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Marie replied to the topic Do you have any pets? in the forum Living With Parkinson's Disease 1 week, 3 days ago
We rescued a beagle on June 4, after our beagle of almost 12 years succumbed to kidney disease. The house was so quiet without Lucy. She was so sweet, she never ever went upstairs, so when her water dish was empty she would bark from the kitchen. My husband and I would always say, it was her way of saying “hey, I’m thirsty over here.” Or sit…[Read more]
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Marie replied to the topic Service Dogs and Emotional Support Dogs for People with PD in the forum Living With Parkinson's Disease 1 month, 1 week ago
I had a beagle that came with me from my first marriage. My husband fell in love with Snoopy. However when he passed suddenly from kidney disease it took us many years and a spur of the moment purchase to get another beagle. She passed last November after 11 years. We, me, my son and the hubby were missing a dog. Mind you I am the caregiver for…[Read more]
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Marie replied to the topic Care Partners/Givers Interested in Support Group in the forum A Forum for Parkinson's Disease Caregivers 4 months, 3 weeks ago
Yes, count me in!!! Late afternoons, evenings eastern United States time is good for me!!! Great idea!!!!
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Marie replied to the topic Magnesium and Cramping in the forum Diagnosis Information and General Questions 6 months ago
Yes, we take magnesium here.. but make sure it’s the magnesium oxide, not citrate.. my husband takes it daily. And I take if I have not had enough steps because I get restless legs. And potassium as well. My husband does not have much cramping, but I make sure he has the magnesium every day.
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Marie replied to the topic How do you store your medication? in the forum Living With Parkinson's Disease 6 months, 1 week ago
All the meds are down in our kitchen, his and mine (expect for when I managed to get covid in January I brought mine to the upstairs bedroom for a time and I have kept some there) but I actually set up his daily meds. And we use empty prescription bottles of different sizes for the time of day and what meds are needed when. I use skinny ones for…[Read more]
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Marie replied to the topic Sex and intimacy with Parkinsons? in the forum Living With Parkinson's Disease 6 months, 1 week ago
My husband was having erectile issues before he was diagnosed. And I read in article from here or another Parkinson’s source I get emailed, that ED early on could be a precursor to Parkinson’s. And then diagnosis at 48. So for us along the way we have had issues. Not to mention I lost my desire along the way. We still have moments of intimacy, her…[Read more]
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Marie replied to the topic Do you like puzzles? in the forum Diagnosis Information and General Questions 6 months, 2 weeks ago
I got my husband four kinds of puzzle books for Christmas. Still has not looked at a single one.. another gift gone unused…
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Marie replied to the topic Will you take the Covid-19 booster when it's available? in the forum Coronavirus (COVID-19) and Parkinson’s 7 months, 2 weeks ago
No. No one in my house has had the vaccine. My doctor told me no due to an allergy, my son refused due to his age group, and my husband who is the pd person in the house, said no.
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Marie replied to the topic Best Mattress for PD? in the forum Living With Parkinson's Disease 7 months, 2 weeks ago
When my husband was diagnosed almost ten years ago, and we needed a new mattress, we got a sleep number. A queen not the one that goes up and down separately but does go up and down. So when choosing, we chose a temper top (I do not think that is the word, I have brain fog from a migraine) maybe mattress topper. Thinking it would be better as his…[Read more]
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Marie replied to the topic Where do you live? in the forum Diagnosis Information and General Questions 8 months, 2 weeks ago
I live on Long Island, NY. In a town that loves fireworks ALL year round. Most of the town loves it, the dog owners hate it. I am part of the second group. Love, The End part of the island, Montauk.
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Marie replied to the topic Do you use Alexa or Google Home devices? in the forum Living With Parkinson's Disease 8 months, 2 weeks ago
Nope~ it’s bad enough I feel our phones, tablets and tv’s are listening in on everything we say.. I never enable Alexa on my car (just noticed it the other day) or phone or anywhere. Rely on my feeble brain, it works about 80% of the time, I never know what day of the week it is.. and I use my phone calendar heavily.
