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How has Parkinson’s changed the holidays for you?
It’s impossible for Parkinson’s not to affect every aspect of our daily lives and relationships, and the holiday season is no exception. How has living with PD or caring for someone who does affected your/your family’s experience during the holiday season?
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9 Replies
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As part of down-sizing into a new home we have reduced the amount decorations we are using in our house.
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Thanks for responding, Jim. How do you feel about that? Do you miss all of the decorations you used to put up or do you appreciate the less is more approach?
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It’s weird – I am in a room with people who love, support, and accept me for who I am, yet sometimes I feel lonely. It is as if I am looking down at a version of myself desperately wanting to find my former self, who is lost.
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Lori, I know this feeling. I’m sorry that you know it, too. Have you found that your Parkinson’s community helps to cure the loneliness at all?
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Hard time standing to talk to people. Couphing because I chocked is embarrasing. Being weak to walk very far.
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I’m so sorry that this is a reality. I know my dad relates to this description of Parkinson’s around the holidays. Do you find that you’re still willing to participate in social gatherings? Or do you prefer a more contained environment?
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I tell myself i am enough! And I am very comfortable with my PD PEEPS
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We used to have a house full on Christmas and other holidays. Now I’m very satisfied with only a few family over. I can handle that amount and enjoy the days. Whether it is PD or just age, I don’t really know but I do know I don’t have the energy for the intense holiday prep and activities I once had.
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Hi Karla, I hear ya. Who did you celebrate with this year?
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