This topic contains 1 reply, has 2 voices, and was last updated by  Lou Hevly 3 weeks, 4 days ago.

  • Author
    Posts
  • #14543
     Jean Mellano 
    Keymaster

    I live alone , hence no caregiver.  Shortly after my diagnosis, I decided to move from the home I had since 1987 to a Continuing Care Retirement Community  (CCRC).  Do you have a caregiver that lives at home with you? If not, have you made plans for your future should your disease progress?

  • #15110
     Lou Hevly 
    Participant

    Indeed, I have a wonderful caregiver, my wife, who just happens to be a nurse, though this is a two-edged sword, because she deals in her job with many people in the most extreme stages of PD and can’t help thinking I may end up like them. So I’m afraid my PD has upset her more than it has me.

    I’ve been “fortunate” (of course, if I were truly fortunate I wouldn’t have PD to begin with!) in that my day-to-day living hasn’t been grossly affected, so our plans for retirement and eventual need for assisted living are what they’ve always been: when we can’t care for ourselves, someone else will have to. And so we save every penny! Old and incapacitated is bad, but old, incapacitated and broke is worse.

You must be logged in to reply to this topic.

Copyright © 2017-2019 All rights reserved.

©2019 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending
or

Log in with your credentials

or    

Forgot your details?

or

Create Account