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  • Your Diagnosis Story

    Posted by martysl on May 26, 2024 at 2:36 pm

    Hello. First time poster here. I was hoping that you might be willing to share your diagnosis story with me. Maybe some questions for inspiration: Who first diagnosed you? Did you know (or strongly suspect) you had Parkinson’s before your doctor? Did it take multiple visits to be diagnosed? Were you misdiagnosed first? What kind of tests did it take for your doctor to diagnose you? Did you show up with a history of your symptoms, or did you just have a conversation with the doctor and let them sus out what was going on with you?

    I did try and search the forums for such a thread, but didn’t find one. If there is one, could you point me to it, please?

    Thank you so much. I feel like I’m being so nosy right now, so if you do happen to reply, know that I really appreciate it.

    ~marty

    Lori DePorter replied 1 month ago 5 Members · 4 Replies
  • 4 Replies
  • rrr

    Member
    May 28, 2024 at 2:31 pm

    <div>
    </div><div>Diagnosed 2012</div><div>Earlier there were symptoms; micrographia, pill rolling, constipation.</div><div> A single pill of carbidopa levodopa 100 mg, instant release was returning a reduction of symptoms. This assured us that truly I was parkinson.</div><div>
    </div><div>For some the first five years are revealing. For me it revealed bad days ahead. </div><div>I fight Parkinson everyday. What I have learned is too much to exhibit herein. An important tool, a guide, do not change or add medications simply because you experienced a Parkinson symptom the previous night.</div><div>
    </div><div>

    .Your request for other discussion forum, answer:

    Parkinson’s Disease Support Group w/ over 10,000 worldwide members.

    Alamogordo,NM, United States.

    Administrator, I am – Roy Propsner.

    .No fee. No salesman.

    No subscription.

    Parkinson’s Symptoms Relief.

    Facebook group:

    Parkinson’s thiamine hcl

    https://m.facebook.com/groups/232260083958797

    Subheading:

    Parkinson’s Disease Support Group

    </div>

  • Robert Ruiz

    Member
    May 28, 2024 at 6:55 pm

    Hi Marty.

    I’m Robert

    There’s a few things that happened with mine. First I’m a combat veteran. I served in Iraq in 2004. Fast forward to 2016, I had lost my mother (to natural causes) and my youngest son to an accident. Both very traumatic and about 2 months apart…

    Soon after I start with a tremor in my right hand. My sons old brother noticed it first. He asked if I was okay. I didn’t much about it because it didn’t last long and it was that bad. Then it got worse.

    So I went to see a neurologist. She diagnosed me right away. Sent me in for a scan to make sure that’s what it was. She was concerned it was something worse. It was Parkinson’s.

    Having gone to Iraq in 2004 I did some investigation. I found out the base I was stationed at had been Sadam’s chemical manufacturing plant.

    I asked my neurologist if that could be the cause. She said it very well could’ve been. She wrote me a note saying so. I sent that along with all the articles I found in my investigation to the VA and filed a claim. It was approved without any denials. I now receive 100% disability.

    I have rigidity in my right foot and a pretty bad tremor in my right hand as well. On the good side I’m set to have DBS surgery on Friday.

  • Sherman Paskett

    Member
    May 30, 2024 at 6:18 pm

    I knew something was wrong in 2004. We had just bought a house and I was busy fixing all the things that needed fixing before we moved in. We always put a lot of sweat equity into our homes, and I was on my knees screwing down squeaky subfloor and thinking, “This is a lot harder than the last time I did it.” I was having trouble keeping the screwdriver bit in the screw. Other little problems showed up as I worked on that house and I decided at that time that I had some sort of neurological disorder, but I wasn’t going to do anything about it until it got a little more serious. The symptoms were so subtle I didn’t think any doctor would take me seriously.

    In 2005 I was building kitchen cabinets. My wife said it looked like I was going in slow motion. In 2008 I was building a teardrop trailer and again I moved in slow motion. By this time I I could no longer wiggle my toes and my left arm, when I would wake up in the morning, behaved like someone else was controlling it. I couldn’t get it to do what I wanted until I had been up for a few minutes. I struggled to put on gloves.

    I started reading up on neuro disorders and by 2009 was convinced I had PD, but I had a bad shoulder that needed replacing and I was intent on getting that done before I got a PD diagnosis. I didn’t want to take a chance that I could not get the shoulder replaced due to some other problem. I had lived with that shoulder for 25 years and wasn’t taking no for an answer. When I came out of surgery with a total shoulder replacement I had a tremor in my right foot. I learned later that certain things, such as implanting metal in the body or serious trauma, cause a sudden increase in PD symptoms. By the end of 2011 I had my PD diagnosis and started on meds.

    I don’t regret having the shoulder replaced, nor do I regret back surgery ten years later, but both of those events accelerated my PD symptoms dramatically. Getting the diagnosis was nothing because I already knew I had PD. I am fortunate to have good doctors and a supportive wife. They keep me going.

  • Lori DePorter

    Member
    June 9, 2024 at 3:05 am

    I have shared my journey. I am a former columnist. My column LIFE, LEMONS &LEMONADE is listed as an archived column. You can also find my story on my website http://www.Lorideporter.com.

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