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Marie replied to the topic Parkinson's and Rheumatoid Arthritis in the forum Living With Parkinson's Disease 9 months, 3 weeks ago
I was wondering, AK, was your RA diagnosed after your Parkinson’s? My husband’s joints hurt worse than ever, and he just has a lot of pain.. he saw one rheumatologist, who told him he didn’t have RA. But I am wondering if he should see a different doctor.
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Marie replied to the topic Have your urinary patterns changed? in the forum Parkinson's Disease Symptoms 10 months, 1 week ago
My husbands certainly have. It is usually when he has first taken his meds and until they take effect, mind you he takes them five times a day,, so sometimes in the middle of the night we meet coming and going into the bathroom .. and if he has a doctors appointment or if on the rare chance we go out, he delays taking them so he does not have to…[Read more]
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Marie replied to the topic Advice for caregivers? in the forum A Forum for Parkinson's Disease Caregivers 12 months ago
I do want to give an update, we are having a somewhat better august. We did enjoy two family events, the celebration of my nieces graduation from college and my sons birthday, as we did not celebrate last year due to covid. My husband himself has seen work friends for lunch, and I have gone out with a friend who move to Florida and came home to…[Read more]
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Marie replied to the topic What has been your greatest challenge as a caregiver? in the forum A Forum for Parkinson's Disease Caregivers 12 months ago
My greatest challenge has been to not give up and walk away some days. I know that may sound selfish.. but there are days when I ask myself how much more can I take? And these are when he is on his pity party days, I am going to die soon days, I can’t take this anymore days. When he refuses to try, to exercise, do for himself, act like he cannot d…[Read more]
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Marie replied to the topic overwhelming as a caregiver in the forum A Forum for Parkinson's Disease Caregivers 1 year ago
Hello all!!!
it’s all overwhelming at times. Add myself with migraines (and lots of bad weather lately) and a senior dog with health issues that my husband absolutely loves but can no longer walk, or get on the floor to pet, ( she is a beagle, who had double ACL surgery legs and hip bother her so she likes to sit making it hard for my husband to…[Read more] -
Marie replied to the topic Have you tried any devices that help with Parkinson's symptoms? in the forum Diagnosis Information and General Questions 1 year ago
My husband did purchase something after I purchased something for his socks.. I will snap a pic of it.. he so rarely wears socks but when he does he use the sock helper.. I have to dig it out.. it’s summer now.. LOL.. I got mine from the The wright stuff.com they have all kinds of neat stuff. I did purchase a non slip tray from QVC.. it’s a tra…[Read more]
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Marie replied to the topic Turmeric in the forum Diagnosis Information and General Questions 1 year ago
My husband has been taking turmeric also for years as a supplement for pain. Now he has read that the supplements helped with Parkinson’s as well. I read the same article and like you I could not find any essential oils either. So he still takes the supplement. I take them as well, I find them helpful as Advil bothers my stomach at times. I wi…[Read more]
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Marie replied to the topic Advice for caregivers? in the forum A Forum for Parkinson's Disease Caregivers 1 year, 2 months ago
Hello Ally,
I am hoping for a getaway with my sister.. but I worry about going, our senior dog is continually getting on his nerves.and. but in the same breath he would be devastated if she were to pass, and I am the caretaker of the dog. So his annoyance annoys me. My son is here, and he is a great help. So I do have help in that way.. so a two…[Read more]
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Marie replied to the topic Advice for caregivers? in the forum A Forum for Parkinson's Disease Caregivers 1 year, 2 months ago
Well today is a perfectly good example of how covid has impacted me as a caregiver.. I generally getaway with my sister for a long weekend. No trip last year.. 😔 and now I am in a rut of not hardly ever leaving the house. So I am in a bad headspace. I took a nap and had seriously weird dreams that were so real, I told my husband it’s time to c…[Read more]
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