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    • #18663
      Mary Beth Skylis
      Moderator

      A Parkinson’s diagnosis is scary for everyone involved. And sometimes it can be tough to navigate those fears. My Mom and Dad had shared the struggle of having a chronic illness before Dad’s PD diagnosis (2013), so they’ve been able to navigate the choppy waters like well-seasoned veterans. But it isn’t always easy. How did your partner respond to the diagnosis? Have you been able to find a supportive community?

    • #18908
      Argya Bayuaji
      Participant

      Hello Marry,

      Parkinson’s disease is indeed a frightening disease and many friends over the age of 40 begin to fear contracting Parkinson’s disease. In my life in particular, not everyone understands Parkinson, so I made an educational video for friends to better understand and at least understand briefly about Parkinson. I am now a member of the Parkinson’s community in my country, and I am the youngest in the community, besides making a simple podcast to educate Parkinson. I have a suggestion in this forum, maybe an online meeting can be held hehehe

      Best Regards

      Argya Bayuaji

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