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My relationship with John pre PD, was wonderful. He was and still is my best friend, although the PD has robbed him of his smile, his sense of humour, his empathy and sympathy and much of his ability to express his emotions. John’s symptoms are mainly non-motor although his walking, balance and mobility is beginning to show changes…[Read more]
I can relate to both sleep deprivation and the anxiety of trying to be aware of what my husband is doing and where he is. I very rarely have time to myself, we don’t chat anymore about ordinary things like ordinary couples.. all topics are based around him and or Parkinsons. My husband was diagnosed 2 years ago. In this for the long haul.…[Read more]
The hardest part is finding a way of communicating with John that there are some things that are not safe for him to do anymore. Eg. Climbing on step ladders. Fixing things around the home Eg electrical items. He no longer lays the table for dinner, he gets simple tasks jumbled up, he has problem dressing himself.. So why would I want him to climb…[Read more]
Feeling sad and weepy today. I do most days.
John thinks he can still do everything as he used to. Do I tell him he can’t or let him try and watch him get frustrated with the task, himself and ultimately me. I just want a happy peaceful life for us together. I care for him gladly, but I am heartbroken.
Newbee carer struggling to communicate with my husband. Most of his symptoms at the moment are nonmotor. I have read and researched the symptoms but reading about it doesn’t prepare me for the reality. I try to support him in things he wants to do but watching him and listening to him struggle breaks my heart a bit more than it is each…[Read more]
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