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“Controlled dyskinesia”, have you experienced this?
Since I have started taking generic carbidopa/levodopa, I have been experiencing what I call ‘controlled dyskinesia’ 3-4 hours after my last dosage. It typically dissipates prior to my next dosage. It feels like my head and mouth want to move uncontrollably, but I seems to manage it so no one can see any movement.
Have you ever experienced something similar?
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2 Replies
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I was on carbidopa levodopa for 2 weeks and discontinued because of the horrible side effects they caused me. The meds will not be an option for me at this time, cannot function and feel worse than I do without! I am boxing with Rock Steady Boxing for Parkinsons 3-4 days a week and the boxing has helped me with my balance, memory and stamina. I am also practicing yoga to help with my stiffness. I use medical marijuana before bed which helps me sleep without constantly moving my legs and CBD for my tremors during the day. So far, so good. I will continue like this until my symptoms do not respond to my choices. I am working on slowing down the progression.
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deb
thanks for sharing. i hate the thought of taking drugs and now, finding out I am at the mercy of big pharma’s whims, it makes me even more adamantly against prescription drugs. problem is, i feel really horrible without the drugs and only horrible with them. what dosage of CBD do you use? do u take it at set times during the day?
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