Forum Replies Created

  • christine-pratt

    Member
    December 2, 2022 at 11:12 am in reply to: Tolcapone (Tamar)/Unpredictable OFF periods

    To minimize Dyskinesia I use Amandatine.  It works well for me.

  • christine-pratt

    Member
    March 17, 2022 at 3:26 pm in reply to: worsening freezing Gate issue.

    I do the same thing!!  And I also found that putting something the floor helps me raise my feet to step over and if I do this for a few steps it helps me get back to a normal gait.

  • christine-pratt

    Member
    January 11, 2022 at 3:50 pm in reply to: How do you manage freezing episodes?

    I find that if I can change position and move my upper torso I can get out of the freeze.   Sometimes I throw something on the ground so I have something to step over.   I have used a wadded-up paper towel or a shoe.  A funny story – once I froze in a store after buying a package of M&Ms.  I threw the M&Ms to the floor to step over but before I got going someone picked the M&Ms up thinking I had dropped them.   They were surprised when I threw them down on the floor again but we had a good laugh.  At other times I will twist from left to right at the waist to loosen up my hips.  Another trick is to breath in and breath out hard as I take a step forward.  I make the decision of what to use based on where I am and what comes to mind.   What I find hard to deal with are people who run up and want to help – does anyone have any good responses to this situation?  Having someone I do not know trying to “help” me makes me very uncomfortable.

  • christine-pratt

    Member
    January 7, 2022 at 3:29 pm in reply to: Do you have theories about why you have Parkinsons?

    Before I was diagnosed with PD a friend pulled me aside and told me he thought my job was “killing” me. I had sharp pain in my left shoulder for almost two years and this caused my left arm to not swing when I walked.  I believe the “frozen shoulder” was the result of extensive high stress in both my personal life and with my job.  Being a Type A person I work hard, was in an office tied to a laptop often 10- 12 hours a day, had a very full personal schedule, slept little, ate junk food, took meds for cholesterol which caused my blook sugar to run high.  Constipation was a constant problem.   Basically I pushed myself hard.  I tried acupuncture to reduce stress and my shoulder pain but it only worked for a short-time so I was sent to physical therapy.  The physical therapist is who told me to see a neurologist. This is when I was told I had PD but I never had any test other than when I was given levodopa the symptoms improved.   I think the cortisol which results from stress burned out my brain and reduced my dopamine production.  I am not sure if levodopa helps or causes some symptoms.  I have been treated for PD for over 7 years but in the last couple months my doctor added Amantadine which has helped a lot.  This a type of flu med which is supposed to minimize inflammation.  Not sure where this will go.  My version of Parkinson’s is all about gait/mobility issues.  My focus is on limiting anything that creates cortisol and increasing anything that increases dopamine.   Does this sound familiar to anyone??