I knew something was wrong in 2004. We had just bought a house and I was busy fixing all the things that needed fixing before we moved in. We always put a lot of sweat equity into our homes, and I was on my knees screwing down squeaky subfloor and thinking, “This is a lot harder than the last time I did it.” I was having trouble keeping the screwdriver bit in the screw. Other little problems showed up as I worked on that house and I decided at that time that I had some sort of neurological disorder, but I wasn’t going to do anything about it until it got a little more serious. The symptoms were so subtle I didn’t think any doctor would take me seriously.
In 2005 I was building kitchen cabinets. My wife said it looked like I was going in slow motion. In 2008 I was building a teardrop trailer and again I moved in slow motion. By this time I I could no longer wiggle my toes and my left arm, when I would wake up in the morning, behaved like someone else was controlling it. I couldn’t get it to do what I wanted until I had been up for a few minutes. I struggled to put on gloves.
I started reading up on neuro disorders and by 2009 was convinced I had PD, but I had a bad shoulder that needed replacing and I was intent on getting that done before I got a PD diagnosis. I didn’t want to take a chance that I could not get the shoulder replaced due to some other problem. I had lived with that shoulder for 25 years and wasn’t taking no for an answer. When I came out of surgery with a total shoulder replacement I had a tremor in my right foot. I learned later that certain things, such as implanting metal in the body or serious trauma, cause a sudden increase in PD symptoms. By the end of 2011 I had my PD diagnosis and started on meds.
I don’t regret having the shoulder replaced, nor do I regret back surgery ten years later, but both of those events accelerated my PD symptoms dramatically. Getting the diagnosis was nothing because I already knew I had PD. I am fortunate to have good doctors and a supportive wife. They keep me going.