How do I start this? What do I say?
A few years after I was diagnosed with young-onset Parkinson’s disease, I went to my movement disorder specialist for my routine, three-month checkup. We chatted for a while and then he brought up the subject of work. How was I doing, as I continued to work and deal with this disease at the same time? Was I still enjoying my job?
I told him that I was doing OK but that I was exhausted when I returned home each day. He asked how things were going at home. I told him that I usually went to bed once I walked in. I didn’t see my family much due to being so tired. He then told me that after observing me the past few months, he felt it was time for me to begin considering going on social security disability insurance (SSDI). I wasn’t ready for that step. He left the suggestion in my lap to ponder until my next visit, when we would revisit the subject again.
It was within those next couple of months that I came home one evening from work, tired as usual and in a lot of pain. I went into the living room, so as not to wake anyone. I sat there on the couch, tears trickling down my cheeks. I was ready to let go of my pride. It was then and there that I made my decision to quit my job and see if I qualified for SSDI.
Well, it seems another milestone has placed itself in the pathway of my journey — a milestone known as s-t-r-e-s-s. Hard as I try, I cannot sit down and write a column without having a stress flare. I’m closing my column and saying goodbye.
I’ve appreciated all of the encouragement and uplifting comments you all have left me, to cheer me up and guide me on.
This week marks my 307th column since I first started writing for Parkinson’s News Today in June 2017. It has been pure joy to have had this experience with you. I leave you with two columns you seemed to enjoy most, based on your interaction, the comments left, and the average star rating.
And my two favorites?
- What Every Parkinson’s Patient Needs to Know About Haloperidol
- Which Wolf Will Win in Our Struggle with Parkinson’s?
Thanks for your support and encouragement. I have appreciated it more than you’ll know.
Journeying with you always,
Note: Parkinson’s News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Parkinson’s News Today or its parent company, BioNews, and are intended to spark discussion about issues pertaining to Parkinson’s disease.
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