Life, Lemons, and Lemonade – a Column by Lori DePorter

stem cells, sewing, fishing, wild card, pkg watch

When Lori discovered at 45 that she had young-onset Parkinson’s, she struggled with her diagnosis but decided to attack it with the same tenacity, passion, and care she brought to her career as an engineer, marriage, and motherhood (of 3 boys). Now, at 52, Lori is also a writer, a Rock Steady Boxing Coach, and a personal trainer pursuing her passion of empowering others with Parkinson’s. She hopes her column, “Life, Lemons & Lemonade,” exemplifies something she learned from dancing with her husband, Mike: ”It’s not important HOW you dance. It’s THAT you dance.”

Keeping the Romance Alive With Stay-at-Home Date Nights

This New Year’s Eve was, well, different. Our tuxedo, gown, and sparkly shoes were replaced by shorts, T-shirts, comfy pajamas, and slippers. My husband, Mike, and I didn’t have a plan, but ultimately, we spent New Year’s Eve creating our own date night. We cooked dinner, made a fire, played…

Music Therapy Can Be Just What the Doctor Ordered

I never realized the benefits of music until I was diagnosed with Parkinson’s disease. Early in my diagnosis, I met Alexander Pantelyat, MD, co-director of the Johns Hopkins Center for Music and Medicine, who introduced me to both music and dance. Together with boxing and other exercises,…

Finding Hope and Joy in the Detour of 2020

As a parent with young-onset Parkinson’s disease, I’ve been adjusting and adapting to the bumps and detours of my life. One of those adjustments has been our expectations for family events, from milestone events to everyday activities. With young-onset Parkinson’s, we hope our health doesn’t rob us or our family…

Batman and Robin Battle Alzheimer’s and Parkinson’s

For Alzheimer’s Disease Awareness Month, I would like to share how Parkinson’s and Alzheimer’s have given a daughter and a father a special bond. My dad has Alzheimer’s and I have young-onset Parkinson’s. My mom, or as I call her, Wonder Woman, calls me “the dad whisperer.” But I see…

Sewing and Stitching With Parkinson’s

I met my friend Kathy when she came to our exercise class more than two years ago. She has Parkinson’s, too. Over the past year, we have developed a “big sister, little sister” relationship. Exercising is part of our time together, but we do so much more, including cooking, shopping,…

Fishing for a Parkinson’s Victory

Sometimes you’re living life to the fullest and forgetting Parkinson’s while doing something you never expected. Recently, for me, it was fishing — something outside my comfort zone. Fishing — really? My first adventure was last summer with friends who wanted to share their love of fishing. It was a…