Biography

Name

CARLOS

Nickname

carlos

Year of Birth

1950

Gender

Male

Location

BRAZIL – Manaus

Relationship

Patient

Short Bio

My name is Carlos Probst, I am 73 years old and live In Manaus, the capital of the Brazilian Amazon. I transformed my story with PD into a musical story, that I called “JAMES”.

James is a theme album about 10 years of life with Parkinson’s disease. It starts with the first symptoms which appeared during a period of full professional and sporting activity. It then passes through various stages until the present day (2023), when my body is very debilitated, but my heart is beating soundly and my mind is ready to keep the flame burning.

Depression, caused by my having an incurable disease, led me to think that there was nothing left in life, except to wait for a painful, melancholic end. Fortunately, a revelation showed me that there were many good reasons to continue my fight for life. The idea came to me to share my experience with other people who were suffering from Parkinson’s. I would use a musical form; composing and producing a theme album about how I succeeded in motivating myself to continue the fight.

To successfully complete this project, I needed a place close enough for me to avoid difficulties with travelling. So, I decided to turn one of the rooms in my house into a musical studio. All the recorded tracks were made in this studio.

The 12 tracks reflect my sentiments during various phases of my illness: my life before diagnosis and how my sentiments changed with time

How did you hear about us?

Parkinson's News

How long have you or the person that you are caring for had PD?

10 YEARS

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