Marie

My husband was always a planner for retirement his whole working career.  Then at 48 bam, early onset hit.  So he shifted how his money earns, and we are pretty well set up. His mom had a will and it still went through probate. The attorneys are saying everything goes to probate these days due to relatives coming out of the woods to lay claim to a…[Read more]

I have not noticed any real difference in my husbands who has Parkinson’s and had Covid pneumonia and was in the hospital for a week. It was a good three months until he was back to himself, but I had a mild case, and I am forever tired, with brain fog.. which I get anyway from migraines. Just more often I feel it, these days.

Absolutely not!!! @Cynthia Ball I am so sorry for your husband after both shots. My friends dad had the shot, got a clot, then surgery, then passed. However, her dad also check himself out of the hospital AMA, didn’t do stated exercises. But I would have waited on a knee replacement if I had a clot after getting the shot. No one in my house got t…[Read more]

Our other two beagles didn’t do this.. but he cracks us up. And come 8pm him me and my husband cannot sit in the same room together. It has to be one on one.. he sits or sleeps nicely s when it’s one of us.. but together, he is a ball of energy no matter how much run time he has had outside!

This silly dog we rescued… our third beagle. He is like our other beagles in many ways, but as our others, also different. He buries his “bones” dog treats. First he did this outside, now he looks for places around the house  to bury it. And about a week later he “digs” it up to eat it. Natural dog instinct to bury. Our other dogs didn’t hav…[Read more]

Hello Omer!

Welcome! How awful to get covid after traveling, and I hope you had a nice visit to the states. My husband has been diagnosed with Parkinson’s for 10 years I believe, is on carbadopa L-dopa, 2 kinds, one is fast acting, one is time released I believe. He is also on a neurpo patch, which he believes does nothing and something else t…[Read more]

Well, this is more anecdotal as of June, than Parkinson’s related which is horrible. My husband takes lexapro (generic) for his night terrors. If he takes too late or falls asleep too soon well,  he may take out his whole sideboard of meds, drinks, remotes, fling a remote, his pillows that he uses to prop up his arms and slides down his chair. Or…[Read more]

We rescued a beagle on June 4, after our beagle of almost 12 years succumbed to kidney disease.  The house was so quiet without Lucy.  She was so sweet, she never ever went upstairs, so when her water dish was empty she would bark from the kitchen. My husband and I would always say, it was her way of saying “hey, I’m thirsty over here.”  Or sit…[Read more]

I had a beagle that came with me from my first marriage. My husband fell in love with Snoopy. However when he passed suddenly from kidney disease it took us many years and a spur of the moment purchase to get another beagle. She passed last November after 11 years.  We, me, my son and the hubby were missing a dog. Mind you I am the caregiver for…[Read more]

Yes, count me in!!! Late afternoons, evenings eastern United States time is good for me!!! Great idea!!!!

Yes, we take magnesium here.. but make sure it’s the magnesium oxide, not citrate.. my husband takes it daily. And I take if I have not had enough steps because I get restless legs. And potassium as well. My husband does not have much cramping, but I make sure he has the magnesium every day.

All the meds are down in our kitchen, his and mine (expect for when I managed to get covid in January I brought mine to the upstairs bedroom for a time and I have kept some there) but I actually set up his daily meds. And we use empty prescription bottles of different sizes for the time of day and what meds are needed when. I use skinny ones for…[Read more]

My husband was having erectile issues before he was diagnosed. And I read in article from here or another Parkinson’s source I get emailed, that ED early on could be a precursor to Parkinson’s. And then diagnosis at 48. So for us along the way we have had issues. Not to mention I lost my desire along the way. We still have moments of intimacy, her…[Read more]

I got my husband four kinds of puzzle books for Christmas. Still has not looked at a single one.. another gift gone unused…

No. No one in my house has had the vaccine. My doctor told me no due to an allergy, my son refused due to his age group, and my husband who is the pd person in the house, said no.

When my husband was diagnosed almost ten years ago, and we needed a new mattress, we got a sleep number. A queen not the one that goes up and down separately but does go up and down. So when choosing, we chose a temper top (I do not think that is the word, I have brain fog from a migraine) maybe mattress topper. Thinking it would be better as his…[Read more]

I live on Long Island, NY. In a town that loves fireworks ALL year round. Most of the town loves it, the dog owners hate it. I am part of the second group. Love, The End part of the island, Montauk.

Nope~ it’s bad enough I feel our phones, tablets and tv’s are listening in on everything we say.. I never enable Alexa on my car (just noticed it the other day) or phone or anywhere. Rely on my feeble brain, it works about  80% of the time, I never know what day of the week  it is.. and I use my phone calendar heavily.

I was wondering, AK, was your RA diagnosed after your Parkinson’s? My husband’s joints hurt worse than ever, and he just has a lot of pain.. he saw one rheumatologist, who told him he didn’t have RA. But I am wondering if he should see a different doctor.