George Kapetanakis
Forum Replies Created
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I had my operation done about three years ago in a six-month span. I am off Sinemet and for the most part no other medication. I am always trying new supplements with no much success. Although I had a little luck lately.
The latest being Bacillus Subtilis, which helped me with my constipation a lot and now I am trying Butyrex which seems to help a lot with the same issue. For now, I’m taking one pill of Bacillus and two of by Butyrex. Soon I’m planning on going to Butyrex alone and slowly increase the dosage.
Still, I think it’s time to see my Neurologist for some adjustments on the settings. Due to COVID-19 I was not able to see her for almost ten months and since there was no urgency I opted no to.
I would say my DBS was no cure but a big improvement overall. GLTA
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Thanks David
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I would be interested to find out too.
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Ya sou Jean. Thanks and good luck with everything. You will be missed.
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Pan Metron Ariston as they used to say in Ancient Cyprus, which is Greek for “Everything in Moderation.”
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Every four months but might stretch it to six months, soon.
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Thank you Jean.
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George near Boston. Originally from Macedonia Greece.
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Hi guys.
Before my DBS I was at one and a half pills three times a day. My life was miserable and I had Dystonia, Dyskinesia and a list of other ailments due to PD. In the beginning, Sinemet was really beneficial to my symptoms. In the end, my On-Time was much worse than My Off-Time. If that makes sense.
After my DBS I was down to one pill three times a day. A fifty percent reduction. Still six months after my second operation I came down with much worse Dyskinesia that was so bad that I had to be hospitalized for three days. I was falling all the time and I could not stop my right arm from moving. My neurologist was at a loss. My DBS up to that point was working fine. Even though my right side was much more successful than my left side. What to do now.
She played with the settings a little and I dropped Sinemet altogether.
It’s been over eight months since then and I have to report that “No Sinemet” is the best medicine or supplement. For me anyway. Because we know that PD is different for everyone.
Like most of you, I do experiment with different supplements. I do take on a daily basis vitamin D, Omega, B-Complex, Magnesium and if with the right food a glass of wine or beer.
I still have PD and it is progressing but I feel so much better than two years ago. DBS, although not perfect, really worked out good for me. -
Every four months
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Hang in there, guys. There is so much more hope now than even three or four years ago.
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Stress is a killer.
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Ha
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Yes, it is. There was an article about it on the Cure Parkinsons Fund. They are in England. It sounded very interesting. As for the Magnesium, I hope it’s not a placebo effect but it makes me feel better.
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Hi, Jean. What I take is Magnesium L-Threonate. One pill in the morning and one at night. Next week I will double that per their suggestion. I will keep you posted.
By the way. Have you heard of Ambroxol? -
Great. I hope it works. Soon. There is so much on the research front that I am getting lost. By the way. I think magnesium does help.
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Ya sou Jean. America is everywhere. In good ways and bad. Especially in a European country that has so many ties with its Greek communities in the States.
Yes, I would love to move back but for the time being, I’ll be happy with longer vacations.
Until then we can dream about those beautiful turquoise waters and watch some youtube, every now and then.
Time for a good walk. It’s a very nice day outside today in New England.
Ya sou again. -
HI, jean. I think number one would be the “traditional” Mediterranean Diet and lifestyle. Another big attribute would be the size of the community. Small villages and islands do fare better. Even traditional greetings like hello or good buy are said with a simple “ya sou” which would translate to “your health.” So, Ya Sou, Jean.
P.S You could go to youtube and check out Ikaria ” Greek Island Fountain of Youth.”
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More than that Jean. It’s a place where people live longer with less Parkinson’s.
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I used to but I still have relatives there so, I can go visit in the summers.
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The beautiful turquoise waters of the Aegean Sea in Greece.
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Great Jean and please update us on what you think works out better for you from that list of supplements. I am going to try L-Serine for myself and Magnesium L-Threonate as well. I could keep you guys posted on how that develops if you want me to.
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I know but some things do work. Like DBS. At this point, you’ve got almost nothing to lose.
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That was news to me. Very interesting, though.