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Assumptions About PD?
Good morning, everyone! I’m still relatively new to this forum and the topic of Parkinson’s Disease, and I was wondering: what were some assumptions you had about PD before you were diagnosed? What are some common assumptions people have about you that you want to clear up?
An assumption I held for a long time was that PD is an older person’s disease, but I recently learned that between 10-15% of people diagnosed with PD are under 40.
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3 Replies
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Before my diagnosis I knew two Pwp I assumed it was a just a shaking problem. I soon found out it was much more. I wish people around me understood the non motor problems especially the anxiety, do and fatigue.
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I felt the same way Marcus; that PD was all about tremors. People always tell me I look fine, but fatigue plagues me as well. I write to try to educate others who do not have PD so hopefully they can better understand what we deal with… https://parkinsonsnewstoday.com/2019/03/26/parkinsons-patients-sense-loss-is-relentless/
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Fatigue and anxiety are invisible symptoms to people on the outside. Sometimes I feel like that makes it so much harder for people to understand our experiences. A broken arm or the flu is visible, but anxiety? It’s so hard to really show people what that’s like.
Are you in counselling or on any medication to support your mental health? Did you have any experience with mental health issues before your diagnosis or was your anxiety triggered by PD?
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