@carolinejames
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Caroline James posted a new activity comment 2 months, 2 weeks ago
I’m horrible with this website so I’m hoping this reply makes it back to the person who commented on my question. We have already had 4-5 neurologists. That’s also frustrating. Blepharospasms affect only 10% of PD patients from what I understand, so I just don’t think it gets as much attention. Having said that it’s so debilitating and it should…[Read more]
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Caroline James replied to the topic Do you use adaptive clothing or equipment? If so, which items are among your favorite and why? in the forum Living With Parkinson's Disease 2 months, 3 weeks ago
My husband was diagnosed 7.5 years ago. In the last several years he is having trouble with blepharospasms…not being able to keep his eyes open. He has been receiving Botox shots around both eyes. He has also tried Dysport. Both only last 3-4 weeks. Medicare only covers these shots every 3 months. To pay out of pocket in between times would co…[Read more]
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Caroline James became a registered member 5 months, 1 week ago
I’m horrible with this website so I’m hoping this reply makes it back to the person who commented on my question. We have already had 4-5 neurologists. That’s also frustrating. Blepharospasms affect only 10% of PD patients from what I understand, so I just don’t think it gets as much attention. Having said that it’s so debilitating and it should…[Read more]