D Doenges

Visual hallucinations, no.  Tactile hallucinations, yes (formication), around face and neck, particularly bothersome when trying to go to sleep.  While asleep, 20 to to 35 times a night I will by scratching and rubbing the creepy crawlies (with a Wyze cam triggered by movement or sound, I capture my RBD episodes as a way to quantify results from meds).

For many years I had RBD did not know it.  Sister-in-law told me to see a neurologist.  Summer of 2019 I saw a neurologist and had a sleep study + I failed a smell screen (not test).   Afterwards I enrolled in the NAPS study, switched neurologists, and did the NAPS testing.

Failed all sniff tests, DAT scan showed slightly decreased binding of rad…[Read more]