like to do to getaway??? -
Our other two beagles didn’t do this.. but he cracks us up. And come 8pm him me and my husband cannot sit in the same room together. It has to be one on one.. he sits or sleeps nicely s when it’s one of us.. but together, he is a ball of energy no matter how much run time he has had outside!
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I was wondering, AK, was your RA diagnosed after your Parkinson’s? My husband’s joints hurt worse than ever, and he just has a lot of pain.. he saw one rheumatologist, who told him he didn’t have RA. But I am wondering if he should see a different doctor.
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I do want to give an update, we are having a somewhat better august. We did enjoy two family events, the celebration of my nieces graduation from college and my sons birthday, as we did not celebrate last year due to covid. My husband himself has seen work friends for lunch, and I have gone out with a friend who move to Florida and came home to visit, took my mom to a local casino, (we had not gone in more than a year and a half, that is her thing not mine I’m the driver, and she buys me lunch!), so before we lockdown again, we are getting in a lot this august!!! ❤️