Forum Replies Created

  • Don Bell

    Member
    October 28, 2022 at 2:27 am in reply to: Urinary and Bowell Movement problems

    For men with urinary problems my GP recommended 10 – 20 mg of Oxybutynin o.d.

  • Don Bell

    Member
    October 28, 2022 at 2:02 am in reply to: Neupro transdermal patch

    My Kaiser doctor recommended 4 mg patch for Restless Leg Syndrome (RLS) treatment and it is fair.  Sinemet is managing my Parkinson’s.    1 Tablespoon of Mannitol b.i.d. has controlled my shaking for + 3 years.

  • Don Bell

    Member
    April 4, 2022 at 8:31 am in reply to: Are you able to sleep through the night?

    Orexin inhibitors may help some insomniacs but have not developed much of a following.  Consumer Reports had a negative evaluation: https://www.consumerreports.org/cro/news/2015/07/skip-new-insomnia-drug-belsomra/index.htm

  • Don Bell

    Member
    March 29, 2022 at 6:14 pm in reply to: Are you able to sleep through the night?

    If Restless Leg Syndrome is a factor, try 1 – 4 mg Neupro patch.  It is good for 24 hours.   If you take Lipitor, be sure to take it at bedtime for it’s side effect of sleepiness!  A useful side effect of 12.5 – 25 mg Seroquel is staying asleep through the night.

  • Don Bell

    Member
    October 28, 2021 at 7:16 pm in reply to: Can exercise delay Parkinson’s progression?

    Does anyone have a suggestion for an exercise app created for Parkinson’s patients?

  • Don Bell

    Member
    October 1, 2021 at 1:31 pm in reply to: Mannitol Updates? Does it even taste sweet?

    I’ve been taking 1 tablespoon of mannitol from Amazon twice per day for a year and my left arm shaking has improved significantly and my voice has improved (stronger) a small amount.  To just remain stable when suffering a progressive disease is an improvement.

  • Don Bell

    Member
    May 29, 2023 at 5:17 am in reply to: Do you struggle with urinary control?

    In Parkinson’s patients Oxybutynin may worsen constipation problems.   Men over 60 need to rule out prostate BPH as a factor   Your doctor can give you a Rx for once a day 4mg generic FLOMAX .  It is a cheap safe rule out that can work in a few days.

  • Don Bell

    Member
    October 7, 2021 at 5:18 pm in reply to: Mannitol Updates? Does it even taste sweet?

    There are no reports I’ve seen to suggest any problems with mannitol and carbidopa/levidopa.  A few patients have indigestion with higher doses.  I am taking 1 Tablespoon bid.