Marie

No. No one in my house has had the vaccine. My doctor told me no due to an allergy, my son refused due to his age group, and my husband who is the pd person in the house, said no.

When my husband was diagnosed almost ten years ago, and we needed a new mattress, we got a sleep number. A queen not the one that goes up and down separately but does go up and down. So when choosing, we chose a temper top (I do not think that is the word, I have brain fog from a migraine) maybe mattress topper. Thinking it would be better as his…[Read more]

I live on Long Island, NY. In a town that loves fireworks ALL year round. Most of the town loves it, the dog owners hate it. I am part of the second group. Love, The End part of the island, Montauk.

Nope~ it’s bad enough I feel our phones, tablets and tv’s are listening in on everything we say.. I never enable Alexa on my car (just noticed it the other day) or phone or anywhere. Rely on my feeble brain, it works about  80% of the time, I never know what day of the week  it is.. and I use my phone calendar heavily.

I was wondering, AK, was your RA diagnosed after your Parkinson’s? My husband’s joints hurt worse than ever, and he just has a lot of pain.. he saw one rheumatologist, who told him he didn’t have RA. But I am wondering if he should see a different doctor.

My husbands certainly have. It is usually when he has first taken his meds and until they take effect, mind you he takes them five times a day,,  so sometimes in the middle of the night we meet coming and going into the bathroom .. and if he has a doctors appointment or if on the rare chance we go out, he delays taking them so he does not have to…[Read more]

I do want to give an update, we are having a somewhat better august. We did enjoy two family events, the celebration of my nieces graduation from college and my sons birthday, as we did not celebrate last year due to covid. My husband himself has seen work friends for lunch, and I have gone out with a friend who move to Florida and came home to…[Read more]

My greatest challenge has been to not give up and walk away some days. I know that may sound selfish.. but there are days when I ask myself how much more can I take? And these are when he is on his pity party days, I am going to die soon days, I can’t take this anymore days. When he refuses to try, to exercise, do for himself, act like he cannot d…[Read more]

Hello all!!!
it’s all overwhelming at times. Add myself with migraines (and lots of bad weather lately)  and a senior dog with health issues that my husband absolutely loves but can no longer walk, or get on the floor to pet, ( she is a beagle, who had double ACL surgery legs and hip bother her so she likes to sit making it hard for my husband to…[Read more]

My husband did purchase something after I purchased something for his socks.. I will snap a pic of it.. he so rarely wears socks but when he does he use the sock helper.. I have to dig it out.. it’s summer now.. LOL.. I got mine from the The wright stuff.com they have all kinds of neat stuff. I did purchase a non slip tray from QVC.. it’s a tra…[Read more]

My husband has been taking turmeric also for years as a supplement for pain. Now he has read that the supplements helped with Parkinson’s as well. I read the same article and like you I could not find any essential oils either. So he still takes the supplement.  I take them as well, I find them helpful as Advil bothers my stomach at times. I wi…[Read more]

Hello Ally,

I am hoping for a getaway with my sister.. but I worry about going, our senior dog is continually getting on his nerves.and. but in the same breath he would be devastated if she were to pass, and I am the caretaker of the dog. So his annoyance annoys me. My son is here, and he is a great help. So I do have help in that way.. so a two…[Read more]

Well today is a perfectly good example of how covid has impacted me as a caregiver.. I generally getaway with my sister for a long weekend. No trip last year.. 😔 and now I am in a rut of not hardly ever leaving the house. So I am in a bad headspace. I took a nap and had seriously weird dreams that were so real, I told my husband it’s time to c…[Read more]

My husband started on 20 mg. Didn’t notice any change. The doctor prescribed 40mg about three weeks ago. I asked him just the other evening if he thought the nourianz was helping. Of course my timing was perfect. He was half awake, or half asleep. No one really sleeps in this house, and now we have an aging dog having accidents even after going o…[Read more]

I choose a calm time to discuss with my husband. If he has night terrors, there is usually something to laugh about.. because he curses like a sailor, and he never curses when awake, or one night called me something not so nice.. as he was flailing his arms and knocking things off his dresser next to his sleep chair. But I pick my battles. He…[Read more]

This has been on my mind so much the last week, as I become more and more resentful, angry, tired, annoyed, and whatever other adjective you use to describe my life these days. My husband was diagnosed 8 years ago,. And he was until about two years ago able to pretty much of everything. Now since some breakdown a year ago,  that was, thank god,…[Read more]