[caroline-harris]

how do I rejoin using a different email address.  I don’t seem to be able to change my profile with my current address 

[caroline-harris]

The video YouTube is

“Falls and Balance Issues in Parkinson’s Disease: When, Why & How to Treat”
Dr. William Dauer

[caroline-harris]

Exactly Robert!  My husband tries counting but I cannot seem to focus on his words and my walking. With the exception of a straight away path with no turns or narrow openings. I recently tried an app (metronome) but still experiencing the same issue of concentrating on steps and having auditory input.   Visual cuing is another strategy-lines taped to floor or tile blocks if you have in your home. Laser shoes have been recommended but expensive and unattractive. There are laser lights you can buy and attach to the front of your shoes
I am thinking about purchasing some  ..

and a

[caroline-harris]

Yes ditto that. This is the most debilitating symptom which worsens with anxiety.  Slurred speech seems to accompany my freezing and am having many falls. End of effectiveness of meds. ? New cycle doesn’t help.
I’m usually stuck in this pattern once it begins( takes over my body and mind)

My neurologist says it’s most difficult symptom to treat
Not dopamine but a different

There is a great webinar on this topic but I am not finding it

I was diagnosed in 2014.

[caroline-harris]

Yes I was prescribed Amantidine. Unfortunately I had the side effect of splotchy- skin- arms and legs.  Looked a little like rash and left white spots that I thought would never go away. It did but took half a year or so. It didn’t hurt or itch and not sure it did augment my Levadopa treatment or not but my neurologist took me off. I’m using Comtan now

hopefully you don’t have side effects

[caroline-harris]

Also thanks for your research reviews. That drives me crazy so love it when others can read & interpret for me

sorry for incorrect spelling  “Inbrija”-is correct

[caroline-harris]

Thanks Russell for your post. Yes , I have already discovered no magic in these “rescue meds” or newer versions of Levadopa. Inbrigio has not really done much for me. My<span class=”a-size-base a-text-bold”> neurologist did give me an honest assessment of  Rytary and inhaled version – Inbrigio. No silver bullet.
I have a significant copay for both drugs under my Medicare insurance </span>

Rytary/$190 for 90 day supply

inbrigio /33%of cost @$325

Discouraging but at least they are coming up with options.

It is interesting to hear other people’s experiences in different regions of the world.

[caroline-harris]

I was diagnosed @6 years ago and have taken CR Sinemet for 3 years now. First started with bedtime to help start in morning. Then 3 times during day at same time as IR. Now I have more off times and gait/balance issues as well as freezing and falling. Dyskinesia started about 6 months ago which can be caused by too much Levadopa   Just had another appointment with my neurologist and she wants me to reduce the CR which is not as effective as IR. Every 3 hours I am taking Sinemet and Entacapone   Also, would make transition to Rytary easier if that’s what I want to do. Also using inbrijio- not much success.  After 4 days not going so well but trying to give it a chance   Of course stress makes symptoms worse  An endless guessing game ……