Enduring Through Parkinson’s Disease

Enduring Through Parkinson’s Disease

Sherri Journeying Through

Someone once said, “Life is hard.”

Someone else said, “Life is hard, and then you die.”

Another said, “Life is hard, but God is good.”

That’s what I’m holding on to — the belief that although life is indeed hard, God is so very good. 

You awake refreshed to the sun on your face through the bedroom window. Outside, a nest of newly hatched finches wait for their morning feed. The moment you step out of bed, the hard part begins. The part where you remember that the car died last night; where you get to work early only to find out you’ve been laid off; where you receive a phone call filled with disturbing or life-altering news.

You step out of bed to conquer the first hurdle of the day, then face another day of hurdle-hopping gone awry. The frustration, grief, disappointment, and despair ooze into the tiny crevices of your heart and permeate your spirit.

Want to learn more about the latest research in Parkinson’s Disease? Ask your questions in our research forum.

Sound fateful? Fateful and familiar and — dare we admit it – even hopeless? Hopeless as though you will never crawl out of the hole you’re in. A very dark place strewn with heartache, hurt, loneliness, and grief. Unexpected tragedies and unfulfilled expectations. It can appear as if our lives are desecrated by these negative feelings, and sometimes they don’t just seem to be – they are.

While we experience heartache and grief as we journey through death and disease, we are reassured that we don’t travel alone. While we walk uneven roads and pass through deep, dark valleys as we run the race set before us, we need to remember this: We have a God who will never leave us, forsake us, or forget us.

Life is hard, but as one of my favorite Christmas cards reads, “The best days are yet to come.” Days filled with unquenchable joy. We thought we couldn’t endure a life with Parkinson’s disease, but we are enduring because He is journeying with us. Never leaving us, never forsaking us, never forgetting us, always with us. Just as He promised.

***

Note: Parkinson’s News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Parkinson’s News Today or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to Parkinson’s disease.

Tagged , , , .

Sherri was diagnosed with Young Onset Parkinson's disease over fifteen years ago. She can be found working in her garden, going for walks, taking pictures, or reading books to her three favorite grandkids. Taking life somewhat slower, and perhaps with guarded steps, but she’s not giving in.

11 comments

  1. Andrew says:

    Thanks for the encouragement. I could not agree more. I find it important to remind myself of these kinds of things,especially when I’m having an off day.

  2. Heather Barnes says:

    I’m going through a bad patch whilst trying to piece my life back together, somehow I go two steps forward and one back. But I do believe in god and he is by my side!

  3. beth says:

    My dad has just been diagnosed with parkinson’s disease and I am only 16 and he is only 50. Some days I find it hard to accept and worry for my fathers future as well as mine.

    • Bethany – i am so sorry to hear about your dad. I don’t know how it feels to be on the other side of this disease, but i can imagine. you are so young to carry such a large burned and if I were you, i would try to get into a support group as soon as possible. If you contact the Parkinson’s Foundation, they may be able to steer you into a group close to you. Another way to get into a group through Facebook. There are several different groups on there for support, caregivers, and information. Just type Parkinson’s disease into their search bar and several groups will show up. In terms of your dad, is there anyone else in your hope that you are able to share your feelings with? Are you his caregiver? What stage does his doctor say he’s in? Try not to think the worst even though at times it is easy to do. Try to get him to a Movement Disorder Specialist if he is seeing just a neurologist. They will prove to be most useful to him and to you. Every person’s experience is different. Your dad may have many, many good years to go. If you have any questions, don’t hesitate to email me at [email protected]. —sherru

  4. mary laney says:

    Bethany, you are not alone so please seek help in support groups as sherri has advised. you can even join them online anonymously and participate in their helpful discussions. Do not fear, my dear for your father is in a better situation than any of us who were diagnosed before him. There are so many new advancements in the treatment of parkinsons now more than ever that may eventually cure and not just offer symptomatic relief. There are clinical trials in stem cell and gene therapies right now that seem very promising and at this point we can only pray that they will be the cure we are all hoping for. So do not despair for God will mercifully take us out of this darkness soon. May you and your family have a blessed Merry Christmas!

Leave a Comment

Your email address will not be published. Required fields are marked *