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Dave

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@cannabist

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    Dave replied to the topic Restless Legs Syndrome (RLS) in the forum Parkinson's Disease Symptoms 3 years, 1 month ago

    Hi.

    A Cautionary tale. Be very careful with any Agonist. It stimulates a receptor that also causes OCD,(Gambling, shopping, etc.) It can also lead to mood swings.  I know 3 others who had similar reactions. Anyone taking these meds should let who ever is helping them, know about these behavioral changes and monitor you. This can be very…[Read more]

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    Dave replied to the topic Is anyone using INBRIJA, a new nasal delivery system for Levadopa in the forum Parkinson's Disease Medications 3 years, 1 month ago

    Hi All,

    I am finding this a good product, however this delivery system sucks (no pun intended. 20% the time I cough They say if you cough it up, use a new capsule. That’s great for them, but 1 1/2 hits seem to work fine.

    TaTa

     

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    Dave replied to the topic Is anyone using INBRIJA, a new nasal delivery system for Levadopa in the forum Parkinson's Disease Medications 3 years, 1 month ago

    Let me make 1 correction. This is an oral inhalant. One puts a capsule into a sleeve and puncture it with the cap.. Then breathe in. There is a fan inside.

    I’m finding it difficult to control coughing. you’ve got to relax the cough reflex and inhale slowly.  I must say though that the drug seems to work well and helps me get my legs moving in…[Read more]

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    Dave replied to the topic Is anyone using INBRIJA, a new nasal delivery system for Levadopa in the forum Parkinson's Disease Medications 3 years, 1 month ago

    Keep asking your doc for for Samples.

  • Profile picture of Dave

    Dave replied to the topic Is anyone using INBRIJA, a new nasal delivery system for Levadopa in the forum Parkinson's Disease Medications 3 years, 1 month ago

    Greetings again,

    I received my sample INBRIJA  package Saturday.  I used it twice Sunday and once this morning. First account, seems to make a difference;peppier and my legs don’t ache.

    Weird ingenious device. A capsule of powder is placed in a sleeve. you prick the capsule and inhale the powder. It is tricky to figure the amount of breathe to i…[Read more]

    • Profile picture of Mary Beth Skylis
      Mary Beth Skylis replied 3 years, 1 month ago

      Dave, I’ve heard that people have gotten good results from the INBRIJA. Does it act more quickly than other options?

  • Profile picture of Dave

    Dave started the topic Is anyone using INBRIJA, a new nasal delivery system for Levadopa in the forum Parkinson's Disease Medications 3 years, 2 months ago

    It’s for bad OFF periods. I saw an ad for This new drug and asked my Dr about it. It’s fairly new. Has anyone been using it?

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    Dave became a registered member 3 years, 2 months ago

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      replied 3 years, 2 months ago

      hi dave
      Welcome to the forum! I am one of the moderators, diagnosed in 2015 at age 61. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic:

      – Dave (@cannabist) November 13, 2019

      This article has descriptions with direct links to each of…[Read more]

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