Forum Replies Created

  • bill-frohberg

    Member
    February 2, 2024 at 6:56 am in reply to: Medical cannabis, have you tried it?

    I had my wife try a THC gummy. Only gave her 25mg. It stopped her hand tremors, but she didn’t like the buzz.

  • bill-frohberg

    Member
    October 28, 2022 at 7:19 am in reply to: Neupro transdermal patch

    My wife has gone from the 2mg up to the 8mg patch.  Combined with Amantadine.  The patch seems to help a little.  No great relief from the hand tremors.

  • bill-frohberg

    Member
    March 21, 2022 at 11:35 am in reply to: Care Partners/Givers Interested in Support Group

    Count me in.  My wife was diagnosed with PD in 2012.  Not what she needed – adding more misery to the Crohn’s disease she has had for 30 years.  We have a local PD support group, but received a harsh response speaking to the person running it.  Cindy has tried almost every med and all kinds of homeopathic products to help her.  When I mentioned the “M” word (marijuana) this guy blew a gasket, and said it’s illegal in our state and we don’t condone the use of that.  I replied, if you’re against a substance (even though illegal) that would help alleviate the pain and make her feel more comfortable – your group is not what we are looking for.

    Please keep me posted when you start up.  Sounds like there could be some good insight. Especially for a cargiver.

  • bill-frohberg

    Member
    December 9, 2021 at 2:25 pm in reply to: Back pain or neck pain: Anyone else suffers from this?

    My wife went to our Chiropractor for a month about everyother day. Now she just goes a couple times a month for a tune up. She’s been doing well and he helped alleviate the lower back pain.

  • My wife was diagnosed 11 years ago with PD.  She is using the oversized handle eating utinsils, drinking mugs with a top and straw.  Some days her hand tremors make it difficult to eat.  Tried a Redi Stedi glove – too heavy, too cumbersome. PT gave her hand excercises, big loud excercises, and some plyable putty (stiffer than Silly Putty) and foam blocks for hand strengthening.

    Been through a myriad of supplements, accupuncture, chriopractic, pharmaceuticals – none of which worked for her.  But don’t give up, something may work for you.  The most promising device I saw was from Microsoft – called Project Emma.  It was a watch that produced a rythmic vibration that counteracted hand tremors. It was about 4 years ago and I can’t find any information if this was ever pursued.  I found two of the project developers on LinkedIn, sent a request for more info and never heard back.

    Keeping our optimism, trying anything for relief, but researching any product before using.

     

  • bill-frohberg

    Member
    April 8, 2021 at 9:02 am in reply to: Have you tried CBD oil?

    My wife uses it. No effect on the PD, but she has Crohn’s disease, and has helped her gut feel better. Her gastro Dr was appalled. I suspect because it would be a hit against big pharma.

  • bill-frohberg

    Member
    March 5, 2021 at 9:41 am in reply to: Do you cook certain meals for your Parkinsons patient?

    Not only does my partner have PD, but was diagnosed with Crohn’s disease 35 years ago. She enlisted a nutritionist (NP) who believes the Parkinson’s meds are not being absorbed properly. She recommended several supplements to help, along with a special diet of only meats, fish, veggies, fruits. Avoiding fats, dairy, sugar and carbs. It is a challenge cooking and I’m trying to be creative. I know she misses cakes, cookies and ice cream – so do I! We’ll see if there is any improvement in the coming months.

  • bill-frohberg

    Member
    March 2, 2022 at 5:17 pm in reply to: overwhelming as a caregiver

    Blanche, thanks for your post.  I know exactly how you feel.  My wife was diagnosed 11 years ago and a very slow decline.  Tried a lot of meds, seems Neupro patch and amantadine work the best.  She has really bad tremors – started in her hands and now she feels it in her body.  She won’t consider DBS.  The double whammy is she has Crohn’s as well.  She’s really depressed, but willing to try anything.  Does her excersises, and keeps hope alive.  But recently become very demanding, and developed the “woe is me” attitude.

    I know how you feel. I retired after 45 years of industrial sales.  Looked forward to travel, golf trips, and home improvements.  I felt cheated, thought to myself – worked my butt off all those years for this?  I got proactive, went to counseling, read a lot of these posts, read articles about new treatments, even contacted doctors starting trials.  Also renewed my faith, shared my story at church and enlisted the prayer warriors.

    Deep down I love this lady, and accepted the fact, that this is God’s plan for me.  Just trying to keep posistive and keep her safe and comfortable.